I'm over from the MS board and need to get a little direction. I feel a bit lost now and not sure what to believe is going on. I"m not dx'd with ms...in limbo..so many questions to many symptoms and although they all CAN point to ms, individually they can be unrelated and something entirely different. That said, i've had HORRIBLE eye pain in one eye for over a year now. It waxes and wanes in it's appearances, but when it's here it's absolutely unbearable. My neuro could not dx ms, so we're down to treating the symptoms seperately. He felt if i didn't have Optic Neuritis (a common ailment in ms) then i must be suffering from occular migraines. I began having this pain AFTER my initial ms type symptoms. Those symptoms were later assigned to basilar migraines...migraines with aura, but without pain. So ok, i have migraines and now i need help. I have no knowledge of what meds are good and what aren't. I now take maxalt when the eye pain starts. I started taking just one as needed like that, but now i take up to three per episode. I'd like very much NOT to have that pain start. I tried topamax and that didn't seem to help. I continued to get the pain. I also would like to take something that DOESN"T make acidic foods/drinks taste sour or salty as topamax does. Does anyone have any suggestions for me???
Also, can u tell me if this fits? When i get this pain i either get it in my eye or above or behind it. Hard to pinpoint. Also, my vision is really really blurry. There are times when i get that blurriness without any pain. Many times when this pain sets in i'm made sick. I will end up in bed vomitting and in total pain for a full day! This is taking a lot from my family. I really have to get this under control. Any input u guys could give me would be great! Thanks so much for u'r time.