Complicated Migraine

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mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 11/12/2006 9:53 AM (GMT -7)   
Hi, I am newer to the boards and have only posted a few times. I am diagnosed with cluster headaches, and complicated migraines (this is a new diagnosis for me). I was hospitalized for 6 days to try to break the current migraine cycle that I am in. This cycle caused right hemiparesis (weakness on right side of body) amongst other things. I still do not understand this condition and am looking for someone else who has it. I was started on several new preventatives, but it will be several weeks until we know if they are working. I will be going back to physical therapy to be rehab'd yet again. Any information would be a great help, I have tried researching it some, but not tons of information found so far...

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 11/12/2006 6:35 PM (GMT -7)   
I have complicated migraines, basically that means chronic and hard to treat. I am so sorry you have to deal with this. I'm still on the search for relief, as most of us are. I hope you find something that works for you. BEST to you.

mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 11/13/2006 9:53 AM (GMT -7)   
Thanks for the reply and kind thoughts. I probably should have explained the type of complicated migraine a little bit more. The type I have from what I understand is that it produces stroke like symptoms (but I did not have a stroke). I don't know if this explains it better or not. I know all too well what you mean about these things being hard to treat. I hope you also find some relief very soon!!!

spass2006
New Member


Date Joined Nov 2006
Total Posts : 2
   Posted 11/13/2006 3:14 PM (GMT -7)   

Hi ladies,

I too am new to the boards and suffer from severe debilitating migraines, cluster headaches, and tension headaches.  I have suffered over the past decade with all 3 types of headaches and my doctor and I felt like we were out of options.  I hope you are able to find something that fits your needs and allows you to get back to your life.  I recently started taking a nutritional supplement called Cephpax and it has really helped, no migraines or headaches for 3 weeks.  I am only in the first month free trial, but for me it has been great.  I think like with anything in medicine, you have to find a doctor that is willing to work with your individual needs and allow you to decide what is best for you.  For me, I could not take Topamax and some of the other prescription drugs because of the side effects, just make sure that you & your doctor are on the same page as far as what you feel comfortable with.  Good luck!


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 11/14/2006 4:02 PM (GMT -7)   

Welcome Mommyto3 and spass2006,

I suffer from classic migraines for most of my life. I have been suffering from them almost daily for the past five years. I am not working right now as we try different medications to control them. This is my third time on disability. I have tried working while we tried medications but the side effects could be so disabling that I couldn't work. In partnership with my doctors we have decided that I'm not going back to work until we figure it out this time.

Good luck! Let us kow as you proceed.

 


Nicky
Co-moderator Migraine Forum
 
I'm working everyday to overcome the pain and depression that comes from my chronic resistant migraines.
 
 


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 11/17/2006 8:40 PM (GMT -7)   
I have had one migraine that produced stroke like symptoms. It was the scarriest thing. I could not talk, had numbness in my left side, and a stabbing pain in my head. it was crazy. Eventually my neuro. just said that it is a type of migraine, and that there isn't any "harm" going on, like if it were a stroke.
Luckly, i've only had one of this type. I bet it is very hard for you to deal with this on a regular basis. I don't know if treatment for this type is different from a classic migraine. i hope you find something soon to help you.

hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 11/17/2006 11:12 PM (GMT -7)   
Hi Mommyto3 - I don't know too much about clusters, although my doc says "you are getting many different kinds of headaches." I also get secondary headaches from neck.

Question for Spass - where did you hear about the Cephax? I thought I had heard of everything. I might want to try this since you are having such success.
Talk2Kel 
DX: chronic migraine, cervical degeneration, depression/anxiety 
RX: Wellbutrin, Lexapro, Soma, Immitrex 
"You don't find out that God is all you've got until God is all you've got."


mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 11/19/2006 7:54 AM (GMT -7)   
Hi AngMichelle,
Yes, it has been very scary--they have varied so much in symptoms just some weakness and numbness to paralysis. It took 6 months to get a diagnosis, because most doctors don't know what it is, so they just assumed I was having TIA's/stroke (or whatever else)since I do have high BP--but I'm still in my 20's. I was even skeptical of the diagnosis, because I have never heard of anyone having the symptoms until just reading your e-mail, that can be a typical one for me, and that is what the doctors tell me--I do have to take aspirin as a preventative for stroke and avoid any meds that increase your risk for stroke. Also, I take quite a few preventatives that I was just started on (4), so we will see if these work...I think I take the same types of medicine, maybe just a little more--that is what I gathered from the headache unit at hospital, but I could be wrong...Take Care!
 
