My Story

I'm new to this forum and I wanted to tell you all my story. 

I started having right sided headaches that would spread to the base of my neck and into my face about a year ago.  These headaches were a daily occurance with varying degrees of pain.  I saw my physician and he thought that they were stress related..etc, etc and he thought it would be good to see a physical therapist. 

I didn't think that I needed to see anyone for them until one day I woke up and the right side of my face had gone completely numb...I cannot tell you how scary that was. Other symptoms were nausea, dizziness, tingling in my right hand, what felt like intracranial pressure changes and a crazy bad headache. It definitely drove me to do two things:  1.  call my doctor again because this was a drastic change   2.  call a physical therapist

I saw the physical therapist and she found a cervical rotation of my C1-C3 vertebrae.  I felt instant relief after my first visit with her and after that I have had minor headache but she said that would be normal until my neck became strong enough to support my head.

I have had a CT and it came back regular and I have also had a visit with a neurologist and he said I looked fine too.

I still have a persistent daily right sided headache but it's not nearly as bad and I'm also apparently supposed to have migraine.

I guess I wanted to join this forum in order to meet others with the same pain that I experience...it makes me feel less paranoid that they missed something in all the scans and tests.  I also wanted to ask if any of you have either seen a massage therapist or a physical therapist to alleve some of your headache...it certainly helped me.

I'm sorry that you have so many issues that cause you pain.  They can't determine the origin of my neck injury or migraine...it's really horrible but it's nice that there are people to talk to about it.  I think that I will have a follow up scan sometime in the near future.  I understand how you feel...neck injuries never seem to get better and they cause a lot of other issues that can be discouraging.

Hopefully the neurosurgeon will be helpfull

Hang in there!

Bob-o, I think I spoke to you before about the occipital neuralgia and you didn't think that was what I had because I didn't have any tingling or numbing. Maybe it wasn't you, I don't recall. I am still in pain as you can see.

I feel I have a few issues going on causing the pain but I can't help but wonder if I do have a bit of ON. I do still have pain in the occipital nerve area as well as from one temple across my forehead to the other temple. Sometimes even between the eyes. It is the worse tension type headache I have ever experienced. Gosh, even if I put my hair in a pony tail it hurts.  I can't imagine what else could cause my occipital nerve to hurt.

I am seeing a neuro surgeon in two weeks and I am hoping to get more answers. I feel I have a bulging disc or something on top of ON. then again, I am not a doctor.

I know that posture has a lot to do with my pain. Looking down causes pain. I have noticed in my sleep I sleep in the fetal position, with my head facing down. That is why I wake up in the worst pain. Scrapbooking causes such pain, because I am looking down, so I can no longer do the things I enjoy.

I totally hear you, I don't want to be on meds, I want to be fixed!  It is so good to have this site and be able to hear that you are not alone. I mean it sucks that we all have to suffer, but at least we have support. Our spouses are a good support, but do they truly understand what we are going though? Unless they have gone through it, I don't think anyone can possibly understand.