purplegdaisy- I'm so sorry that you are having such a rough time. I totally feel your pain, although my headaches have been pretty good (knock on wood) lately, I was getting them 3-4 times a week and/or lasting up to 26 days, and I know it's awful. The first thing I would do would be to find a neurologist that specializes in migraines or headaches, this is really important. The easiest way to find them is looking for headache clinics or centers in your area. A few of the websites for different headache problems have lists of headache specialists, but sometimes they are hard to find. It's very frustrating but you many have to wait a while to be seen because headache clinics are usually very busy. (I am currently on a 6 month waiting list)
As for pain control in the hospital, I don't know what to tell you. I've been there and I know the amount of pain your in, but the truth is most neurologist don't like narcotics. Not because they don't think they work or they think you'll get addicted, but because of the affects that narcotics can have on the actual headache. Most neurologist are very worried about
rebound headaches (sometimes I think more then they should be) and do not want to put you in more pain than you started with. I've been admitted to the hospital 6 times for headaches that have lasted longer then 20 days and have never been given pain medication besides two tylenol (They don't like to give me NSAIDs like toradol because I get chest pains... they think it's probably just because it upsets your stomach, but they like to play it safe anyways) I have recently been prescribed percocet on two occasions beacuse it's getting to the point that they are running out of things to try which is why I'm now trying a different headache clinic... besides that though the only time I've been given narcotics is in the Emergency Room so your not alone. For most neurologists narcotics are a last resort and unless they have extensive past history of your migraines and documented many many things that they have tried to prevent migraines with they usually don't give them.
One thing that I do that more relaxes me more then anything is take a bubble bath with lavendar scented everything... I have a basket that I only bring out during the headaches with lavendar bubble bath, lavendar body wash, lots of lavendar candles, and lavendar room and body spray. I turn the lights off and light the candles, if it's a really bad one I just sit there and try to focus on breathing normally or if it's not a totally bad one sometimes I will read. There are people who say that lavendar helps with there migraines, and that I don't know, but I do know that it is relaxing and it does help.
Good Luck and feel better! **Hugs**
Diagnosis-- Chronic Severe Migraine with daily headache usually caused by tension
Medications-- Daily: Topamax 100mg & Welbutrin 100mg
PRN: D.H.E. 45 Injection or Migranol, Phenergan, Ultram, Fioricet