Welcome to the wonderful world of disability nightmares. I live in the good 'ole US of A., and getting on Social Security Disability is a never-ending paperwork pain in the rear. I've had migraines since elementary school, multiple back problems, and suffer from depression, anxiety and panic attacks. I've found that the best way to get through the disability system is to snow them with documentation. Luckily, I have documentation on my migraines since 1978, five years after I started getting the attacks in elementary school. I also have years of documentation on my depression, panic and anxiety. My disability paperwork took forever to fill out, but luckily I had so much documentation, I think I just got approve on the first try because they got sick of all the paperwork. Disability payments are based on your employment income, with some weird formula, but luckily I had a pretty good salary when I had to stop working in my chosen career. Unfortunately, my monthly payments aren't enough to live on. Since I got divorced shortly after I was unable to work anymore, I have to live off my disability with the relatively frequent subsidy from my parents. I couldn't even do any of those "work from home" jobs you see advertised all over the place. I'm in too much pain most of the time to be the least bit productive. I can't even manage to keep my townhouse clean. The downstairs is OK, but only my dad is allowed upstairs. He drives me to most anywhere I need to go, does my laundry for me, takes out the trash, and holds my hand when I'm really in pain. I'd be in real trouble if I didn't have such supportive parents. My mom does what she can, but my situation really puts her in a state.
I'm only 41, and it's hard to see much quality of life for me in the future. My friends have all abandoned me, and pretty much my only contact with the outside world is via the computer. My dad had to buy me a new laptop a couple of weeks ago, as my last one was on its last legs for several months. I thought I would lose my mind because we just could not keep it up and running. I made a trip last week to a yearly doll convention I attend, which is the only thing I have to look forward to on a regular basis. Of course, the day of my flight home, I spent it with a raging migraine, and made a stop at the ER on the way home. Sorry, I digress.
Anyway, if you are going to go through the disability process, my best advise is to snow the powers that be with paperwork. The more documentation the better. I know I'm lucky since I got approved on the first try, but hang in there until you get what you rightly have earned.
Much luck, and keep us informed.
"The weather is here, I wish you were beautiful."