trying to manage these prolonged auras

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mikelean
New Member


Date Joined Apr 2007
Total Posts : 10
   Posted 6/7/2007 12:55 PM (GMT -7)   
SO the never ending cycle of these silent migraines continues. I am trying to get a grip on what each part is . I know think I know when I am in full swing silent but deadly migraine. I pop my little pill .....take a nap and feel much better. But these prodromes that last for days are killing me. Fatigue dizzyness confusion,irritability and water retention and weight gain. I go up about 10-15 lbs......oh yeah just in time for bathing suit weather. Also heart palps and weakness. These symptoms dont go away with my imatrex so acording to what my DR daid this is not the migraine part. But what the heck am I suppose to do. This crap can last a good 3-4 days before I feel the symptom that means I can take a pill( mainly these symptoms exagerated and pain in my left arm and chest) Anyone got any advise. Thanks. ( if this is a little muddle curently I am in day two of confusion so read between the lines lol)
Mikelean

baseballmomof3
Regular Member


Date Joined Apr 2007
Total Posts : 189
   Posted 6/8/2007 9:19 AM (GMT -7)   
mikelean - my prodroma stage (I think thats what it is, anwyay) usually last 1-2 days.  I can usually tell by how exhausted I feel (for no reason), the heaviness feeling in my legs (just to go up one flight of stairs takes soooo much energy) and the irritabily (my kids love that one).  I have asked on this board before if that is what a prodroma stage or an aura is.  I don 't have an aura with flashing lights, etc. but do notice the above stuff before I have pain every time.  I think about 48 hours is as long as I have ever had this before the pain and then other times, I don't notice it at all before the pain.  Many of my migraines start in the middle of the night so I don't guess I any warning.  Most of the time, with those, I go to bed absolutely fine, and then wake up with a full blown migraine.
 
Would love to know if anyone else has the symptoms.
 
Thanks.
DX:  Migraines since June, 2006, kidney stones
 
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray


baseballmomof3
Regular Member


Date Joined Apr 2007
Total Posts : 189
   Posted 6/8/2007 9:21 AM (GMT -7)   
Also, can someone give me a definition of "silent migraines"?  I have never heard of these and would love to know what they are.
 
Thanks.
DX:  Migraines since June, 2006, kidney stones
 
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray


snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/8/2007 10:38 AM (GMT -7)   
Mikelean: Do you actually get pain at the end of your silent migrain? I know some do some don't? I am one that does not!

mikelean
New Member


Date Joined Apr 2007
Total Posts : 10
   Posted 6/8/2007 10:48 AM (GMT -7)   
Well from what I have been told is that a silent migraine consists of all the symptoms of a classic migraine sans pain.

I get the prodrome....tired ,irritable, crazy bowels, dizziness,vertigo,confusion water retention and weight gain. For me this last about 3-4 days but has lasted 1 week.Which then carries on to an Aura blind spots ,left side weakness,minor aphasia,hallucinations both visual and auditory, this usally last a few hours for me. Then when everyone else would get a head ache I get dizzy, faint,aphasia, can't write,stutter,left side weakness extreme and pain in my left arm. Heart papls,left side shakes,( looks like I have pakinsons)This lasts an hour o two then I sleep. I get the last stage of exhaustion for about 4 days progressively getting better each day then I am as good as new again! SO I am so thankfull I do not have pain but instead I guess my brain goes haywire.
I know I am in migraine stage when I see cats( a little black one always just off two the side) even floating in the air! lol and I can't talk. I have gotten so mixed up I couldn't tell which was the mens room or the womans....yeah needless to say I walked into the wrong one. i this stage I have also ruined a 30$ roast by putting it in the pantry....only to find it 4 days later ewwwwww mad confused Does anyone else have persistent confusion during any of the stages. I feel so lost most of the time

mikelean
New Member


Date Joined Apr 2007
Total Posts : 10
   Posted 6/8/2007 10:54 AM (GMT -7)   
you know snugglesrn sometimes through any of these stages I will get a headache right behind my left eyeball or sinus region but the imatrex has never taken that way so I guess I just happen to get a regular or maybe a tension headache as I am going through all the rest. Honestly I really don;'t know I am still trying to figure it all out .

snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/8/2007 11:09 AM (GMT -7)   
I have persistant stages of confusion. It is difficult but it gets better and it gets worse and it gets better and so on! Especially when you are trying to run a household and teach your kid. I totally understand what you mean. It is frustrating. The other day I was trying to write an e-mail to my sister in law and I sat at the computer for an half an a haur trying to get a word out of my mind. I tryed to type it and could not get it so I figured I try the best I can and use spell check I could not remember how to use spell check I pressed every button on my computer and crashed it. So much for that e-mail! I ended up calling her instead. I am glad my husband understands. I feel so stupid sometimes and I know I'm not! I feel like I am losing my mind.
My silent migraines are not to the extreme as yours are yet. I do see them getting worse as time goes on though. The vertigo and the visual aruras which were minor at first just spots lasting about 5 minutes to now taking over almost all my vision for about 20 to 30 minutes to the confusion lasting for hours. I stutter trying to get my words out. I sit and cry not because I am pain but because I feel like a blunder idiot who can't communicate. The next couple of day I feel like there are weights on me because it takes effort for me just to lift my arms or to move. You are not alone. I am hoping things get better myself. I have found the florence lights are one trigger and I am trying to stay away from them. Have you found any triggers? Are you on any preventive medication?

snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/11/2007 5:42 AM (GMT -7)   
mikelean: I was just wandering how you been feeling lately? I haven't heard from you in a little while! Keep in touch!
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