Bob-o, I think I spoke to you before about the occipital neuralgia and you didn't think that was what I had because I didn't have any tingling or numbing. Maybe it wasn't you, I don't recall. I am still in pain as you can see.
I feel I have a few issues going on causing the pain but I can't help but wonder if I do have a bit of ON. I do still have pain in the occipital nerve area as well as from one temple across my forehead to the other temple. Sometimes even between the eyes. It is the worse tension type headache I have ever experienced. Gosh, even if I put my hair in a pony tail it hurts. I can't imagine what else could cause my occipital nerve to hurt.
I am seeing a neuro surgeon in two weeks and I am hoping to get more answers. I feel I have a bulging disc or something on top of ON. then again, I am not a doctor.
I know that posture has a lot to do with my pain. Looking down causes pain. I have noticed in my sleep I sleep in the fetal position, with my head facing down. That is why I wake up in the worst pain. Scrapbooking causes such pain, because I am looking down, so I can no longer do the things I enjoy.
I totally hear you, I don't want to be on meds, I want to be fixed! It is so good to have this site and be able to hear that you are not alone. I mean it sucks that we all have to suffer, but at least we have support. Our spouses are a good support, but do they truly understand what we are going though? Unless they have gone through it, I don't think anyone can possibly understand.