Vestibular Migraine - dizziness, confusion

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New Member

Date Joined Aug 2011
Total Posts : 3
   Posted 9/20/2011 5:59 AM (GMT -7)   
Turns out for me, I've got Celiac Disease and Migraines. I am on 25 mg of Zoloft (my body doesn't handle medication well at all!!) and literally since the week after I took gluten out of my diet, I have felt SO MUCH BETTER! My vision problems are gone, my constant headaches are gone, and my joints barely ever ache.

New Member

Date Joined Oct 2011
Total Posts : 1
   Posted 10/7/2011 6:51 AM (GMT -7)   
Hi Beth,
I noticed the previous posts were from 2006.  I hope you still check this site.  I was diagnosed with vestibular migraines yesterday. I'm reading up on the subject now to learn more about it and my symptoms are right in line with what is documented.  I went to an ear, nose and throat dr because I thought it was an inner ear problem but he said no.  I have been prescribed Midrin to take as I feel them coming on.  If you see this post and have any updates on your treatment , please let me know what you have found out.

New Member

Date Joined May 2012
Total Posts : 1
   Posted 5/23/2012 12:01 PM (GMT -7)   

New Member

Date Joined Feb 2008
Total Posts : 8
   Posted 5/29/2012 10:03 AM (GMT -7)   
Hi Beth,
I found your post about Vestibular Migraines. I see you posted quiet some time ago. I was wondering how you're doing? I was diagnosed, just this past December, with Vestibular Migraines. I don't get any pain, just the horrible dizziness, brain fog, confusion, feeling like you're walking in a daze, pressure in my sinuses and head and now horrible lightheadedness. This stuff is spiking my anxiety and I'm also thinking that it's just not migraines doing this. I find that I feel better if I close my eyes, close one eye or stretch my head down to the floor. I'm wondering if I'm having a oxygen or blood flow issues going on. I've had several MRIs that show nothing wrong (last one was back in 2008 of my head and had one of my neck in 2009 or 2010) All showed nothing wrong, but I am feeling they are missing something. I'm just looking for suggestions ideas that may help. I'm trying NOT to go on meds b/c I don't want to e dependent on them. I did the Topamax and that made 100 times worse! I tried Klonopin as well and that didn't help. Wish there was a switch you could just turn all this crap off!

New Member

Date Joined Aug 2012
Total Posts : 3
   Posted 8/1/2012 10:17 AM (GMT -7)   
Hi Beth,
I have been diagnosed with vestibular migraine about a month ago. I ended up at an ear clinic. My doctor is here:
Dr. Harold Kim, Wilson Ear Clinic. You can find it on the internet. You could call his clinic to ask for a similar doctor in your area.

He has put me on a beta blocker called propranolol. I am on a timed release 80 mg dose once a day. It has helped. I am presently at home with an attack so to speak. Mine seems to have come on from going through menopause. He figures eventually I will not have it when I am through menopause. It is miserable at times.

I am going now to work on prevention. One thing is staying very hydrated and getting a lot of sleep. Anyway, good luck. I feel for you, Sandy

New Member

Date Joined Aug 2012
Total Posts : 3
   Posted 8/1/2012 12:17 PM (GMT -7)   
Here is some info on diet and vestibular migraines. I am now working hard on prevention. I have been home for two days with a whopper. I am on a beta blocker, but want to do more to help myself with this problem.

Vestibular Migraines and Diet

Apr 29, 2012 | By Kimberly Rienecke
Kimberly Rienecke started her career as a health and fitness writer by working for various websites. She is a certified orthopedic physician assistant and an ACE-certified personal trainer. She also holds a Bachelor of Science in biology from Towson University.

Migraines are a common neurologic condition. According to the Vestibular Disorders Association, 20 million Americans are affected by migraines, and of these people, 25 percent suffer from vestibular migraines. Migraines may be triggered by several factors, including certain foods. Once you are able to determine what foods trigger your migraines, it is best to avoid or limit their intake if possible.
A vestibular migraine is a type of migraine associated with vertigo, or a sensation that your environment is spinning or moving. The term vestibular refers to the inner ear, which functions to provide us with a sense of balance. Symptoms of a vestibular migraine include vertigo, dizziness and a feeling of being unsteady. These symptoms may or may not be accompanied by the classic symptoms of a migraine, such as headache, nausea, vomiting and sensitivity to light.

