So many questions? So few answers.

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phleba23
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/14/2007 12:07 AM (GMT -7)   
I have weird episodes and have had them for almost 10 years, but they suddenly got incredible worst. I was diagnosed with Migraines after everything else was rules out, but I can't find other people with the same symptoms or anything similar. Can anyone help me?
Almost every migraine is a little different, some are just a little nausea, some are stroke like, weakness in the right side and slurred speech, others are like seizures with convulsions and loss of consciousness and there are others where I get frozen in a sitting position, my brain is still aware but my body doesn't respond. But what makes my "Migraines" even weirder is that I don't have any headache until the next morning.
I am on Topamirate and this does help to make the Migraines happen less frequently. I have also worked on food triggers and I am aware that I have a weird noise and flashing light trigger. Does anyone have any other ideas? Anymore information would be appreciated

Post Edited (phleba23) : 6/14/2007 1:13:13 PM (GMT-6)


snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/14/2007 5:56 AM (GMT -7)   
Hi phleba23: I don't have the same as you but I do get the nausea and some stroke like symptoms, I also get severe vertigo with my silent migraines and flu like symptoms I get slurred speech and confusion and at times a hard time moving my right leg during certain migraines. I also get severe shakes in my hands . I have what they think (they are still working on it) silent migraines, classic migraines with and without auras, abdominal migraines, one having to do with an artery in my neck-it effect my face and neck when I have a migraine, Ocualar migraines and tension migraines. All in all-I am having a hard time keeping track of what is what and I am getting frustrated with the doctors and the medication. But I do have faith that things will get better.
The weird noises and flashing lights that you are experiencing are probably auras. The fact that you aren't getting a headach until the next morning isn't strange at all it is just that you have a longer warning period. Are you seeing a Neurologist? You said that you are on a preventative medication, Topamirate, are you on an Abortive medication?
I am hoping that you have a pain free day.

phleba23
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/14/2007 12:12 PM (GMT -7)   
Actaully the noises and flashing lights I referred to are triggers not Auras, For instance I can't go to bars or concerts, or even have my stereo blasting music really loud at home. and no I am not on an Aboritave medicene, I am under the care of a nerologist and I see him again in July, I was thinking of asking him if I would be able to use any since my understanding is your supposed to take them at the first sign of a headache and I don't really get a headache until after, especially since its really just a dull ache. Does anyone have idea? Will they prevent all the other sympotoms as well?

Post Edited (phleba23) : 6/14/2007 1:15:48 PM (GMT-6)


snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/14/2007 1:39 PM (GMT -7)   
I take my abortive medication when I get my aura, even though I don't get a migraine sometimes two or three day later or sometimes not at all. It helps lessen the blow of the severety of the migraine for me. I don't know if it would work the same for you. Honestly and I am no doc here but it sounds more like seizures than migraines. Did they do an EEG? Did they do more than one? Before they diagnosed me with silent migraines which is commonly misdiagnosed as a seizures disorder they often told me that it could be seizures even though my EEG came out normal.
I know you must feel so frustrated when you can't get answers that you are looking for. I hope that your neurologist helps you find that answers that you need and I hope that you feel better so very soon. I know I probably am not much help for answers but I can help with support and if you need someone to talk to.

phleba23
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/14/2007 11:00 PM (GMT -7)   
My neurologist unfortunetly isn't a whole lot of help, he agrees they sound a lot like seizures, in facts hes narrowed it down to either migraines or seizures, or both but isn't sure which and really isn't interested in finding out as long as they are quieted by meds. He has helped determine that I have strange sympotoms because the swelling is in a strange location in my brain, the back of my head. And an EEG was done but results were normal like all other tests. What I really should do is go to one of the big hospitals I work for and see one of our specialist and see if theres anything they can do instead of just seeing our small town specialists. And as far as help goes its just nice to know that there is someone else out there that has other symptoms other than a headache because all of my friends can only half understand. Thanks for listening.

baseballmomof3
Regular Member


Date Joined Apr 2007
Total Posts : 189
   Posted 6/15/2007 4:39 AM (GMT -7)   
Phleba:  I believe that I experience auras a day or two before my actual pain.  I have asked to see if anyone else has auras like mine but haven't heard from anyone yet that does.  Usually, the day before the actual head pain, I feel absolutely exhausted - to the point that I feel like each of my legs weighs about 500 pounds and it is hard to even walk around.  I try to take my abortive meds as soon as I start feeling this way (I actually only decided to treat this exhaustion as an aura a couple of weeks ago) so not sure if it will work.  I'll keep you posted.  Talk to your neurologist and see what he thinks about taking abortive meds when you start having "your symptoms".  Hope this helps.

DX:  Migraines since June, 2006, kidney stones
 
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray


snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/15/2007 4:47 AM (GMT -7)   
phleba23: I know you probably don't think I understand but I do. I myself is from a small town, people are ignorant in a small town. The first neurologist I saw back in March thought said that what I have is either seizures or silent migraines and left it at that. She dismissed the ER doctors and my family doctors findings of my enlarged third ventrical. So I dismissed her. I have an appointment today finally with another neurologist. Who from word of mouth from lots of people is one of the best neurologist is the area, which frankly isn't that big. I am determined to find out what is wrong with me. I don't want my daughter who is 4 to be stuck with the same thing when she is my age with no answers.
If you can't get any answers, keep trying maybe another neurologist will know something that the other one did not. I know it is frustrating but hang in there! If you ever need to vent just e-mail me at rsauerhoefer@verizon.net anytime.
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