Hi Almost 50,
Welcome to Healing Well. I am sorry to hear that you have suffered with Clusters for so long!! From what you are saying I take it you have been chronic until this one year break and not episodic??
Steroids are only meant to be used as a short term treatment for a pain break, not for long term treatment, did a Neurologist prescribe these for you? Have you got Oxygen?
It is unfortunate with Clusters that they will return no matter how long they go away for, it is to do with circadian rythms. Research is ongoing into this!
You need to get yourself to a Neurologist who is a Headache Specialist, as they are more educated about headache especially Clusterheadache!!!! It may be that you need a preventative treatment like Verapamil BP to help.
How many attacks per day/night to you have? Hang in there, please do not be afraid to ask any questions.
Co-Moderator of the Migraine/Headache Forum