HopefulMigrainer-Hi, it's got to be hard to catch a break when you have so many different headaches going on. Your neck also causes headaches? Is that from the way the head moves, and then it sends a radiating pain up the head, ouch...
 
 
Nicky-I never realized medications had so many severe side effects until I started recently on these new medications and have had a hard time with them. They really can take a hard toll on your body, and make it next to impossible for you to function. I hope you find a combination that works for you and gives you some relief from pain and side effects.
 
Thanks for all the replies!!

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 11/20/2006 6:56 PM (GMT -7)   

Thanks mommyto3, I hope you find something that helps without making your life miserable as well.

 


Nicky
Co-moderator Migraine Forum
 
I'm working everyday to overcome the pain and depression that comes from my chronic resistant migraines.
 
 


Amethyst4292
New Member


Date Joined Nov 2006
Total Posts : 2
   Posted 11/22/2006 9:19 PM (GMT -7)   
I am new to this site...this is my first posting.  I have had a continuous headache, every single day since 2/15. All my neurologist does is change my meds every month & so far no single drug & none of the combos he has prescribed have done the trick.  I have been going to the chiropractor every day for the past 3 wks and so far no change, but I am still praying for it to work.  I just received my free sample of 'cephpax' and I am now more hopeful because of the posting here from spass2006 expressing having good results from the supplement. yeah   I have suffered from migraines since I was 12 & I am now 54.  I have been on numerous meds that work for a while, but then stop.  Imitrex injection seems to work the best, but my neurologist will not prescribe it for me anymore because he says I have been on it for too long already & the long term effects are not good.  He said it affects your liver & kidney.  Has anyone else heard of this?  Good luck to anyone who suffers with headaches.  People who do not get constant headaches have no clue what it is like.  sad   Have a great Thanksgiving!  Keep the posts coming.
 

BREA
New Member


Date Joined Nov 2006
Total Posts : 7
   Posted 11/22/2006 9:51 PM (GMT -7)   

HI EVERYONE, IM NEW HERE.  I SUFFER FROM CHRONIC DAILY MIGRANES/HEADACHES.  I HAVE

SEVER EYE PAIN,NECK, AND BACK OF HEAD PAIN.  IT HURTS TO MOVE MY EYES.  I CANT LIE DOWN BECAUSE IT MAKES THE HEADACHE WORSE. I'VE HAD HEADACHES FOR 15 YEARS.

I TAKE ELAVIL, NEURONTIN,MAXALT, AND VICODIN FOR PAIN.  confused NOTHING WORKS. I READ THAT SOME PEOPLE GO TO THE EMERGENCY ROOM. I'M  SCARED TO GO BECAUSE I THINK THEY WILL THINK I'M CRAZY.  EVEN MY HUSBAND DOESN'T UNDERSTAND THE PAIN I GO THRU EVERYDAY.

WHEN I LIE DOWN I CAN LITERALLY FEEL MY ENTIRE BODY PULSATING WITH PAIN.  ITS 11:49 AND I CANT SLEEP BECAUSE MY HEAD HURTS. ANY ADVICE WOULD BE SO GREAT. I'M AT MY WITTS END.  WELL THANKS FOR LISTENING. GOD BLESS.