Tyramine is an amino acid found naturally in many foods and is a common potential trigger of migraines, according to the National Headache Foundation. Tyramine is typically found in foods that are fermented, dried, aged, smoked or pickled. Foods high in tyramine include aged meats and cheeses, dried meats, smoked meats, fava beans, snow peas, olives, pickles, sauerkraut, soy sauce, miso, teriyaki sauce, nuts, pumpkin seeds, Chianti, burgundy, sherry, vermouth, beer, fermented drinks, and yeast.
Several chemicals added to foods may also elicit migraines in certain individuals, such as nitrites, nitrates, monosodium glutamate and aspartame. Nitrites and nitrates are found in processed meats such as sausage, bacon, hot dogs and ham. Monosodium glutamate, or MSG, is added to many foods for flavoring, such as soups and Chinese food. Aspartame is an artificial sweetener found in diet sodas and other sugar-free products.
Caffeine provokes migraines in many individuals. Beverages containing caffeine, such as soda, tea and coffee, should be limited to two servings a day. Caffeine is also found in chocolate, a common migraine trigger food, and should also limited to two servings a day.
Other Food Triggers
Other foods that may potentially cause migraines include yogurt, sour cream, buttermilk, Romano cheese, Parmesan cheese, sourdough bread, uncooked onions, citrus fruits, bananas, avocados, figs, dried fruit, red plums, Riesling and vodka.
The American Headache Society recommends using a headache diary to determine what triggers your vestibular migraines. Migraines precipitated by food typically occur within 12 to 24 hours after eating. If you find that a certain food triggers your migraines, limit the intake of this food for four weeks and note any changes in your migraines in your headache diary. If you find that your migraines do not improve, there may be other triggers in addition to food.
Other potential triggers of migraines include low blood sugar levels, stress, changes in sleeping patterns, menstrual periods and chemicals found in cigarettes and cigars. Since migraines are usually caused by a multitude of factors, it is best to eat a fresh, well-balanced diet and avoid other potential triggers.

New Member

Date Joined Aug 2012
Total Posts : 1
   Posted 8/19/2012 6:26 PM (GMT -7)   
I was just diagnosed with Vestibular Migraines.   Iam going to see a neurologist.  Beth  you must goto a neurologist who will manage this illness.  I went to my ENT who is top notch (a doctors doctor) and he diagnosed me and told me the only way to get this under control is to see a neurologist.

New Member

Date Joined Aug 2012
Total Posts : 3
   Posted 8/23/2012 7:00 AM (GMT -7)   
Good morning,
I have not been to a neurologist yet. I started acupuncture 2 weeks ago and feel more has been improved with that than anything else so far. I was told by 2 doctors (and I agree) my vestibular migraine was brought on by menopause. My only aunt who went through menopause naturally without a hysterectomy had the regular head ache migraines for a few years while in menopause. She had never had them prior or since. I will keep going to the acupuncture and get on a once a week maintenance soon, then only need to go every couple of months. For me it is working. They are not all created equal, so it can depend on who you go to. Mine specializes somewhat in migraine treatment.
Have a good day! Sandy

Regular Member

Date Joined Mar 2012
Total Posts : 30
   Posted 8/29/2012 8:12 AM (GMT -7)   
Hi I suffered from headaches and dizziness all my life. 5 years ago I discovered that I was Salicylate Intolerant, allergic to aspirin and all foods containing salicylates. Aspirin is a salicylate that comes form the bark of the willow tree. All plants produce salicylates as a natural insecticide. It is in things likes fruit,most vegetables, tomato sauce, olive oil and many more. Theres a good list of foods in the book,"Salicylate Intolerance and The Healthier I Ate the Sicker I Got."

Right before I hit bottom I had such a pain in my right eye that I went for a CAT scan to rule out a tumor. Once I went on a low sal diet I got rid of my headaches,dizziness, nausea, neck pain, arthritis, asthma, dry eyes, nosebleeds and a foggy headed feeling.
Check out
No one should just accept a diagnosis of Cluster Headaches when they can prevent them by finding out whats causing them. Its usually a food intolerance. Unfortunately there is no test for Salicylate Intolerance because it isnt an allergy. You have to go off the foods that are high and very high in sals and see how you feel. Good luck, Joan

Regular Member

Date Joined Nov 2011
Total Posts : 20
   Posted 9/27/2012 12:21 PM (GMT -7)   
Ok guys - I really hope everyone here has found relief.

