Hi, everybody. I'm new here and just (AT LAST!) was diagnosed with vestibular migraine. I've had vertigo for weeks to months at a time since my mid-twenties; no headache, just vertigo. I come by the migraine very nicely. My dad had them so bad we were afraid he was going to cap himself and my grandmother had them too. It took so long to diagnose it because my symptoms were so different from theirs, but I now feel that we're finally on to something.
Okay. I was put on Effexor, to no avail, but that's not surprising because it's not an abortive medication. Then they tried triptans (I felt lethargic and, at the same time, like I wanted to jump out of my skin and go outside to pave the alley. Not a good day. I was just thankful that those drugs have a particularly short half-life.) Tried midrin; nothing. I refused Topamax.
Just so you all know, I'm a PharmD. That means I'm a Doctor of Pharmacy. That being said, my otoneurologist listens to what I think and will try whatever I think is reasonable. He also understood when I said I wouldn't take Topamax. He knows I probably know more about
it than he does. Lucky for me. I talked to him last week, after suffering for 6 weeks with debilitating vertigo and told him it was time to bring the hammer down. What's the hammer? STEROIDS! I told him I wanted to do it and he agreed. Thank heaven!
If you're experiencing a refractory episode (that means more than a day or two) ask your doc to prescribe a medrol pack. That's methylprednisolone. The dose in the pack goes from 24mg down to 4mg in 6 days. Hopefully that will help, but some people, like myself, need more. I've been on 48mg for 6 days and I can't tell you how much better I feel! I will start the taper down to 4mg and then off the drug over the next 10 days and hopefully it will have broken the cycle. Seriously, if nothing else is working, ROIDS!
I know a lot of people are afraid of them, but don't be. If you're on it short term and you don't have any contraindications it should be fine. The really bad side effects occur with prolonged use. A few weeks isn't going to hurt. You may feel like an over-stuffed bean-bag chair for a few days, but it sure beats vertigo! Then you need to decide what the best strategy for prophylaxis is for you. I'm starting with propranolol. It's a beta-blocking agent; very mild, but said to be an excellent choice for migraine prophylaxis.
Hope this puts some new info on the table.