I am at a loss as I have been trying for such a long time to explain how overwhelming and all encompasing the pain that I have with a migraine is to my husband and family. I have never in my life experienced anyhting like this. It lterally assults all of my senses. Smells .lights , movement even the tinest repetitive sound feels like a freight train bearing down on me.
I can't think ,I get my words and thoughts mixed up.I become confused and literaly walk in circles trying to remember what I was doing. I can't seem to be able to "put it in a box" to try to contain it and just push through it. And then if I try to be quiet and try to wait it out my husband thinks I am just checking out of life and not keeping my priorities or responsibilites to him or our children.Some of my family even thinks it is wrong to have any pain medications in the house - they think it is a danger for the children even though it is kept up high in a cuboard. I am so frustrated with the pain and all that I am missing because of it . I am so sick of taking medications and going to the ER . I really hate even saying any of this.
How do you explain this to someone who has never experienced this ? Has anyone had sucess in this? Maybe a book or article to read. I don't know how to help them understand that this is not just "in my head" and that I have no real controll over it.