Follow-up appt not good

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holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/7/2007 5:39 AM (GMT -7)   
So I went to my follow-up with the anethesiologist with a few goals in mind: stronger pain medication, stronger muscle relaxer, MRI appointment, and a referral to a neurosureon. And I came out with only a stronger muscle relaxer, the Lidoderm Patch, and another follow-up appointment with him.
 
I don't know what it is with whiplash and the way it makes you forget everything. I let him know that I feel my pain has to do with a bulging disc or something of the sort. He agreed it could be bone on bone contact or something of the sort. I mentioned MRI and he basically said no, since mind came back normal. I argued that I have read that often times they do. He was adament about having another x-ray (even though they don't show the nerves and I have nerve pain....does this even make sense?).
 
After he prescribed me the meds, he explained many other pain doctors would do a discography on me, but he doesn't do them on the neck and feels it is too soon for me too have one. (7 1/2 months of pain is too soon?) He explained what I knew, the loss of my cervical curve can cause the muscle spasms in my shoulders....
 
Basically if the patch and muscle relaxers don't work (note he gave me nothing for my severe headaches) to go back in two weeks and he will give me trigger point injections and refer me for an X-ray.
 
I am not happy about this. I have tried too many drugs and too many injections and nothing has given me the slightest bit of relief. I understand Pain Doctors are supposed to help you manage the pain, but I have not been able to manage the pain, it has only gotten worse. I am ready to do something more invasive, and if that means surgery so be it.
 
I have decide to have my chiro refer me for an MRI. He is the one who referred me back in April. I think it is time for another. That is what my gut is telling me. Why is it am I worse off now than I was in the beginning? Something is not right!

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 8/13/2007 5:28 AM (GMT -7)   
Hi holmsla,

Sorry I have not responded before as I have been on holiday!! I am so sorry to hear that your pain Doc has been so dismissive. It may be that you will have to consider seeing a Headache Specialist as well as the Pain Doc in order to address your headaches effectively.

At the end of the day if the treatment they prescribe does not work, you need to go back and keep going back until they get their act together and find something that does!!!!

All the best with this, please let us know how you get on?

take care

Ann
Co-Moderator of the Migraine/Headache Forum


holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/24/2007 4:33 AM (GMT -7)   

I am still not doing so well. I ended up going to the ER last week and they gave me DHE in an IV which got rid of the headache until i got home, though it wasn't as severe.

This week I did have one day where it was like I had a great day, like I had my old self back, but other than that, it has been the same pain over and over. I had my appointment with a neurosurgeon yesterday. I went in there feeling really confident, like this is a doctor who knows what he is doing and he can find the answer. Boy was I wrong. Something went horribly wrong. He didn't ask too many questions, jsut basically what happened and I explained to him about the accident. He just looked at my X-rays which I had back on February 1, and the MRI from April. He found a tiny bone spur on C-5 that he said was there before the accident, and mild disc degeneration on C3-C5, none of which could be causing such pain. He didn't want to recommend surgery but he did want another set of X-rays of my neck in the position of me looking down since that seems to put me in the most pain, but he just wants that for documention as he would more than likely still not recommend surgery.

In a nutshell he told me to stop taking all medication, exercise, and forget the whole thing happened. He started talking about people who are hurt in an accident but you can't find whats wrong with them and something about litigation. It almost sounded like he was saying I was there for money, but then he said "I am not saying that is you and that you don't have a valid complaint, I am just saying I see no neurological problems with you." So I got two things out of the appointment, 1) the pain is in my head, and 2) I am there trying to get money for a settlement.

I left feeling pretty upset because I still have no answers. I am in pain and don't know why. I haven't gone back to the Pain Clinic because none of what he was doing helped. I am not sure what to do at this point. I could try a different doctor but what if I get the same scenario? Or I could see my Primary care doctor and get another MRI. I just don't know what to do. Then there is the problem if I am doing to much and inusrance doesn't want to pay because if they can't find anything wrong. Right now I bought a neck brace and I am doing what a physcial therapist friend of a friend told me to do, wear it for two weeks and rest, try and get better on my own.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 8/24/2007 1:44 PM (GMT -7)   
Wow holmesia, don't you just hate it when you get a bad doctor! First thing to do is find a good Pain Management Doctor in your area, then write those other two doctors that where horrible to you and says "Wow you were such a compassionate Doctor to me that I couldn't stand it and found another doctor, sorry your loss. Thank you for your time and considerations" That might help wake those bad and rude doctors up!! Would be nice right. So Sorry you had to go thru hell with these doctors.......Their not all like that hun, you have my prayers, please continue to keep us posted okay and I hope things will turn around for you and get better..........