I have been diagnosed with chronic migraine by a headache neurologist at the Mayo Clinic (after 1-1/2 years of doctors and tests). My symptoms are mostly dizziness, lightheadedness, sensitivity to light, the feeling like my eyes are spinning or my eye muscles are twitching. I am dizzy now 24/7. This started in May 2011. It's now September 2012. I can no longer exercise because it makes me dizzy.

I tried the migraine diet - no help. I tried Verapamil - made me sick to my stomach and didn't help much, but again I was only on it for 3 weeks - not really enough time. I went off my birth control pills - no help, and then back on - no help. Nothing OTC works - neither does Magnesium. I am in chiropractic treatment - no help. I am currently in acupuncture, which seems to help the headaches but not the dizziness. I have been through every (and I mean every) test. Dr. wanted to put me on Pamelor. I seriously do NOT want to take an antidepressant.

My lovely chiropractor is behind me every step of the way, trying to get me relief. We have gone to Jack Kruse is a neurologist/surgeon in Tennessee with a Blog and Website on Optimal Living. I did an email consult with him and send him ALL my medical records. Based on his recommendations, we have ordered lots and lots of labs (I am blessed with good insurance). Many of my doctors said they felt this was hormonal, but none ever even dared to touch that subject any further. Once the labs come back we will have another consult with Dr. Kruse to see what he says I need to do.

In the meantime, my insurance has approved me for Botox treatment. I will not have it done until my consult with Dr. Kruse, but I hear good things about it and I have the opportunity to try it. We'll see how things go. I will try to remember to post my progress.

Karen from Arizona

Jed S
New Member

Date Joined Oct 2012
Total Posts : 3
   Posted 10/5/2012 9:45 PM (GMT -7)   
My Neurologist dx'd me with Basilar Migraines with Syncope, Vertigo with black outs.
I have most of the symptoms on the Basilar/Vestibular list.
Sumatriptan worked for a few attacks but I also have two others medications as prophalactics: Val Proic Acid and Cyproheptadine.
After I started taking them, my Trigeminal Neuralgia immediately simmered down. My migraines had been constant for over three years and maybe longer but all the symptoms had not evolved into what they are today. So, the relief from the neuralgia was extremely amazing to me.
The meds only work so far. This week, I had one break-thru Beasty Migraine. It started on Monday. I took the Sumatriptan. I thought it worked... maybe for some hours. But the next day, the Beasty hit twice as hard and I had to vomit in a public bathroom. Luckily it was not one with stalls but a private door.
The nausea was so intense and lasted for hours. It was not going to end with a few hours of sleep. I had to wake up, after I had been home a few hours and take Promethezine for nausea and motion sickness. I should have thought of that but I could not think.
I have been re-evaluating the past week. I re-read my Migraine book and researched more online. I think I need to put together an Emergency purse kit so I can have all the meds including the Promethezine. Promethezine is strong for me. It could make me drowsy so I would not want to drive with it. But... it is either drive vomitting or be a bit drowsy. Maybe I can add a caffeine pill to that.
Anyway, I did not know my symptoms were a Migraine until April this year 2012. It is not as if I was not going to my doctors to figure it out. Only the Neurologist knew.

New Member

Date Joined Oct 2012
Total Posts : 5
   Posted 10/10/2012 1:09 AM (GMT -7)   
Hi I have just been told I have Vestibular Migraine... I have been suffering for over a yr with dizzyness, sickness, balance problems. Blurred vision, not thinking correctly....Over the time I can having pain in my face, stiffness in my arms, hands, fingers and legs. I had Caloric Tests, and Mri, MRI came back ? demyelination of the white matter...Have been put on betablockers, hope to feel better soon. Would like to chat with people who are like me.

New Member

Date Joined Oct 2012
Total Posts : 1
   Posted 10/28/2012 10:07 AM (GMT -7)   
I've read this thread from beginning to end. It's amazing that it's still active, even if barely so.

