My seizures and migraines! Please read and respond!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jb2003002
New Member


Date Joined Dec 2006
Total Posts : 3
   Posted 12/2/2006 1:46 AM (GMT -7)   
Hello all I am jb2003002. I first want to say I am 21 almost 22 and have been diagonsed with a couple of things from my life. I'll start from the beginning so you can all understand and help me better. I was born in 1985 and had cerebral palsy even though I dont think much about it I can tell that it is there. I was also diagnosed with mild right hemiparesis. Which is a form of paralysis but less severve on my right side. With both of these I definately feel my right half of my body is weaker than my left side. Anyway, at the age of 3, I was diagnosed with seizures and migraine headaches. I dont want to want to say I have epilepsy since I have one or two seizures a year. However I have migraines. At least one a month or sometimes one a week! They are always strong too. I also have to say that seizures/ epilepsy runs in my family my grandmother has them, they skipped my fathers generation and hit me. My father got divorced and married again and I have a half sister the age of 3 and she as well as my grandmother are full blown epiletics. So even though I have them I am glad they are not that bad. Still I would love help in overcoming these. I have been to doctors and have taken medicine ranging from simple medicine from tyenol which is too weak for me to advil which is beeter. I also take daily medicine to help me out. They include Depakote and Keppra 2 pills morning and night. Imitrex for migraines as needed, Ketoprofen for visual auras (symptoms) as needed, and promethazine for nasuea as needed. I know of at least Dilatin I have also taken before but went to these other medications as they are stronger. I go to the doctor at least every 3 moths or yearly to get an MRI/ cat scan and to have an EEG. Which I am useed to but still dont like because of the strobe light! When I get my migraines I become light and sound sensitive. I have to get to a dark quiet room. I usually lay on my bed with my head tucked under my pillow, because usually when I get my migraines or when I know they are coming on I get my visual symptoms or my (visual auras). Which are spots of multicolor patterns that develops right in front of my eyes and make me dizzy and confused. They have been known to last a couple of seconds up to a half hour long or until I become unconsious and go into a seizure. I think I can link my seizures to stress, heat, extreme cold, lack of sleep and my mother thinks not eating could be a reason, but I always try to eat when I can or if im hungry. Otherwise its what im eating? eyes Of course I like chocolate, milk, eggs, cheese, sausage, pop, chips and dip, otherwise I eat anything, but im not a big fan of fish, beets, or diet drinks, I drink alcohol and smoke socially I guess only to fit in but I never does those things alone. I dont drink a lot cause of the taste! yuck! Sorry to everyone that likes to drink! Maybe I do these things once every 3-6 months. Honesty I dont mind my headaches and migraines or even my seizures. But the thing I hate the most are my visual auras my ( visual symptoms) that occur in front of my eyes that are multicolored and looks like a strobe light of flashing colors that dont go away for a couple minutes. So I was wondering if anyine can relate to me and if you have visual auras like I do and that make you dizzy and confused what do you do that I dont that helps you. Or anything in general to help me. Please dont try to say dont drink and smoke! I know these are bad for you. I just want to fit in. Plus I dont do it regularly i only do it occassionally when im near people. 1) because, if anything happens, Im near people that can recognize whats happening and call for help. I never do it alone. and I just want to be apart of a group that seems to have more interesting conversations than nonparticipating groups. So please dont try to tell me otherwise not to do it anymore. Since I dont do it often! So please respond with the visual aura part or in any any you can relate that you find something that can make your life easier with having seizures/ migraines/ headaches/ visual auras. Oh ya when I have a really bad seizure or migraine I go to sleep for hours to get over them. i have been know to take at least 3 days to fully recover. The 1st day when I first get my migraine / seizure. 2nd day to recover and the 3rd day to return to my regular daily schedule.
jb200302 cool

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 12/2/2006 2:13 AM (GMT -7)   
Hi jb2003002,

Welcome to Healing Well. Sorry you have all this to deal with. Before I talk about your migraine I would like to point out to you that there is a forum here for epilepsy as well and although as you say your fits are not a major problem you may find discussing what you do suffer helpful!

Also, when we post long posts like yours it is helpful to break them up into short paragraphs as it can give some a headache trying to read them!

It is a well known fact that chocolate, cheese and citrus (oranges, lemons etc) can induce migraine. Also anything that has aspartame and MSG (Monosodium Glutamate). Aspartame is found in a lot of foods as well as fizzy drinks and cordials. MSG is a hard one to find as the labels can often disguise what it is by say putting flavour enhancer, or E621. There are some other names which indicate MSG too like hydrolised vegetable protein and others!!

You will be amazed if you read the labels of such as crisps to find they are loaded with all sorts of rubbish!!! Of course this makes it very tough on us finding something to appettise! I would point out that not everyone is affected to the same extent by the same thing as we are all different. For instance, coffee can be a trigger for me as can caffeine. But another can find relief with caffeine!!!

Anything containing alcohol is a trigger for me too, so as you can imagine eating and drinking is quite a challenge for me lol!!!! The hardest time for food and drink for me is Christmas as it is hard to find a treat that I can eat - even mince pies have orange peel in them lol!!!!!

Jb have you ever discussed with your Neuro a link with your auras and epilepsy, I am just curious as the light can trigger an attack of migraine it can also trigger a seizure!! I do not experience aura but my son does, but thakfully has not had an attack for 2 years now.

Please keep in touch and let us know how you get on, take care

Ann

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 12/5/2006 12:55 PM (GMT -7)   
I have migraines and newly dx'ed with non-epileptic seziures. I wish I had more advice for you, but i am new to this right now. Just keep your spirits up. I was taking keppra at one time for migraine prevent, so that may help with both for you.
I'm sorry you struggle with this.
Best to you.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 11:20 AM (GMT -7)
There are a total of 2,905,798 posts in 318,891 threads.
View Active Threads


Who's Online
This forum has 158243 registered members. Please welcome our newest member, Pmw.
412 Guest(s), 13 Registered Member(s) are currently online.  Details
NicHostetler, George_, PeteZa, Girlie, Starlight*, magoo2, Samura, Lynnwood, PA_grandma, three 5's and a jack, Potter86, straydog, iPoop