Posted 2/9/2007 3:13 AM (GMT -6)
Hi Everyone... just been reading about your daily issues with these terrible migraines, I have been suffering with these for many years now, only to find out recently ( last year) that the Doctors here where I live have missed a 9 mm Brain Anerusym for the last 3 years on all of my MRI's. They did however tell me about the 9 lesions I had and decided that it had to be Lupus, Lyme Disease or MS. They ran me through so many tests that I was ready to run everytime I seen a Doctor! but my headaches got worse and I couldn't hardly stand it anymore. Late one night a couple of years ago I found this web site, it was one of the best things I have ever done!! because of reaching out in one of the other rooms, I found out that the doctors that were running these tests couldn't keep me from getting my results from the hospital. ( they would never give me copies of any of my tests!) so after going to the hospital and sitting down going through them it was then that I found out I had a brain anerusym. I couldn't believe what I was reading. the radiologist failed to dx 3 years earlier but tryed to cover his tracks in later reports.
when my appt came up with my Neruo doc, I confronted him about my findings, all he could say was my test results were BS and that radiologis puts that on everyone report! well I wasn't sure what to believe then. he told me he would run 1 more test and if it showed a anerusym he would call me otherwise he would see me in a few months. I did the testing went and got the report from hospital myself and it stated no anerusyms! called family doctor and she sent me out of town thinking for sure that this other Doctor was going to tell me that I had MS He then told me that I had an inoperable brain anerusym that could take my life in 5 minutes or I could live the next 20 years... leaving his office in shock i told my husband I wonder how many people are walking around home or who have died because their tests reaults were BS!!! ( the lesions are now called mini strokes)
I'm sorry for the long story about about my life but I ready felt I needed to talk about it, the daily fear of every headache or striking pain or dizzy spell I have I'm scared to death that this is it. I use to work in supervision, worked 12+ hours some days and now I'm totally disabled from the mirgraines and the depression this has caused me. some days I can't even crawl out of bed. I have a family and trying to explain to my children that I might not be here when they get home from school has been the hardest thing I have ever done in my life.
again I'm sorry for the very long post. but I needed to talk about this and how unfair I was treated by these doctors! this was the closest room I could find that deals with the daily migraines and I'm sure the depression as well.
Thank You for taking the time to read and learn a bit about me.
keeping you in my thoughts and prayers..