I was diagnosed with migraine in 1998 after having had vertigo pretty much nonstop for 6 months. I had all the routine ear tests to rule out BPPV and other peripheral issues. My MD had an epiphany when I told him that I sometimes get sensitive to light. (There are other symptoms that we didn't pay attention to at the time because they are similar to anxiety - like numb face and tongue.) He put me on Amerge (a triptan) which I took daily for about 5 days (not really the way it should be used). The migraines went away and stayed gone until Jan/Feb 2001.

Since then I've had some recurrent clusters of daily episodes, including 8 to 9 month period in 2001 and a two year stretch from 2004 to 2006. Triptans didn't help that time. Heck, they might not have helped the first time and the "remission" was just coincidence. Who knows.

Without making this reply much longer I will say that I'm in another daily cycle and have a appointment tomorrow during which I hope to convince my MD to try a course of steroids and then a preventative. Perhaps propranolol.

New Member

Date Joined Oct 2012
Total Posts : 5
   Posted 11/5/2012 1:57 PM (GMT -7)   
hi i have been told i have vestibular migraine, its been a living hell. I have been put on betablockers been on them 4 weeks, still have odd days where I am dizzy, confused and sick. sometimes i can sleep forever. I gave up my job as a nursery nurse coz i just did not feel i could manage the job.
I try and do small steps sometimes they work other times i am worn out by small tasks.


New Member

Date Joined Nov 2012
Total Posts : 5
   Posted 11/28/2012 7:59 AM (GMT -7)   
I have been diagnosed with menieres disease for many years until yesterday. I went to an appointment Atlanta VA Medical Center and saw two different docs at the same time. One was an ENT the other is a NEURO ENT and they put this black mask on my eyes that was connected to the computer. They said they can see what my eyes do on the screen. They said my eyes were wiggling side to side and I got really sweaty and nauseated because it made me dizzy. They are now reffering me to neurology at Emory University Hospital in which I have an appointment in January. I have had to leave my job and go on short term disability and in 6 months I will go on long term disability. It is hard to live in uncertainty but I keep trying to look forward by faith. The never ending ringing in my ears can drive one nuts but I try to tune it out the best I can.

New Member

Date Joined Nov 2012
Total Posts : 5
   Posted 11/28/2012 8:13 AM (GMT -7)   
Hi Janx, My mom was on betablockers for her heart and it is a medicine that if you ever come off of them you have to be weaned off or it can cause a heart attack. A docter took my mom off of them and about 4 days later she ended up in ICU with a heart attack and was never the same after that. The doctor was put out of the military because of it.

New Member

Date Joined Sep 2013
Total Posts : 1
   Posted 9/9/2013 8:20 PM (GMT -7)   

I've been dizzy every day since 1/23/12. I was diagnosed with vestibular migraines on Sept 2013, and confirmed again in Feb of this year. I saw two of the top five docs within the field and have done my best to learn to live with it. I'm constantly dizzy, light headed, foggy, head aches, forgetful, slow, etc. As the day goes on and I'm around my triggers, the spinning gets worse (similar to drinking too much.) Some days I still wonder if I'm crazy and this is all in my head. I know I'm not and this is real, but it's hard to process how much your life can change when it feels like you're living in a dream 24/7.

The good news is I've learned my boundaries and don't cross them too often. Here are a few key things I've learned.

- Being active is key. The first year, I hibernated and retreated from life. This not only was against my personality, but changed how much I could tolerate. While I thought laying low was a good thing, it really made me worse.
- I accept that I will never be back to "normal" This is my new normal and I work to make it as pleasant as possible. I had to change my expectations to focus on improving the quality of life vs comparing it to how it used to be
- The doctors told me, if I find a medicine that helps before testing 10 different ones, I'm lucky. I'm on number six, and it's helped with the headaches. I rarely have one now. Don't be frustrated if you're on number one or two. It just takes time to find something for each person.
- Stress is a trigger for me. While I've cut back on my drinking and quit smoking, I've had to find new stress relief techniques to keep anxiety down. I see a therapist bi weekly and it helps
- I go to vestibular therapy twice a week and highly recommend it. Talk to your doctor about it. While PT won't cure me, it helps my body adapt to living in the world with vertigo. I'm retraining my body, one session at a time
- I allow myself to have a day or two every few months to feel sorry for myself. Then I move forward, because this is life and it could be much worse (that doesn't mean I don't miss the old me nor is this easy for either of us.) If I allowed myself to miss the old me often, I'd feel sorry for myself every day.
- I work with a trainer at my gym. We started in a private, dark room and do 98% of exercises on the floor to not aggravate the vertigo too much
- Swimming is the best exercise for me. I can manage the vertigo and still get in a good work out. I miss a really good work out. Maybe one day...

