Serious Rebound Headaches

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New Member

Date Joined Jun 2007
Total Posts : 6
   Posted 8/16/2007 11:02 AM (GMT -6)   
Hi everyone, lots of pain here. I stopped taking all pain medicine for my migraines/CDH/CM yesterday morning and am I paying for it...
Here's my background. I'm 26, diagnosed with migraines a year ago this month. I've tried so many things - triptans, nasal spray, pain killers, ergotamines... I'm finally on 150mg of Topamax. When I get migraines, I take Caffergot or Excedrin Migraine.
However, I've also been diagnosed with CDH by my former neuro (he has since moved his practive an hour away). My temp neuro diagnosed me with Continual Migraine (she said her specialty isn't migraines, so she pawned me off to another doc that I haven't seen yet). CDH or CM? No clue. Every headache feels like a mild-to-moderate migraine until a major migraine comes along - this is daily.
To make a long story short, I've been having either CDH/CM for months on end, and because of that, I've been taking Excedrin Migraine daily and Caffergot a couple/few times a week for the past 5-6 months. Seriously, I've been taking at least 2-4 Excedrin per day for at least 5+ months, along with the Caffergot a couple/few times per week.
I tried to explain to others that I wouldn't have to take so much if I wasn't in so much PAIN!!!!!!!! But now I'm almost positive I'm having rebound headaches. There are no headache clinics around me. I can't afford to take time off of work. I can't seem to find a neurologist who strictly works with headache patients. Anyone live in MA?
My symptoms seem like that of a migraine every day, so does this just sound like a rebound headache?
- head pain (of course)
- pain behind the eye(s)
- sensitivity to light and sound
- nausea
- dizziness
- confusion
Please, if anyone has ANY suggestions or advice, PLEASE let me know. I'm on Day 2 of not taking anything and I'm in so much pain, I can barely stand it, never mind see straight. I appreciate it, guys.
Much love and no pain,

Regular Member

Date Joined May 2007
Total Posts : 328
   Posted 8/16/2007 8:05 PM (GMT -6)   
You mention that you have a temporary neurologist. Ask what sort of abortive medications you can be prescribed. You didn't mention anti-inflammatory medications or neuroleptics. It sounds like you need to be taking SOMETHING, although you've reallllly got to not take as much as you used to.
DX: NDPH, Recovered CRPS
RX: Lamictal, Abilify, Verapamil, Provigil, Clonazepam, Rozerem, Emsam
PRN: Haloperidol, Zyprexa, Lodine, Thorazine, Zofran

Veteran Member

Date Joined Apr 2006
Total Posts : 932
   Posted 8/16/2007 8:33 PM (GMT -6)   
at least you recongnize that your having rebounds. I really feel like once you get your body free of these toxins (and it takes about 14 days to clear your system), that it will at least help. also, the topamax cause me to have GREAT confusion. you are going to go through a time of withdrawl as well, even though these are only OTC meds.
You should check into the Diamond Clinic.
Drink LOTS and LOTS of water, and you should let a neuro. know what you are doing. There are things like Decatron(a steriod), BP meds, etc that can help.
Look into some Herbs, like feverfew to help with pain, and there may be some to help with detox as well.
drink some gatoraid, or make sure you get potassium....
DX-Migraines:Poly Cystic Ovarian Syndrome:
I am WELL!! 
Meds: ProzAC 40mg, Klonopin 1mg BID , Ambien 10mg
PRN- Imitrex INJ, Pherergan, Actiq 600mcg(fentanyl suckers) for migraine breakthrough pain
 NO MORE MEDS!!!! Doing engergy medicine
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.

Regular Member

Date Joined May 2007
Total Posts : 328
   Posted 8/16/2007 11:32 PM (GMT -6)   
Make sure to consult a neurologist before starting any other remedies, even herbal ones. The closest headache clinic that I know of to you is in Stamford, so, not real close, but, depending on where you live in MA, it might be doable. Diamond is in Chicago and is a great option if you live around there. I think your best bet is to call the Stamford clinic (203-968-1799) and ask them for a recommendation for someone local to you.
DX: NDPH, Recovered CRPS
RX: Lamictal, Abilify, Verapamil, Provigil, Clonazepam, Rozerem, Emsam
PRN: Haloperidol, Zyprexa, Lodine, Thorazine, Zofran

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