Ashley, I really, really feel for you, because your condition sounds so much like mine, and I know how horrible I felt and how scared I was for the first 4 months, before I got any medication for it. I've read about people having the nerve block, and almost everything I've read says that it might help a little at first, but it doesn't last.
You mentioned in another post that you were going to a chiropractor - did that help at all? I'm considering that as my next step. During the 4 months when I was in so much pain, my husband kept wanting to massage my neck, but it hurt to touch any part of my head, so I wouldn't let him. I don't know if a chiropractor or massage therapist would have helped at the time. But later on, after my medication was helping so much, I had 2 sessions with a massage therapist, and that really helped a lot. Unfortunately, my insurance co. would rather pay for surgery when it gets so bad that there's no other choice, and they wouldn't pay for any more therapy!!! So now my husband massages my neck and head every day (for free!).
The Cymbalta that I've taken for 6 months took away every bit of the horrendous pain that I had - now some pain is there all the time, but it's usually not bad. But I want to find out the cause, fix it, and get off the medication. I'm sure the problem is the occipital nerves, but I don't know what the solution is.
Please keep writing - staying in touch with others through this is SO helpful. I think I would still be in unbearable pain if it were not for this board!!!
Praying for you, Nancy