Kind of a survey/get to know everyone/similarities

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Mandalynn210
Regular Member


Date Joined Dec 2006
Total Posts : 48
   Posted 12/7/2006 2:20 PM (GMT -7)   
Hello everyone! My name is Mandy and I am 20 years old. I've been suffering from chronic migraines for a little over 10 years now. I've come to the reality that I need to get on some kind of preventative as I have headaches almost daily and have a migraine at least 2 days out of the week. I was just wanting to hear some of the things going on with everyone and all their "wonderful" experiences with migraines. :-) I'm making up this little "survey" but if I leave anything out and you guys want to add anything, go right ahead!
 
Name: Mandy
Age: 20
State: KS
Status: In a relationship for 2 1/2 years (unmarried)
Children?: No
How Many?:
Names/Ages?:
Pets?: Yes
How Many?: One Cat and two Dogs
Names/Ages: Lexie (Black and White cat) 3 years, Oakley (3/4 Boxer 1/4 Lab) 6 months, and Lady (Full blood Boxer) 11 months
Occupation: Receptionist in Aircraft Business
School: Junior in College
Major: Graphic Design
Hobbies: Drawing, sculpting, cooking, photography, writing, dancing, HUGE animal lover, fishing, movies
 
Now the good stuff...
 
Diagnosis: Chronic Migraines
Age migraines started: 10
How often?: 2-4 times a week
One sided pain?: Yes
Which side?: Mainly Left
Affect any other part of body?: Neck, Behind eyes, jaw
Nausea?: Most of the time
Aura?: Maybe 2 out of 10 have them
Family history?: Yes
Who?: Grandma, Aunt (same side of family)
Known triggers?: Lack of sleep, Cigarette smoke, Too much alcohol, (maybe just a hangover) Weather changes, Cold/Sinus, skipping meals, some hormonal, too much caffeine
What makes them worse?: Light, sound, excercise, thinking too hard :)
How many days a month miss work/school?: 5 on average
Medications tried (Rx): Imitrex, Torradol injections, Depacon (sp?) Intraveinously
What medication(s) have worked for you?: Imitrex and Torradol
What other pain relief methods have you tried? (besides meds): Physical therapy, (neck excersises) Had wisdom teeth pulled, change birth control methods, change in diet, No alcohol, More sleep (not always a good thing for me!)
Have you had an MRI?: No
Do you have a brain tumor?: Not to my knowledge
What doctors have you seen?: Neurologist, several physicians, migraine specialists, physical therapists
Wanting to try: Botox, Topamax, Acupunture
 
 
 

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 12/7/2006 3:06 PM (GMT -7)   
Hi Mandalyn,
 
Welcome to HealingWell. Thank you for sharing all of this information about yourself. Your story sounds very familiar. I'm sure you will find you have a lot in common with others here.
 
My name is Nicky and I am one of the co-moderators of the migraine forum. Here is my information.
 
Age: 35
Country: Canada Province: BC
Status: Married 8 years
Children: No
Pets: Two Cats - Tora and Mitsu
Career: I'm currently on disability because of my migraines. I'm studying psychology and hope to be a psychologist one day.
Hobbies: Reading, writing, painting, meditating, watching TV, travelling
 
Now the good stuff...
 
Diagnosis: Chronic Daily Resistant Migraines
Age migraines started: childhood
How often: When it's bad - everyday, when it's good, 2 times a week
One sided pain: Yes
Which side: Alternates
Affect any other part of body: Behind eyes, forehead, neck
Nausea: Yes
Aura: More like visual acuity (i.e. narrowing vision)
Family history: Mother and sister
 
Known triggers: Lack of sleep, cigarette smoke, alcohol, weather changes (especially rain / clouds), cold/sinus, skipping meals, caffeine, food (chocolate, sulfites, any -ites, preservatives, chemicals, msg, soy sauce, crab, orange (citrus)), strong odours.
 
What makes them worse: Light, sound, excercise, thinking too hard, heat,
How many days a month miss work/school: everyday
 
Medications tried (Rx): Imitrex, Neurontin, Toradol, Tylenol 3s, Effexor, Morphine, Topamax, Amerge, Maxalt, Gravol, Melatonin, Magnesium, Calcium, Nadolol, Celexa, Ativan, Tylenol 1s, Excedrin, Aleve, Advil
What medication(s) work: Amerge, MS Contin, Nadolol, Topamax (slightly) Celexa, T3s in combination with Toradol, Gravol and Ativan - when Amerge doesn't work, Tylenol 1s
 
Alternative pain relief methods tried: Massage, botox, accupuncture, naturopath, change birth control methods, elimination diet, acupuncture, mouth guard
MRI, CAT Scan, PET Scan, other scans: CAT Scan with no abnormalities found
Wanting to try: Nothing, I'm out of things to try. Narcotics are working well for me.
 
