Hello all, Im new to ths forum but not new to the pain

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New Member

Date Joined Sep 2007
Total Posts : 1
   Posted 9/19/2007 12:31 PM (GMT -6)   
I began having migraines at the age of 16 after a fall. They were never severe, they came and went and were easy to manange. I am now 32 and unforntunately over the past two years the migraines have taken over my life. I've had CTs and MRIs that have all come back normal, I guess that's good; sometimes I wish something would show up so they could fix it.
I have been on just about every migraine med there is without any success. I am now on 1800mg neurontin a day, ambien (I suffer from insomnia)and hydromorphone for pain. I've made several trips to the ER seeking relief, they give me 2 or 3 shots of morphine and send me home. I have seen 3 different neurologist in the last year and they all seemed just as puzzled as I am. They tell me I have refractory migraines, the kind that doesn't respond to meds, so I ask them what's next and they prescribe me something else to take. I understand that this is trial and error, but this is ridiculous. Has anyone heard of any typr of surgery that may fix or even lessen migraines? I'm at the point where I will try anything.

Any help gladly appreciated!!!!

Regular Member

Date Joined Apr 2007
Total Posts : 189
   Posted 9/19/2007 3:12 PM (GMT -6)   

hillside23 - You sound like an echo to my own situation.  I feel the exact same way - I just told a friend of mine this morning that I wish a brain tumor would show up on one of my scans just so that 1) everyone would believe my pain is real and 2) maybe there would be something to do to "fix it".  I have actually found a regimen of meds that work but then last week, my doctor's office informed me that I was taking too much of my meds and wouldn't refill them.  I ended up in the ER on Saturday because of this.  I finally talked to someone else in my doc's office yesterday and when she told him what had happened, he rewrote my scripts.  I am hoping that by having my meds, I can stay out of the ER.  It is so frustrating though.  My meds work (at least for now) but then everyone starts saying I am taking too many.  I guess IV narcotics are a better solution in the medical people's eyes - I don't know.  I do what the doctor says and then, it seems to be the wrong thing.  Whatever!

Hang in there.  Hopefully, you can find a doctor that will continue to try and help you.  I am beginning to wonder if having my neurologist send me to a pain clinic would be a good answer; however, I hear many stories of horror about some pain clinics.  I am not sure that I think they are in it to fix you or even to give you relief - I worry that they are so in it for the money and want to try every thing they can that costs big bucks and don't care if you are getting a decrease in pain.  Maybe someone else on here can chime in about migraine sufferers going to a pain clinic. 

Hope things get better for you.  Take care!

DX:  Migraines since June, 2006, kidney stones
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray

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