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AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 9/29/2006 2:22 AM (GMT -7)   
I hate doctors. I think I have been labled now, they say i'm not but i don't believe it. Doctors don't want to treat me anymore. They just say, I'll give you some torodol and phen and you can go home and rest. I was at the ER the other day for hours, on IV meds(steriods,antihistamines, ect, because giving me a shot of stadol would just be horrible.
I am so tired of being in pain all the pain. And just because it is a pain that can't be seen or explained by a machine, doctors are rude, and mistreat you.
it is very obvious that my headaches can't be prevented, so why can't i just treat them. I'm been on EVERY medication know for h/a, littleray and they don't work. Imitrex and meds in that catagory don't work, councilling doesn't work, NOTHING WORKS. 
I use 1 bottle of Stadol a month, and its like i'm doing something evil. My doctor is getting scarred prescribing pain meds, and he say things like "I'm 42 and never had a pain shot in my life"
"compared to most 21 yo you are a exceptional case" "Angela, I just don't know what to do anymore."  Great to hear when your crying and your head is pulsing in pain.
WHO CARES IF I HAVE TO TAKE A NARCOTIC as long as I don't take it too much. I used the stadol like once a week. i don't think that is a problem.
I'm writing this in tears bc i'm so frustrated.  Now they have me with NOTHING for a migraine. They don't know how bad that is. I'm jsut so tired(of being sick)
...and i can't sleep

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 9/29/2006 5:52 AM (GMT -7)   
Hi AngMichelle,

Sorry you are suffering again like this, and I don't just mean the headaches I mean the Doctor too! Is this guy you are talking about your Neuro? Whoever he is you need another Doctor!!!!

I have just been prescribed Oxygen for my migraines, and I have still yet to use it for a full on attack. I will let you know if it helps. I have tried it once before and it helped but didn't take the attack completely away, but I think that was because I was not using it efficiently. Have you ever tried this? It does not help everyone, but the idea is that breathing in a fast flow of 100% oxygen constricts the blood vessels in the head only (unlike Imitrex that constricts them all over the body).

As I say it doesn't work for everyone! I will let you know how I get on with it! I hope it works for me as this is now the only abortive available to me at the moment, as I have had some other health probs recently!

For me, the narcotic meds now cause more problems physically than they are worth, so I try hard to avoid them altogether, they don't work very well for me either!!

Hang in there, take care

Ann

seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 9/29/2006 9:09 AM (GMT -7)   
I can so relate. I had a neuro appt yesterday and he didn't really listen to me. It's very frustrating, I know. Thoughts and prayers go out to you. I'm sorry.

Take Care,
               Chelle
 
   "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
 
 DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, hypothyroidism, hypoglycemia, orthostatic hypotension, sleep apnea
 
 RX: synthroid, estradiol, lexapro, xanax, proamatine, inderal la, neurontin, torfanil pm, celebrex, aspirin, relpax, phenergan, esgic plus
 
 Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 10/1/2006 12:37 AM (GMT -7)   
the doctors I mention, are everyone i've seen. This is the best neuro I've had. i really think I've been labled a drug seeker in in "system". and that kills me. I don't ask for this, I hate the way i'm living, and then a doctor will look and me and say"Angela, we need to get these things undercontroll..." like its something I can do. I'm like, thats why I'm hear. well,"we don't know what to do anymore" great.Once again I write in tears. I'm just so frustated. this is no way to live. I have dreams, but I don't think they will ever come true, i can't even get out of the house, keep a part time job, cant go to school, CANT TO ANYTHING. I want this no more.

"Why so Downcast Oh my Soul, Put your hope in God"

Amby
Regular Member


Date Joined Jun 2006
Total Posts : 53
   Posted 10/3/2006 9:19 AM (GMT -7)   
I can relate too Angela.