Amethyst4292
New Member


Date Joined Nov 2006
Total Posts : 2
   Posted 11/22/2006 10:22 PM (GMT -7)   
Brea,
As I said in my post, unless you are a migraine/headache sufferer, you have no clue as to what one goes through. I too have taken all of the meds you listed and then some. The only thing that has worked for me on a regular basis is Imitrex Injection, but as I said, my neurologist will no longer give it to me because he says I have been on it way too long already. He has been trying combo meds, but still to no avail. I too am at a point where I would try anything. I am hoping the cephpax is something that will work. Maybe you should try it out. You get 2 bottles of 60 pills in ea for the cost of S & H which was $5.05. As long as you cancel within 60 days, you will not be charged for any more shipments (unless of course they work & you want to order them). Here is the link for the free trial, just in case you are willing to give it a try. I just received my bottles, so I will be started them ASAP. 'spass2006' says he/she has started taking this & so far it is working. Give it a try. God Bless & good luck.
 
 
 
 
 
 
If you would like to know why I edited your post please feel free to email me.

Post Edited By Moderator (Annuk) : 11/23/2006 11:51:21 AM (GMT-7)


mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 11/23/2006 7:38 AM (GMT -7)   
Hi BREA--I'm sorry you are in so much pain in so many different places. Do you see a headache specialist/neurologist who specializes in headaches? The one I see has been a good help to me and I know others have had good luck and I'm sure they will be along with some good opinions too...I haven't gone to the ER alot, I tend to call my specialist for stuff and he takes care of or will hospitalize if bad to treat. There is a great sheet on here that your doc can fill out to take to the ER for care, and I'm sure others will have some input. Take care and Happy Thanksgiving!
 
 

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 11/24/2006 2:44 AM (GMT -7)   

Hi Brea,

Welcome to Healing Well. I'm sorry you're having such a difficult time right now. Unfortunately there are many of us here who share your pain.

Like mommyto3 asked, have you been to see a headache specialist? a neurologist that specializes in migraines? These are the best people to help you.

If this is all knew to you, then you need to figure out what works and what doesn't, what triggers you and what helps you get over a migraine.

For example, I take an amerge at the start of a migraine, then 2 T3s, then 2 Ts, 2Toradols, 2 Gravol and an Ativan. That usually kills the migraine or at least knocks me out so I can sleep. I have cold packs for my brow and hot packs for the base of my spine - cranial sacro therapy. I have developed these plans with my doctor. I am on preventative medications in the day so I only deal with one or two migraines in a week.

I know what foods, weather and even odours trigger my headaches so I avoid those at all cost. Again in the event I do trigger one, I have my little plan.

I have never been to a hospital because of the horror stories I have heard. I am lucky my doctor is happy to prescribe all of the necessary drugs so that I can keep a headache at bay without visiting an ER.

I hope this helps and I hope you are able to find some relief.

Keep in touch. We're thinking of you.


Nicky
Co-moderator Migraine Forum
 
I'm working everyday to overcome the pain and depression that comes from my chronic resistant migraines.
 
 


BREA
New Member


Date Joined Nov 2006
Total Posts : 7
   Posted 11/24/2006 5:01 PM (GMT -7)   
I HAVE BEEN GOING TO A NEURO FOR 3YRS.  I DON'T KNOW IF HE'S ACTUALLY A HEADACHE SPECIALIST OR NOT.  I AM SEEING A NEW NEURO NEXT MONTH FOR A SECOND OPINION. MY NEURO RIGHT NOW LIKES TO PERSCRIBE MEDS, BUT THATS IT.  HE CHANGES IT UP SAYS TRY THIS. NOT WORKING DOC.  I ALSO TAKE A DAILY PREVENTATIVE, BUT TO NO AVAIL.  MY INSURANCE CO. WILL NOW ONLY PAY FOR 9 PILLS A MONTH, WHEN I'M USED TO 20. THAT SUCKS.  I TREAT EACH PILL LIKE THEY A BAR OF GOLD, AND USE THEM SPARINGLY.  I CAN'T TELL YOU HOW WONDERFUL IT FEELS TO HAVE PEOPLE YOU CAN TALK AND VENT TO.  THANKS LADIES
TALK TO YOU SOON
 
 

moonmoon
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/8/2010 1:12 AM (GMT -7)   
my daughter was helped a lot with cephpax. google it.

scooter903
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/27/2011 3:08 PM (GMT -7)   
Hi, I NEED HELP.....my wife has been helped a lot also by Cephpax, and they just recently stopped selling it....does anyone have an alternative choices comparable to that product....PLEASE HELP...
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