scared to start topamax, again

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AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 3/14/2007 7:48 PM (GMT -7)   
My headaches have gotton so out of controll, I am going to start taking topamax agian. I"m so scared. last time I have a lot of relief with the headaches, but I had kidney stones, and congnitive changes.
I just started a new job, and I don'ot want to have confusion, or miss work b/c of stones. what should I do? I just got it fill, but I'm afraid to start it.
any advice?
DX-Migraines:Poly Cystic Ovarian Syndrome:Kidney stones: IBS:Ulcers:Depression/Anxiety:Non-Epileptic Seizures:Buldging Disc:Joint pain (I'm only 22!!)
 
Surgeries- two jaw surgeries, appendectomy, numerous lap. surgeries, ovarian cyst removals
 
Meds: ProzAC 20mg, Klonopin 1mg BID , Ambien 10mg
(PRN- Imitrex INJ, Pherergan, Stadol NS, DiaStat,)
 
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


jphsr
Regular Member


Date Joined Mar 2007
Total Posts : 21
   Posted 3/14/2007 11:03 PM (GMT -7)   
hello ang ...is the does a moderate dosage or a higher one
? and if its a higher one can they start you lower to try a keep your dosages to the lower limits? to mabe try to prevent the stones?...i am a new commer here so just curious?...

kymark
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted 3/15/2007 6:28 AM (GMT -7)   
After a very painful bout of kidney stones triggered by topamax, I've been under the care of a urologist. He's got me on potassium citrate, but that was only prescribed after urinalysis to find out exactly what the topamax was doing to my kidney function. Apparently it does different things to different people, so don't assume my meds will work for you. If you can, I'd recommend seeing a urologist to get recommendations to prevent future stones. (You can get the same effect of the pottasium citrate by eating lots of bananas, but I'm not sure how many -- probably at least 3 or 4 per day -- at least it won't hurt!)

The other thing you can do on your own is drink huge quantities of water. Upwards of a gallon a day, if you can. The more you can keep your system flushed out, the less likely the stones are to form. My urologist thinks that, even more than the potassium citrate, is why I haven't had any repeat stone problems.

I don't know what say about the confusion. I'm getting less help from my current dosage of topamax and am thinking about talking to my doc about upping my dose, but also am wary of the cognitive problems. I've had a lot fewer side effects than many on this board, but I've really noticed some memory problems. But I guess that's a trade-off I'm willing to make if I can get some pain relief.

Best of luck,
Mark

somedayishere
New Member


Date Joined Jan 2007
Total Posts : 18
   Posted 3/18/2007 11:30 PM (GMT -7)   
Hi,
  I have taken topimax off and on for several years. I have not had kidney stones but  I have experienced significant weight loss and confusion and memory loss.
 
  It did not really help  my migraines as they kept increasing the dose to try to get it to work, but I was also on other meds at the same time. I can certaintly understand your reluctance to start it up again.
 
  Have you experienced good results from it in the past ? One thing my doctor sugested was to take the dose at night to try to minimize any confusion during the waking hours. Have you tried taking it only at bedtime? Hope this idea might help you.
 
Good Luck !
Melissa

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 3/19/2007 9:20 AM (GMT -7)   
Thanks for the replies. I did take it at night, had horrible dreams, and for example, I would lose my way home(i'm now making deliveries for a pharmacy) couldn't follow a recipe, would be angry and cry a lot, felt like I was going crazy.
I can deal with the stones, I think I'm most scared of the "going crazy" part, but then again, I"m going crazy with the migraines right now as well.
I just don't know which is better.
Thanks you all,
Ang
DX-Migraines:Poly Cystic Ovarian Syndrome:Kidney stones: IBS:Ulcers:Depression/Anxiety:Non-Epileptic Seizures:Buldging Disc:Joint pain (I'm only 22!!)
 
Surgeries- two jaw surgeries, appendectomy, numerous lap. surgeries, ovarian cyst removals
 
Meds: ProzAC 20mg, Klonopin 1mg BID , Ambien 10mg
(PRN- Imitrex INJ, Pherergan, Stadol NS, DiaStat,)
 
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.

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