I am new to this message board stuff but not new to lupus, vasculitis and migraines. However, I now may be facing lupus CNS or vasculitis CNS (undergoing testing now). I am just one big migraine - I think everything you described (YOU, being the first author) is everything I have been experiencing, so intensely that meds are no longer working.
The migraine is constant, and when it lets up, the vertigo takes over...just a vicious cycle.
Anyway, someone wrote about 'triggers'. It is my understanding, that with vasulitis CNS, there are no triggers, or if you consider vasculitis a trigger, it is not necessarily something that can be avoided or controlled.
I used to have occasional migraines - I knew the triggers. But once they increased to 2/wk, and now seem constant - I have no clue what the triggers are. The last 6 months, these things have been multiplying like rabbits!
Please, please, please could you share with me how you were diagnosed with both CNS lupus & vasculitis? And also your vertigo symptoms and how you are dealing with them?
For me, it is similar to a migraine in that there is lots of pressure in my head and like someone is pushing me over. The room doesn't spin, but I don't feel like I will stay 'up'. My vision becomes blurry and I feel disoriented, a little confused and can't focus mentally. Only once did I become VERY disoriented.
I would really appreciated your hearing from you!!