Hope this helps.

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 9/9/2013 8:57 PM (GMT -7)   
FYI, aspartame is in a lot more foods than just sugar free ones. It hides under these names:

Nutra Taste
Latest attempt at a new brand name, Amino Sweet.

These 3 chemicals make up aspartame, avoid too:
phenylalanine (found in nearly all gum, yoplait light yogurt, etc.)
Aspartic Acid

Google aspartame, it's been linked to headaches, dizziness, migraines, a total # of 92 serious health side affects, some deadly.

Post Edited (Marsky) : 9/9/2013 10:03:01 PM (GMT-6)

New Member

Date Joined Mar 2014
Total Posts : 1
   Posted 4/25/2014 5:03 AM (GMT -7)   
Please tell me if you have found anything that has worked.. i hope you are still active on this site. You have my exact same story!! Please help!

New Member

Date Joined Jun 2014
Total Posts : 1
   Posted 6/22/2014 9:47 PM (GMT -7)   
I also have vestubuler migraines and it has been going on for a year and a half. seeing a neuroligist neuro blocking shots work but dont last long insurance denyed botox shots, so frustrated hard to work live and sotired of having a headache everyday being dizzy nauseous and more. is there any help for this or do i just have to live with this

New Member

Date Joined Jan 2015
Total Posts : 1
   Posted 1/18/2015 9:40 AM (GMT -7)   
I'd like to make a suggestion to all of you with migraine related problems. Please please please stop popping pills your GP or neurosurgeons prescribe. All these pharma promises do is band aid your problems and cause other issues, specially long term
Visit a naturapath who is well versed on metal poisoning and metal chelation. 9 out of 10 cases of migraine related ailments are heavy metal poising related. by removing the metal you are no longer just band-aiding the problem but healing the problem. Your doctors spend 3/4 of their schooling/training in determining prescription medicine based on loosely studied diagnosis.

Forum Moderator

Date Joined Apr 2012
Total Posts : 7251
   Posted Yesterday 2:05 PM (GMT -7)   
Thread locked do to size
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

New Member

Date Joined Jan 2016
Total Posts : 1
   Posted 1/29/2016 8:06 AM (GMT -7)   
I am wondering if anyone on here Vestibular Migraines have gone away. My doctor told me they will eventually. I use Xanax for mine and they make my symptoms of fogginess, sensitivity to light and confusion go away. Alcohol also makes my symptoms go away. I take the Xanax in the morning and if my symptoms start to come back in the evening I have a glass of wine and they go away immediately. I am 32 and experienced this back when I was 23, it only lasted about a month and the "fogginess" only happened in the late afternoon so I would have a drink to make my symptoms go away, but like my doctor said my symptoms just stopped out of the blue one day. However, it has been 5 months now and I still get symptoms every morning, about an hour after I wake up. I just hope they will go away again. I know long term use of Xanax is not good on my liver and I never mix it with the wine and most nights I don't have to drink. Anyone else with my symptoms using any other treatments? I'm not "dizzy" I'm not spinning. I sleep great! Sleep makes my symptoms go away. I could sleep all the time.
I have had Brain MRI, sinus CT, complete blood panel and saw a psychiatrist. All results normal. I'm 95 percent sure these are Vestibular Migraines

Regular Member

Date Joined Sep 2010
Total Posts : 25
   Posted 4/11/2016 4:27 PM (GMT -7)   
I too have vestibular migraine. It waxes and wanes during the month, worse right before and during my period and also ovulation. My only guess is its hormonal for me and due to decreased estrogen levels. It started at 24 for me and seemed to get better up until I gave birth. I'm 33 now and this is awful. I have lots of vision issues with it too.
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