Topamax: I am up to 400mg daily, which is twice the recommended dosage for migraine preventative. I have occasional issues with memory and have a family history of kidney stones- so I have had them 3 times now. Unfortunately, I have had the discussion with my specialist that I would have to make a decision here to knowingly subject myself to a higher frequency of kidney stones than the frequency and severity of migraine pain. I have to say that Topamax is the only preventative that has made a significant difference and that is how I ended up on twice the dosage. My doc and I have discussed changing and trying an alternative when I get a bad episode (far less frequently than pre-topamax days), but I really can't imagine anything making this much of a difference.
Pain Medications: I have seen several doctors and the have all been very scared to prescribe narcotics. I get frustrated with the fact that if this was a broken leg that they could x-ray, or something tangible they would have no problem "seeing" the pain and believing it. But, since migraine is something that they can not see or touch it really doesn't seem to exist. If this were cancer, would they not treat it just because they were scared to prescribe necessary medication? I just don't think that anyone should suffer, and try to carry on daily activities all while trying to pretend to be "normal" and "ok" just because the ones that are licensed are overly cautious.
ok, well...that's my complaint of the day! Gotta be thankful for what I do have and not focus on what I don't.
Sara-Migraine/Headache Forum Moderator