I'm so sorry your in such pain. I hope it is gone soon! Or at least at a level you can get some rest.
Take care
Amber
 
Living with IBS,
Migraines & Tachycardia
 


spayne
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 10/4/2006 12:43 PM (GMT -7)   
I know that it doesn't help but, I can relate. I am in the er two - four times a week with them. They cannot determine why/what exactly triggers mine. Perhaps just breathing is a trigger... Neurologists are difficult to deal with, I have yet to find one that works with and listens to a patient as opposed to just treating them the way they feel should work and when/if that doesn't, just being done with them. The last time I saw mine three months ago, he upped my Topamax by another 50mgs even though it makes me sick and I cannot eat while taking it (which of course missing meals is a trigger so it becomes a cycle), and said as he was pushing me out of the door 'I hope I can help you'. What do you mean you 'hope'...you're the doctor! Yes, I have tried the oxygen therapy - didn't work for me but all migraine suffers are made different and it's definately worth a try. I have had migraines for 17 years (got my first one when I was 11), and underwent a brain surgery for a cavernous angioma that I was found to have hemmoragin at 20. Since then the h/a have gotten much worse. Unfortunately, there just isn't a 'one size fits all drug' and that is what has been attempted to be done with the triptans. I guess is what I have been trying to say is that even though I personally cannot give you a suggestion as to what works, I can offer you a little bit of comfort to know that you are not alone. I have done everything from the honest route of presenting at the same er everytime so they knew that it was a problem and that I do not hosptial jump, to hospital jumping (which I do NOT recommend) - find one a stick to it! Keep looking around for another doctor. There has to be one out there that understands what this is like - at least I hope so for the migraine community. But all and all, I promise you are not the only one who experiences these headaches, that feels like a criminal for using your meds, and that is insufficiently treated and mis-labled by the medical community. Just remember that they have to protect themselves too, and that while we in particular are not drug-seekers, they do exist. Some of the other medical concern with your narcs could be with rebound h/a. I don't know if you know much about them, but I personally get them from drugs such as codine and fioriset and you can get them from other narcs. The doctors are just trying to becareful and help you reguardless of how insincere and inconsiderate they may seem. I am sure that it is just as frusterating for them not being able to successfully do their job with our h/a as it is for us who have them. Just food for thought. My heart goes out to you, as I know how it is - I live it everyday and have for the last three years.

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 10/4/2006 1:12 PM (GMT -7)   
Hi Spayne,

Just wanted to welcome you to Healing Well, and look forward to getting to know you!

take care

Ann

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 10/4/2006 3:31 PM (GMT -7)   

Hi Angela,

I'm so sorry for the pain you are in. Unfortunately I can relate. I have been in that much pain a lot lately and narcotics have been my only saving grace.

I found a doctor (GP) who supports prescribing narcotics for chronic pain and he referred me to a neurologist who also supports and prescribes narcotics. Between the two of them I am on a regimen of long acting narcotics and use a combination of T3s / Toradol / Ativan for break through migraines.

Before I was prescribed narcotics I tried many different types of medications including Topamax, Neurontin, along with other new advances in migraine medications. They would work for a week or two and then my body would adjust and the headaches would come back.

This way I don't have to visit an ER and I only visit my family doctor or neurologist. Someone who has labelled you a drug seeker obviously doesn't understand physical dependence and drug addiction. People in pain don't seek drugs for a high, they seek to end their pain and want to end their pain. It's so frustrating that some doctors are to scared to prescribe the medications necessary to end the chronic pain that some headache sufferers are in.

I hope you are able to find a solution soon. My thoughts and prayers are with you.

