Ticking time bomb in my head

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rrettak
New Member


Date Joined Aug 2006
Total Posts : 15
   Posted 2/9/2007 1:13 AM (GMT -7)   
Hi Everyone... just been reading about your daily issues with these terrible migraines, I have been suffering with these for many years now, only to find out recently ( last year) that the Doctors here where I live have missed a 9 mm Brain Anerusym for the last 3 years on all of my MRI's. They did however tell me about the 9 lesions I had and decided that it had to be Lupus, Lyme Disease or MS. They ran me through so many tests that I was ready to run everytime I seen a Doctor! but my headaches got worse and I couldn't hardly stand it anymore. Late one night a couple of years ago I found this web site, it was one of the best things I have ever done!! because of reaching out in one of the other rooms, I found out that the doctors that were running these tests couldn't keep me from getting my results from the hospital. ( they would never give me copies of any of my tests!) so after going to the hospital and sitting down going through them it was then that I found out I had a brain anerusym. I couldn't believe what I was reading. the radiologist failed to dx 3 years earlier but tryed to cover his tracks in later reports.
when my appt came up with my Neruo doc, I confronted him about my findings, all he could say was my test results were BS and that radiologis puts that on everyone report! well I wasn't sure what to believe then. he told me he would run 1 more test and if it showed a anerusym he would call me otherwise he would see me in a few months. I did the testing went and got the report from hospital myself and it stated no anerusyms! called family doctor and she sent me out of town thinking for sure that this other Doctor was going to tell me that I had MS He then told me that I had an inoperable brain anerusym that could take my life in 5 minutes or I could live the next 20 years... leaving his office in shock i told my husband I wonder how many people are walking around home or who have died because their tests reaults were BS!!!  ( the lesions are now called mini strokes)
I'm sorry for the long story about about my life but I ready felt I needed to talk about it, the daily fear of every headache or striking pain or dizzy spell I have I'm scared to death that this is it. I use to work in supervision, worked 12+ hours some days and now I'm totally disabled from the mirgraines and the depression this has caused me. some days I can't even crawl out of bed. I have a family and trying to explain to my children that I might not be here when they get home from school has been the hardest thing I have ever done in my life.
again I'm sorry for the very long post. but I needed to talk about this and how unfair I was treated by these doctors! this was the closest room I could find that deals with the daily migraines and I'm sure the depression as well.
Thank You for taking the time to read and learn a bit about me.
keeping you in my thoughts and prayers..
rrettak
    

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 2/12/2007 4:11 AM (GMT -7)   
Hi rretak,

Welcome to Healing Well. I am so sorry to hear about what you have been, and are going through. Please do not apologise about the long post, we are here for you to vent and somewhere for you to get support when you need it most!

I am sorry I have not answered your post before now but I have been away for a few days. This is an awful thing for you to have to face, but the good news is you do not have to face it alone. What treatments have you been given for your migraines? Is your Neuro keeping regular checks on you? Please post and keep in touch! I will keep you in my thoughts and prayers.

take care

Ann
Co-Moderator of the Migraine/Headache Forum


rrettak
New Member


Date Joined Aug 2006
Total Posts : 15
   Posted 2/13/2007 10:10 PM (GMT -7)   
Thanks Ann for replying to me...  I was having a bad night when I happen to open my big mouth and let it pour out...LOL I just needed to share what I had been through without being judged or blowed off... seems most of the friends i had before the dx aren't the friends i thought they were after!!! so every now and again it helps to talk about it, share it, who knows someone else may be going through the same thing and is afraid to open up about it...
I have tryed taking serval different things for the mirgraines but nothing really helps anymore. I do have to take Loratabs for my back, and I also take xanxa for the nerves but they really don't help anymore. I can't really take everything they want me to right now because we currently don't have any medical insurance. yeah to top everything off..my husband lost his job after several years. so things have been pretty crazy for us. the Neruo I see just wants to follow me with yearly MRI's, last one done everything was unchanged Thank Goodness...
we are currently under a Blizzard Warning here!! the wind gusts are at 40 mph and I think they said we already had 14 inches of snow with 4 to 5 more coming tonight!! we are just hoping that there isn't any loss of power.
If you can let me know when everyone gets to together for chat please let me know!
 
Thanks Again.
rrettak

Diane817
New Member


Date Joined Feb 2007
Total Posts : 14
   Posted 2/14/2007 11:58 AM (GMT -7)   

I am so sorry for what you have gone through and are still facing each day. Your story is so sad and I know you are scared. I wish I could help you. Just know that you are in my thoughts. Hang in there. I know you live each day as if it's your last because it very well could be but the same holds true for each of us and if you look at it that way you might just well out lives us. Try to be happy for each day that you are with your family. See this as an chance to say and see all the things you might not have otherwise. I need to take my own advice. Some days I wonder if I will make it through another day without ending it myself sometimes yet I know that is not the answer, that the answer is out there somewhere and I just have to keep looking. That is what keeps me going each day, that and the love of my wonderful husband and daughter. Take care

Diane


rrettak
New Member


Date Joined Aug 2006
Total Posts : 15
   Posted 3/7/2007 11:40 PM (GMT -7)   
Thanks for the replies... Sorry it's been a while since I have posted but going through some medical problems with my son.. they found that he has an enlarged spleen and they don't know why. so they are sending him to a childrens hospital thats about 2 hours from home. but his appt is set for a month away so I have to get on the phone and press the issue about him being seen sooner, this could get to a life threating issue if left untreated from what the doctors and nurses have said... so my nerves are about gone... Diane you said it correctly when you stated that today could be our last, I'm not so sure this anerusym is going to get me, I think my heart will first! Things have to get better soon, I know they will.
I seen my pcp today and some of my meds were changed so i'm hoping things will start getting better soon!
I'll try to keep you more upto date on things. and Thanks Again for listening and your thoughts and prayers!!!!
Lord knows I need them right now..
Thinking of you all, Take Care
rrettak
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