Welcome to Healing Well. Sorry you are suffering with this. Sadly I have heard of this sort of thing happening, but other than searching the net as you are doing I do not know what to suggest to you to find out any further information!!!
I am so sorry I cannot be of any more help than this!!! Please let me know if there is anything I can do? Please let us know how you get on!
Co-Moderator of the Migraine/Headache Forum