Hi there. I'm new to this too. I have been having migraines for over a year - but I'm a little more complicated. I also have Lupus and degenerative disk disease. The migraines are a very common part of lupus, but my migraines have become daily in the past three months and I'm just desperate. Aside for the daily aches from the lupus and ddd, the migraines have completely taken me over the edge. My neurologist has tried adjusting my neurontin, topomax, nortriptyline and increased my prednisone to 15 mgs. daily, but that dose is unacceptable to my rheumatologist. I've tried imitrex (oral and injections), midrin, maxalt, and so many others I can't remember and none of them have worked at fighting the migraine once it starts. I take percocet when the migraine is an 8 or more, only because I know I can't take it too often. While my neuro is WONDERFUL and is trying her best to help, we just haven't been able to figure out why I keep getting them and how to keep them under control. I am 31 and have been "sick" for six years, I feel like my life is spinning out of control. I don't have the life I want because I'm constantly having to give in to these evil migraines. My daughter (who is 8) is suffering terribly with anxiety because she sees how much pain I am in from all my ailments and I have to work so hard to not let her see me suffer, but I know she sees through it. I work part time - though more recently, attend school part time, and spend every other moment I can caring for my family. I've tried to figure out what is different now that would be causing these daily migraines but I am at a loss. I know stress is a factor (duh!), but today, a day when I had nothing to do but spend the day with my daughter with nothing particular to do, I still ended up with a killer migraine.
I guess I'm not really looking for any advice at this point, unless anyone has any, of course. I just needed to vent to others who know my pain. Thanks for listening!