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 8/24/2007 1:52 PM (GMT -7)   
So Sorry to hear this holmsla, that is a disgusting way to treat any patient!!!!!

Was this Neuro a Headache Specialist? If he was I am apalled, and if he wasn't, you need to see a good one!!!

I hope the neck brace helps and the rest and hope you can relax in some way - hang in there!

Hope you feel a bit better soon, take care

Ann
Co-Moderator of the Migraine/Headache Forum


holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/24/2007 3:17 PM (GMT -7)   
The neurosurgeon I saw was a spine specialist. He was so arragant. He kept telling me stories how when he was 13 he was in an accident and had a herniated disc but never got it fixed and he is fine. Or he went to 6 flags and his neck hurt for 7 1/2 months and they wanted to give him a cortisone shot but he refused and now he is fine. Good for him, but I am not fine......It was horrible. I am going to try the neck brace and see how that goes, then I will figure it out.
 
I don't know that I need to see a headache specialist though since I feel a lot of this is from the neck. The neck pain and problems is causing the headaches. I did see a neurologist who specialized in migraines in the beginning but he referred me to physical therapy and then the anethesiologist at the Pain clinic, both of which failed. I know I am bound to find something that works. But for this SOB to tell me it is in my head or that I am there for money is BS and hurtful.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 8/24/2007 6:04 PM (GMT -7)   
Awe Holmesia, yes he was a SOB to you hun! I really really do hope you can find some one a lot more compassionate...Not all doctors are that way, you have my prayers and I do hope you'll feel better soon too like Ann said...Sometimes those specialist are too stupid for their own good........Go to your primary care doctor and tell him what you've been thru and if there are any other specialist he could refer you out too....Just trying to help you hun...............

bob-o
Regular Member


Date Joined Mar 2007
Total Posts : 37
   Posted 8/28/2007 12:05 PM (GMT -7)   

Holmesla, if it were not for the Cymbalta that I take for my nerve problems that won't allow me to cry, I would be in tears right now after reading your posts!  I am so sorry you had to go through all that with your doctors!!!  I remember how I felt when the neurosurgeon talked to me as if I were either crazy or depressed.  I was bawling before I even got the car door shut!!

I agree with Chartreux - I would go to my primary care doctor and ask for help.  I can't remember from former posts if you've tried Cymbalta before.  If not, it might be worth a try.  I still want to get to the root my my problem and fix it, but until then I'm happy not to be in extreme pain.

Let us know how you're doing!

Nancy


holmesla
Regular Member


Date Joined Jan 2007
Total Posts : 196
   Posted 8/29/2007 4:35 AM (GMT -7)   

Bob-o,

I did try Cymbalta and it helped some, for a while, but no longer does. I think throughout this whole ordeal, my issues have changed. Or I feel I had different ailments going on so that part got better. Every now and then I get that nerve pain in my occipital nerve area, but not as much as before.

I have shed many tears, especially more recently, and with or without medication, I am not much of a crier. I have gone through a lot in the last 8 months but have not given up hope. These doctors tried what they could, with what they knew how. Then I decide to see a specialist and he tries to tell me its in my head. I just wish for 5 minutes he could step in my body and feel my pain. Then let him tell me it is in my head. I hear all these horror stories from other posters that their doctors turned them away and I felt bad for them, but at the same time it had not happened to me. Granted nothing has worked, but at least they are trying stuff. And then this happens.

I am not letting it get to me anymore. He was one idiotic doctor, but there are thousands of good doctors. I do have an appointment with my Primary Care Doctor today. I am going to request a real good neck brace and some anti inflammatory medications and hope that this will help me to heal. Its sort of sad to think that 8 months and $25k later I am going back to square 1, my primary care doctor.

But the painis worsening. It is mostly when I wake up when it starts. Based on the way my head is positioned when I sleep. This morning I was on my back looking to my right, maybe an inch. That small of a movement and I have severe pain.  There is definately something going on with my nerves.

Thanks for everything guys. Honestly, this forum and you guys have helped me to be strong and not give up. I appreciate that so much. It is good to be able to interact with people who truly understand and can relate.

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