My name is Nicky. Some of you may remember me, I was a regular member and moderator of the migraine - headache forum last year. I stopped posting earlier this year when my headaches hit a new high.
I'm back on disability, still suffering 3 - 5 migraines a week. I haven't been working since the end of May. In partnership with my doctors we've tried a wide assortment of medications. We've currently settled on morphine, topamax, celexa and nadolol. If I don't do anything in the week I tend to have very few migraines. The minute I add activities back into my life the number of headaches I have increases signficantly.
I was heading down the firing path at work when I went off sick. My employer just didn't understand and my direct supervisor suffers from chronic migraines. I needed my benefits so my doctor and I decided it was time to go off on disability again. This is my third time. I am now on Canada's version of Government Disability. The good part about this is that I am now considered "disabled" and that gives me access to other programs. Unfortunately the pay sucks.
When I first stopped posting I was so overwhelmed and so depressed. I am happy to say I'm not depressed anymore. I'm not struggling to make it through each day. I am taking distance education courses and work on them when I feel well. I am in the final year of a Bachelor's Degree. I'm also volunteering one day a week to get me out of the house.
I don't know if I will ever be well enough to work again but at least by being declared "disabled" I am guaranteed a government income for the rest of my life and access to other programs. My husband has also stuck by my side and does his best to understand.
How is everyone else doing? Has anyone come across any new medications / solutions that help their migraines? Has anyone got worse? I hope everyone is better.
I cannot always control what goes on outside. But I can always control what goes on inside.