Hi everyone. I'm new to this forum.
I've been diagnosed with cluster headaches/migraines. They started in September 2006, and are quite strong. I get them on a daily basis, and very few rescue drugs work on them -- the triptans either don't work or make them worse (imitrex made me scream), so the only one that's been effective so far is migranal. After trying out all other options for about 3 months with zero success, I was put on 75 mg of topamax. It was effective for about 2 months, and then my headaches came back, just as strong as before. My neurologist upped my dosage, first to 100mg, and now to 150mg. It seems to be kicking back in, though I'm of course forgetting words again, and I'm back to being tired.
I don't mind the side effects of the topamax -- they're 1000 times better than the migraines, since I have those every day otherwise and cannot function. But frankly, I'm freaked out. I know my doctors were hoping originally that the cycle of headaches would break with the topamax, and they didn't. These headaches aren't going anywhere. They're going to be a problem for me when I want to conceive, because I have to go off all medication. And honestly, I'm not convinced that the topamax is going to work for the long term... I have a feeling that I'm going to have to go in another direction.
I guess I just feel out of control with my health right now. I'm not able to have a social life because I'm in too much pain. I have my own business, but it really affects my work. It affects my relationship with my husband. I just don't feel like myself, and I hate that.
That's all. Just wanted to vent. If anyone has any advice to share, please feel free.