 


Nicky
 
I cannot always control what goes on outside. But I can always control what goes on inside. 
                 --Wayne Dyer


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 10/5/2006 11:51 PM (GMT -7)   
Spayne, Have you had problems with doctors going to the ER so many times a week. thats more than me, lol. what do you get when you go? Just wondering, b/c here I can't imagine what they'd say if I was there 4 times a week....because I know what they say when I'm there once a week, or even once every two weeks. They last ER visit took me 6 hours, multiple sticks(in the teens) b/c I have no veins, yet they insisted on an IV of steriods and anti-histamines. "No Narcotics" they say. needless to say, I'll be avoilding the ER for a LONG LONG time, just to protect my reputation, and avoid the caos and mental anguish they put you though.
I hope things get better for you. Have you tried sometime like Stadol NS at home? that is what they are "allowing" me to use now at home-one bottle a month and no more.
~May God place his Healing hand on us all

seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 10/6/2006 12:10 PM (GMT -7)   

Hi Michelle-

You are not a drug seeker and in no way should be labled as one. I honestly don't understand why doctors refuse to #1) believe their patients pain is real, even if they can't understand it, and #2) they are supposed to have this big degree and know how to help. Was all that money spent on med school a waste? And I swear one of the courses some of them took was sarcasm 101. "Well, you know Michelle, headaches aren't a disability, you just need to try and overcome them." I had one, who I no longer see, tell me that exact thing! OOOHHHH I was livid. My ex-husband would tell me the same thing, I called him Dr. Chris and asked him where he got his medical degree from. "Well Michelle, we can't afford for you to be going to all these doctors when there is nothing wrong. It's all in your hea, mind over matter!" I can't have kids and he once told me to "get over it". I'm so glad I left him. He was a part of my stress. Yucky old bald man. (no offense to those that may be bald, just him)

Sorry I got off the subject there, just a small rant.


Take Care,
               Chelle
    "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
  DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, hypothyroidism, hypoglycemia, orthostatic hypotension, sleep apnea
  RX: synthroid, estradiol, lexapro, xanax, proamatine, inderal la, neurontin, torfanil pm, celebrex, aspirin, relpax, phenergan, esgic plus
  Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 


spayne
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 10/9/2006 6:07 AM (GMT -7)   
I have defiantly had my share of difficulties in the er. But, I always go to the same one so that it doesn’t look like I am hospital jumping. Once you do that and a doc catches wind of it you are indefinitely labeled. Typically they give me Nubane, Toradol, and Vistril, and when that doesn’t work it is typically a shot of dillauded. For the most part I haven’t had too much difficulty in the er because I am constantly doing something with my PCP to try new things. It seems as long as I am open to trying new meds and med combinations, they don’t give me too difficult of a time. My recent Neuro took me off of all of the triptans because of the severe numbness and speech impediment that I have during my attacks, which sends most new er doctors into a frenzy. I have recently ‘fired’ my neuro because all that he wanted to do was to just keep upping my Topomax and give me nothing during an attack so the only choice that I had was to go to the er. I stopped taking the Topomax (was taking 300mg), because I was constantly sick to my stomach so I wouldn’t eat...viscous circle being that not eating is one of my migraine triggers. Also because he called the er that I frequented and said that when I presented there, they were only permitted to give me Toradol and Vistril.

With being in the er so frequently I do have to watch for narc rebound headaches, which I have recognized and I DO NOT go to the er for those. I am now taking Naproxin twice a day, and I take the Immetrex shot, benadryl, vistril, ativan, toradol when I get an attack at home. That at least makes it seem manageable enough to fall asleep. When it isn’t, I go to the er. My last attack in the er it took 40cc Nubane, 2cc dillauded, and 150cc of Demerol via iv to get it under control. That’s the other problem that the doctors start worrying about, is the more pain meds you take, the more immune your body builds itself to them so it will take more and more and more and eventually not work at all. I have no idea what Stadol is and had never even heard of it since I started reading blogs on this site. What I can tell you is that most ‘drug seekers’ don’t ask for Nubane and Toradol, so nobody usually questions me. Still, once in a while they will give me a shot of toradol and visitril and send me home. I should add that I am allergic to Compazine, Phen, and Reglan so Vistril and Zophran are my only optons. I also wanted to say that being that I had a brain surgery I think that the er docs treat me a little differently. I hope some of this helps. I have been dealing with this for 17 years and this frequency for 8. If you have any more questions please do not hesitate to ask.
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