 
 

Nicky
Co-moderator Migraine Forum
 
"In life you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with." -- Brian Tracy
 
 


mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 12/7/2006 4:26 PM (GMT -7)   

Hi,

  1. Age: 29
  2. Country: US
  3. Status: Married
  4. Children: 3
  5. Pets: 3 cats
  6. Career: Mommy
  7. Hobbies: whatever my kids need at this point, reading, and unfortunately my medical takes up alot of my time--not much left for other hobbies

Now the good stuff...

  1. complicated migraines, and cluster headaches
  2. Age Migraines Started: about 10 years ago; clusters 5 years ago
  3. How often: tough question for me, like Nicky I go in episodes. When it's bad, it is bad--I'm down.
  4. One sided pain: yes
  5. Which side: Majority on right, sometimes left. If left, it is going to be bad!!
  6. Nausea: No
  7. Aura: Yes (mine include muscle weakness, speech issues, stroke like symptoms); not all of them have this aura--have to be rehab'd for this when happens
  8. Family history: mom

Known Triggers: at this point I have no known triggers that I can figure out through headache journaling, hospitalization for migraines/clusters, psychological study during this hospital stay, etc.

What makes them worse: Migraines--light, motion, noise. Clusters are somewhat opposite-- I want to move, bang my head on the nearest thing, sitting still/laying down/closing eyes all that makes them alot worse.

How many days missed: don't work/no school, but have missed plenty of time with my little ones!!

Medications tried (RX): Vivactil, Topomax, Verapamil, Indocin, Imitrex injections, Midrin, Toradol, DHE intravenously, steriod bursts, Phenergan, Periactin (sp?), Methadone--very short term in hospital, Oxygen, Pamelor--I'm sure there is more, but forgot (this is more recent)

What medications work: Hmm, not sure yet. Still trying to figure it out! DHE breaks cycle. Methadone knocks it out, and me!! Currently on four as preventatives, we shall see. No longer using triptans.. Oxygen great abortive for clusters!!

Other Pain Relief: Physical Therapy for rehab and hopefully some pain relief

MRI scan awhile back, having MRI/MRA done again--we will see.

What doctors have you seen: neurologist; headache specialist; physical therapist

Wanting to try: ???

 


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 12/10/2006 6:59 AM (GMT -7)   

Hi mommyto3,

I admire you. I don't know how you manage to take care of children and deal with these headaches. It takes a strong person to be a mom and suffer from bad headaches.

My husband and I have decided not to have children, partially because I couldn't go 9 months without medication and because I don't think it would be fair because I'm out of commission so much.

 


Nicky
Co-moderator Migraine Forum
 
"In life you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with." -- Brian Tracy
 
 


mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 12/10/2006 7:12 PM (GMT -7)   

Hi Nicky,

Thank you for such a sweet and thoughtful comment! I think it says alot that you took the time to think about the future and your medical issues before having a family...My situation changed drastically after having my last child...

I've had migraines for a long time, but only maybe one a month. I would just take meds, crawl into bed, sleep it off and be done with it...During my last 2 pregnancies I had high blood pressure and lots of headaches during them, but they were chalked up to that!! Over the years, I had really bad headaches that always came in bizarre cycles that were horrible but, never lasted more than 5 or so weeks at a time (now know they are cluster headaches)...But, once I got past it, I just blocked it out until they returned, and now that I'm on meds and have oxygen--so far so good!!!

After my last baby, my body just kinda fell apart. The migraines hit with a vengeance about 7 months ago. Sometimes, I just wish I could find the trigger so I could avoid it...

It breaks my heart that my kids have to see me like this. I have learned when I am doing well to make the best of my day with my family, and hope that all the preventatives will finally be enough!

Kids are a tough decision when you have this condition...I'm glad I have my kids now I think they are what has kept me going on the days when I want to give up, but I do feel guilty that they are not getting everything they need...Anyways, thank you I really needed that today!!

 

 


noelygirl
Regular Member


Date Joined Aug 2006
Total Posts : 60
   Posted Yesterday 12:01 PM (GMT -7)   
Hello everyone! My name is Mandy and I am 20 years old. I've been suffering from chronic migraines for a little over 10 years now. I've come to the reality that I need to get on some kind of preventative as I have headaches almost daily and have a migraine at least 2 days out of the week. I was just wanting to hear some of the things going on with everyone and all their "wonderful" experiences with migraines. :-) I'm making up this little "survey" but if I leave anything out and you guys want to add anything, go right ahead!
 
