Thank you so very much for your reply. Sure you can share our conversation; I'm all for sharing if it can help someone else. I'm glad I found someone that can relate to what I'm going through. I have read about the myofascial pain syndrome and I am certainly a fit for it . I will discuss with my Rheumy. I'm an insurance agent and I'm on the computer and reading documents all day. At least I should be. I'm down 80% of my productivity because I can't keep my glasses on. When I don't wear them, I'm straining my eyes. My eyes are extremely dry and they ache badly. The eye doctor said "you must wear your glasses"; but I am miserable when I wear them. It starts out as face pain and then spirals from there. It's only recently that I realized it was the pressure of the glasses. I will research the info you gave me and thank you so very much. I have pain meds on hand but I rather avoid the pain completely. On the weekends I have no headache, no face pain because I don't wear my glasses. I have my husband look at a menu if we go out to a restaurant; ugh, very frustrating. By yesterday I just broke down crying from the stress of it all. I think about down the road with my job, how will I continue to do it? I'm so glad I saw your post!
I wanted to get back to you sooner, but unfortunately got side-tracked w/change of primary dr, etc.
Without getting into the actual dx, I have to say I related to you emotionally & physically 99.9% (.1% = no husband - LOL)
I was angry & confused - what was going on with me? (Never felt it was life/death serious). I cried from stress & pain. I also lost my job of almost 10-yrs b/c of this (details below). So there was more crying.
It starts out as face pain and then spirals from there.
Down your shoulders, arms, etc - right? This is what I suffered then & continue to suffer, altho most of the time it's the Fibro.
- How r u being treated on the job?
- R u getting good emotional support from your husband?
- When did this start?
- Was their anything particular that happened? (As I mentioned, for me it was a change in my eye rx).
- How old were you & are you now? (You don't have to answer this publicly. My email address is listed so you can respond privately.)
I don't play dr with anyone, but in expressing my thoughts, I think it's Myofascial Pain Syndrome. So many similarities!
Re: your eye dr: "you must wear your glasses.
Plz consider another eye dr. Even tho he/she might not be able to help you, it doesn't sound like you're being "heard". An "I don't know" wld have been the appropriate comment! Is this dr deaf? Or stupid? You're in PAIN!
Re: Working on your computer (I'm a pc geek)
Have you reset the monitor for larger print? You can do this directly thru the Windows software. Maybe this can help you a little bit.
Keep me informed.
If it's Myofascial, I'll share whatever else that might be helpful to you. But for now, at least you found someone with the same symptoms.
Re: The co. that fired me - details:
Thru the yrs up until the time I stopped working & filed for SSDI, I worked on the computer & was able to do so even w/out my glasses. So I guess our visual rx is somewhat different. Yet, b/c I needed them for distance (had already given up driving), I was quite frustrated.
The job I was on when this all started was an ins co & I was assisting the dept acct & was able to keep up my work. Then a new dept mgr came in. I had already started with a pain dr for wkly tp treatments so he was aware that I had a medical problem.
Despite his having a secy, he decided to send me on an errand to another floor. Altho I explained my visual difficulty (not able to wear my glasses), physical unsteadiness & a medical note in my personal files of this, he insisted & I refused. He made my life a living hell until 1 day he "pushed" me out. Now mind you, this was 1 of the largest ins co in NY & this creep (stronger words used against him "off" forum postings), he got personnel to agree with pushing me out. I did seek legal help & was told to "tell them that I wanted to come back to work". How he manipulated personnel so well still baffles me!
The only way I wld be allowed back to work, was to do errands when asked, even tho it was not in my job description & he had a secy. And regardless of ADA regulations, no accommodations were offered.
This was such a trivial matter considering what I was able to do. However, eventually I was fired - after almost 10 yrs (early 80's - early 90's) & an excellent work history.
Not being a high-status-paying job, there was difficulty trying to attain an atty. Ultimately, I went to the EEOC & sued thru them.
If I recall correctly, the max you cld win was $10,000. The ins co 1st offered $7,000 which my atty declined immediately. Then I was presented with $8000 & I refused. My EEOC atty was a bit worried, but I stood firm. My winnings was $9000 (incl great respect from the atty for not giving in, & actually "learning" from me & this experience).
To this day, I regret not fighting for the full $10,000 b/c they admitted to using my disability against me, but I was so tired & the atty wanted me to take the $'s & bank/invest it for my protection. He also expressed concern to what the stress was doing to me & wanted me to try & move on (His concerns felt sincere & I believe he was).
Big deal - $9000! I did find job(s) afterwards, but cldn't manage to hang on to them, made mistakes! (I didn't know that Fibro was slowly kicking in & was causing cognitive difficulties which were the reasons for making errors).