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Nicky (coquitlam55)

Veteran Member

Joined : Jul 2005

Posts : 505

Posted 9/21/2006 1:31 PM (GMT -7)

Hello,

My name is Nicky. Some of you may remember me, I was a regular member and moderator of the migraine - headache forum last year. I stopped posting earlier this year when my headaches hit a new high.

I'm back on disability, still suffering 3 - 5 migraines a week. I haven't been working since the end of May. In partnership with my doctors we've tried a wide assortment of medications. We've currently settled on morphine, topamax, celexa and nadolol. If I don't do anything in the week I tend to have very few migraines. The minute I add activities back into my life the number of headaches I have increases signficantly.

I was heading down the firing path at work when I went off sick. My employer just didn't understand and my direct supervisor suffers from chronic migraines. I needed my benefits so my doctor and I decided it was time to go off on disability again. This is my third time. I am now on Canada's version of Government Disability. The good part about this is that I am now considered "disabled" and that gives me access to other programs. Unfortunately the pay sucks.

When I first stopped posting I was so overwhelmed and so depressed. I am happy to say I'm not depressed anymore. I'm not struggling to make it through each day. I am taking distance education courses and work on them when I feel well. I am in the final year of a Bachelor's Degree. I'm also volunteering one day a week to get me out of the house.

I don't know if I will ever be well enough to work again but at least by being declared "disabled" I am guaranteed a government income for the rest of my life and access to other programs. My husband has also stuck by my side and does his best to understand.

How is everyone else doing? Has anyone come across any new medications / solutions that help their migraines? Has anyone got worse? I hope everyone is better.

Nicky

I cannot always control what goes on outside. But I can always control what goes on inside.
--Wayne Dyer

Annuk

Veteran Member

Joined : Jan 2006

Posts : 1308

Posted 9/21/2006 11:07 PM (GMT -7)

Hi Nicky,

Welcome back!! I just joined shortly before you left. It sounds like you have had quite a tough time overall. Well done for keeping on fighting!! - glad to have you back here.

A bit of background on me Nicky, I have had migraines for 30 plus years and am finally being assessed by a Neuro who is a Headache Specialist, and to that effect I am going into hospital for a few days for tests at the beginning of October. Because I have had some pituitary problems in the past linked to infertility the Doc wants to have a close look at the pituitary to rule out a tumour. Also later in October I am having checks for angina as I recently had a funny reaction to the Imitrex!

I have not been on here for the last day or so as I have just had a 36 hour attack - with no abortive! But the good news is my GP is trying me on Oxygen which should arrive today!! Look forward to hearing from you again.

take care

Ann

Nicky (coquitlam55)

Veteran Member

Joined : Jul 2005

Posts : 505

Posted 9/25/2006 10:13 PM (GMT -7)

Thanks Ann for your reply.

I also see a neurologist who is a headache specialist. He hasn't been able to figure out what causes my migraines or what fixes them for that better. I have a good medical team but they're at their wits ends. They're good about supplying me with pain medications but I'm not sure that's the right answer either.

Oh well, I have had good moments so I know I will have them again.

Thanks again.

Nicky

I cannot always control what goes on outside. But I can always control what goes on inside.
--Wayne Dyer

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