Name: Shari
Age: 46
State: KS
Status: Married
Children?: Yes
How Many?: 2
Names/Ages?: Boys Jordan 15, Justin 11
Pets?: Yes
How Many?: One dog
Names/Ages: Noel 6
Occupation: Paralegal/office manager
School: N/A
Major: Biz
Hobbies: Reading 
Now the good stuff...
 
Diagnosis:  Migraines
Age migraines started: 28
How often?: 2-3 month
One sided pain?: Yes
Which side?: Mainly right
Affect any other part of body?: Neck back of head
Nausea?: Some
Aura?: Always
Family history?: Yes
Who?: Grandma, Aunt, mother (same side of family)
Known triggers?: Hormonal, over exertion, i.e. lifting or stretching overhead which gets neck out of whack
What makes them worse?: Sound having to think or stay at work;
How many days a month miss work/school?: maybe 1
Medications tried (Rx): Midrin, Advil
What medication(s) have worked for you?: None, but I can lessen effects if I take right when aura starts w/ 800 mg. Ibuprofen (Advil)l
What other pain relief methods have you tried? (besides meds): Massage, chiro., diet changes.
Have you had an MRI?: No
Do you have a brain tumor?: Not to my knowledge
What doctors have you seen?: Neurologist, gyno., chiropractor.
Wanting to try: Maybe Acupunture

Mandalynn210
Regular Member


Date Joined Dec 2006
Total Posts : 48
   Posted Yesterday 2:06 PM (GMT -7)   
Hi Shari... was curious, are you from Wichita?

kymark
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted Yesterday 2:49 PM (GMT -7)   
Mommyto3,

My mom (who also has 3 kids and is now in her 70s) has suffered from migraines since her first kid was born. You may be comforted to know that my sisters and I don't think of Mom's migraines as any big deal, any more than children of a parent with any kind of disability do -- they're just a fact of her life, like her tendency to sunburn and her chronically sore knee. Mom just had/has headache days when we made an effort to be quieter than normal and Dad did more of the daily routine. My kids think pretty much the same about me, I think. Kids are amazingly adaptable, as long as we don't take out our frustrations on them. Having said that, I certainly appreciate Nicky's perspective -- having kids has made my life richer, but has done nothing positive for my headaches!! And if my headaches were more debilitating than chronic, I would have reconsidered having kids.

On the down side, two of my mom's three kids now suffer from headaches (we both developed them as adults). While I know my mom feels (unjustifiably -- hey, it wasn't her idea to pass them along!) guilty about this, I appreciate the fact that my family fully understands chronic headaches. I've never felt any family members have ever been judgemental about my headaches, only fully supportive of me.

As a parent, I'm hoping that the rapid advances in headache medicine in the last decade or so mean that if my kids do inherit these stupid headaches from me, the treatment options will be considerably better for them than they've been for my mom and for me.

KYMark

mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted Yesterday 4:25 PM (GMT -7)   

Thank you KYMark for the encouragement and the input, it is much appreciated. You are right my family really is beginning to learn to adapt and I am very careful to make sure I never ever take my fustration out on them by raising my voice or ignoring their needs which could be easy to do...

I'm glad that you have such a great support system from your family, I'm sure that makes such a big difference when it comes to dealing with all of this...It's just a shame that so many of your family members have had to have this disease!

I agree with you on the treatment part, I am really hoping that rapid strides cont'inue to be made over the years and more and more continues to become available to our children and hopefully us to treat these darn things!

Take Care!


kanani
Regular Member


Date Joined Oct 2003
Total Posts : 36
   Posted Today 6:39 AM (GMT -7)   
Name: Tiercy
Age: 38
State: NC
Status: Married
Children?: Yes
How Many?: 1
Names/Ages?: daughter 18
Pets?: Yes
How Many?: One dog


Diagnosis: Complicated Migraines
Age migraines started: 34
How often?: 2-3 month
One sided pain?: Yes
Which side?: Mainly right
Affect any other part of body?: whole right side
Nausea?: always
Aura?: always-scotoma, blindness, dizziness, pins and needles on whole right side (so scary)
Family history?: none
Known triggers?: bright flashes of light
What makes them worse?: movement
How many days a month miss work/school?: at least 2
Medications tried (Rx): am currently taking topomax
What medication(s) have worked for you?: so far so good on the topomax
What other pain relief methods have you tried? (besides meds): relaxation/breathing techniques
Have you had an MRI?: yes
Do you have a brain tumor?: no, but I did have a hyperintense signal that they say was likely caused by a migraine, didn't know it caused damage to our brains! I had involuntary eye movement with a migraine last year that provoked the MRI to be done.
What doctors have you seen?: Neurologist, gyno., chiropractor.
Wanting to try: less stress!!!!
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