Occipital Nerve Stimulator

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hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 11/11/2006 5:35 PM (GMT -7)   
Hi everyone, last night on EyeWitness News at 11PM they did a brief segment on a new procedure/cure for migraine.  They called it a "occipitcal nerve stimulator."  I believe that it is implanted in your brain.  Did anybody else see this?  Has anyone heard of this?  Ann - has your headache specialist heard of this?  I have a 15 year medical record of migraine and have been on State disability for migraine (and cervical disk degeneration) but I was recently turned down to get nerve blocks.  My doctor said "go" but the HMO said "no."  I wonder what one would have to do to get this procedure done.  I would try it in a heartbeat!  Any comments?
Talk2Kel 
DX: chronic migraine, cervical degeneration, depression/anxiety 
RX: Wellbutrin, Lexapro, Soma, Immitrex 
"You don't find out that God is all you've got until God is all you've got."


Annuk
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Date Joined Jan 2006
Total Posts : 1308
   Posted 11/12/2006 7:22 AM (GMT -7)   
Hi hopeful,

Ooh dear it's going to sound like I am being a wet blanket but........to answer your question, yes I have heard of it and I do know someone who has had it done.........that said please do not get too excited, it is an extremely expensive procedure and does not always work. There are some that claim it can leave you pain free, but sadly that is not the reality.

However, ONSI (Occiptal Nerve Stimulator Implant) is usually only thought of as an extreme last resort, and not all are suitable for this procedure. By all means find out what is what where you are concerned here, but it is not the miracle it is made out to be.

Now, that is my opinion from what I have learned, you must make your own mind up.

take care

Ann

hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 11/12/2006 10:12 AM (GMT -7)   
Hi Ann, that sounds about right. The nerve block (steriod injections) are the same thing and people say that they don't always work and if they do they are very temporary. It's frustrating when they tout these things on the news because all of my caring friends and family think it is as simple as trying what was talked about on the news. They don't understand that I've tried everything (and I'm not the only one) and these things just don't work for me. :(
Talk2Kel 
DX: chronic migraine, cervical degeneration, depression/anxiety 
RX: Wellbutrin, Lexapro, Soma, Immitrex 
"You don't find out that God is all you've got until God is all you've got."


Nicky (coquitlam55)
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Date Joined Jul 2005
Total Posts : 505
   Posted 11/15/2006 5:16 PM (GMT -7)   
Hi hopefulmigrainer,
 
Is there a headache clinic or pain clinic in your HMO? Or is there a headache clinic close by that takes patients on disability? Either of these might have the latest treatments and might know if they can be paid for.
Nicky
Co-moderator Migraine Forum
 
I'm working everyday to overcome the pain and depression that comes from my chronic resistant migraines.
 
 


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 11/15/2006 8:49 PM (GMT -7)   
I have done a lot of research on a Vagus Nerve Stimulator. It is an implanted device that had electrodes attacked to the vagus nerve in the neck, and a battery inplanted in your chest area. I even got the full approval of my neuro. They use it all the time for epilepsy. . I just can't pay $30,000 for the surgery and I didn't catch the study they are doing for migraines in time. It is FDA approved for recurrent depression, and I deal with that too, so I may press for it in that way. I'd just say, research, reasearch, research. I know there is a VNS forum and they have a lot to say, good and bad. I do not know much at all about the ONS but assume they work in a simular manner.

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 11/15/2006 8:53 PM (GMT -7)   
ps: I think you have to have a specific type of migraine for the ONS to work...not 100%

hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 11/16/2006 12:36 AM (GMT -7)   
thanks for your input. I live in Cali and have an HMO. They automatically DENY everything and make me appeal. Nevermind that my neuro, orthopedica and anesthisologist/pain doc recommend something. I guess I shouldn't be upset with the news - they are just doing their job but they just "tease" and get me excited that something might work for me. I even have friends and family calling me and telling me to watch the news. bless their hearts. It's just discouraging when you find out its not approved or $30,000 for heavens sake. If you find a good website, let me know. I'm going to google it now.
Talk2Kel 
DX: chronic migraine, cervical degeneration, depression/anxiety 
RX: Wellbutrin, Lexapro, Soma, Immitrex 
"You don't find out that God is all you've got until God is all you've got."


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 11/17/2006 8:35 PM (GMT -7)   

I don't know about the ONS , but for the Vagus Nerve Stim. go to www. vnstherapy. com. It doesn't say anything about migraine treatment, but has a lot of info. on depression. My neuro. say it would probably do wonders for my headaches if i could find some way to afford it. I may press my insurance for geting it for depression and pray it helps my migraines too.

I hope you find something that helps you.


mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 11/21/2006 7:26 PM (GMT -7)   
hi guys, i can only confirm what Ann has already mentioned, though i only know of people with Cluster Headaches that have had it done, i don't have any info about migrainers success rate, but i will try and find out!!

i think that with any surgery, you have to weigh up the odds and the advantages or disadvantages this procedure may cause!!!

try and find out what ratio success it actually has before committing yourself!!

my husband has had the GONB injection twice now, first time gave him 8 weeks of VIRTUAL pf time, but not complete pf time, and it is too early to decide on this latest one!!

again not wanting to sound like the big bad witch, but it may not be the cure you are hoping for, you will still be a migrainer, only hopefully you will have more control of your life!!!!

mrs mac xxxxxx

hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 11/21/2006 7:29 PM (GMT -7)   
thanks, mrs. mac. I don't have the time or money to pursue this anyway. I wish there was a magic pill or device that would give us all freedom from the migraine affliction.
"You don't find out that God is all you've got until God is all you've got."
 
"The mighty oak tree was once a little nut that held its ground."
 
"You are richer today if you have laughed, given or forgiven."


ccarr
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 9/22/2008 5:40 PM (GMT -7)   
I am actually have an ONS trial implanted on Monday.  I have had miagraines for five years and have been through all the various drugs and injections.  My doctors were holding this out as a last options.  I also have Chiari One and that surgery did not help me at all.  I am not sure if this devise will do anything, but I am holding out hope as I have been told that this is a last option.

dailymigraines
New Member


Date Joined Mar 2007
Total Posts : 4
   Posted 9/24/2008 10:34 PM (GMT -7)   
Hey ccarr, good luck with your surgery on Monday. Let us all know how things go. I just had my consult with my Neurosurgeon today about a trial ONS implant. I had an MRI performed today to make sure I didn't have any bone spurs on my neck that could be causing the pain prior to putting the temporary implant in. If the MRI shows up with spurs or anything else than he will go in and take care of that and see if that will take care of my migraines otherwise the ONS implant trial will move forward in October. If that goes well then I will have the permanent one implanted after the temp heals first. I have been suffering from chronic daily migraines for 6 years and off and on since I was 12. I am a 32 year old male.
Again good luck and hopefully you will have great success with your implant. :-)

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2023
   Posted 6/25/2011 4:16 PM (GMT -7)   
 
 
  I know this is an old thread, but just wondering if the members are still around that had the ONS surgery,
 
  and perhaps they could give us an update.
 
 
Thanks
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