Posted 1/15/2007 8:55 PM (GMT -6)
Tried:
Topamax,Depakote,Lamictal, keppra, zonogram(sp?)Neurotin(sp?), Lyrica and other anti-seizure
Amitriptyline, Nortriptyline
Prozac, Lexapro, Effexor, Cymbalta
Verapamil, Propanalol
Imitrex, maxalt, zomig, amerg,.....
DHE NS and INJ

And too many others to remember. The best for me was Topamax, but it caused kidney stones, and cognitive changes
Now taking Lexapro and Klonopin, and ImitrexPRN, PhenerganPRN
Posted 1/16/2007 8:04 AM (GMT -6)
Kelly,

I agree with you that I would like to hear others experiences with meds. There is a category of medications out there prescribed for migraines (I believe it is a last resort) called MAOI and I don't know if all doctors use them, but I know the specialists I see do. However, I have heard there are alot of strict implications with them--dietary, medication interactions, etc. (you should wear a medical alert bracelet that you are on one)...

Again, I have no first hand experience with this medication at all and am wondering if anyone has ever used these medications for migraines or other types of headaches? Did you have any success with these medications?
Posted 1/16/2007 10:23 PM (GMT -6)
Thank you, everyone, for your input.

Mommyto3, I have not had anyone suggest the MAOI to me. I thought that these were some type of anti-depressants. ?
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Posted 1/17/2007 6:03 PM (GMT -6)
It is a type of anti-depressant, however they are using it for migraines/other types of headaches. I wish I knew more about them, but I really don't. It may be something to ask your doctor about, but I just don't know much.

There is an article/guide that a doctor has put out that talks about an MAOI (Nardil) being used for migraine prevention, however I am not sure if I am allowed to post the link on here...I have not seen this doctor (I have heard he is a very good doctor, but don't know first hand), but it goes through all different types of preventions, etc....I just thought it might give you a little more information on this preventative and others in general...

Let me know if I am allowed to post the link or tell you how to get there.
Posted 1/18/2007 9:45 PM (GMT -6)
Thank you. I went to the pain doc today and told her that I would likely be going off of insurance and have to use the county and was worried - do they give you Immitrex? She gave me some samples of FROVA - didn't even touch my migraine - took double the dose - nothing.
 
Yes, you are allowed to post the link.  :)


"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Posted 1/19/2007 8:26 AM (GMT -6)
Oh Kelly, I'm sorry--it sounds like you are going through a very hard time right now. My doctor keeps samples of Immitrex, but I don't know about the county. The makers of Immitrex--Glaxo Smith Kline (I believe it is), I can do more research have a program where they will help you out with the medications (they have several different ones available). Let me do some research and I will come back and post the links also to those, maybe you will qualify for that?

I haven't tried Frova, I can't use triptans anymore...

The website is www.headachedrugs.com, and go down to headache 2006-2007, click and open. This particluar medication is talked about on page 23, but there is tons of information throughout!

Take Care!
Posted 1/19/2007 8:42 AM (GMT -6)
Here is the information for Glaxo Smith Kline the makers of Imitrex and maybe some of your other meds (who knows)...They have several programs, I'm sorry I don't know how to post direct links..

http://us.gsk.com/health/prescriptionprogs.htm

It's worth a shot, maybe there is something there that can help. One of the programs will help you find the program that best suits your needs, its called PPA...Good Luck, I hope this helps some.
Posted 1/20/2007 5:36 PM (GMT -6)
Hi Mommyto3, I tried the url address but it said "page can't be found."

I appreciate the advice.
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Posted 1/20/2007 5:45 PM (GMT -6)
Hi, sorry I tried it first this time, here it is:

http://us.gsk.com/health/prescription_progs.htm

Computers, maybe someday I will figure it out! I still think you are going to have to type it in, even though it looks like you can click on it!

Post Edited (mommyto3) : 1/20/2007 3:48:52 PM (GMT-7)

Posted 1/20/2007 10:31 PM (GMT -6)
Thanks, I just bookmarked the page.
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Posted 1/23/2007 3:41 PM (GMT -6)
funny, I've never had to pay for my imitrex, even the injections. I just always ask for samples and they have them. I'm sorry for yours not having any.
Just interested in what else your pain doctor had to say...usually we go to pain doc b/c stuff like imitrex doesn't work
Posted 1/29/2007 2:55 PM (GMT -6)
Hey Gang,
 
Been there, done that with practically every "preventative" Migraine medication out there.  FYI - Imitrex and Frova are both "abortive medications", not preventatives.
 
Like I said, I've been through pretty much every preventative, in every catogory.  Nothing ever worked for me.  However, I am taking Cymbalta (90mg/day) for depression, but has the added bonus of helping chronic pain.  It has not, however, stopped my migraines.
 
As for preventatives, let me highlight a few experiences I've had.  I tried the blood pressure meds.  I have a naturally low blood pressure, so meds like amitryptaline, were awful.  Every time I moved quickly or stood up too fast...instant "room zooms".  I was light-headed very frequently, and actually started to enjoy it, but it was not good for me.
 
I took Depakote for about eight months.  It didn't help my migraines, but it did help me put on eightly pounds...bad news.  Even worse, it gave me wicked dry mouth, which no one warned me about, and totally rotted all my teeth.  I spent $4000 out of pocket, working with a dentist that turned out to be really lousy, then found a wonderful dentist who is redoing my whole mouth, which is now twice as bad, for a fraction of the cost.  He has had to redo everything the last dentist did.  AND, it made my migraines worse because the first dentist kept aggrevating my TMJ continuously for a year.  TMJ is one of my worst migraine triggers. 
 
I took Topamax for a while, but the side effects were stupendously bad, and which I've never fully recovered.  Between my PCP, a pain specialist, and my Neurologist, I ended up on 400mg per day.  I was practically comatose.  I lost most of my mental function, had no short term memory, couldn't form sentances, lost my train of thought in the middle of a sentance, couldn't remember dates, couldn't remember words or used the wrong ones, etc...I was basically a mental midget, and I still have not completely recovered all my mental faculties.  My short-term memory is still pretty fuzzy sometimes, and I quit the medication over two years ago. 
 
I've still not found an adequate preventative, but I'm scheduled to see a Migraine Specialist at the University of Virginia Medical Center in March.  I think in the meantime, I'm going to look into Migranol as an abortive, since I currently don't have anything to use.
 
Wish me luck.  Hope this helps someone.
Leigh Ann cool

"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett

Forum Information

Currently it is Monday, October 22, 2018 12:19 PM (GMT -6)
There are a total of 3,013,923 posts in 330,048 threads.
View Active Topics

Who's Online

This forum has 161957 registered members. Please welcome our newest member, rhye~.
205 Guest(s), 7 Registered Member(s) are currently online.  Details
older guy, JayMot , Froggy88 , Cardamon , compiler , vkj , ks1905