Hello, all. My husband was diagnosed with MS about
5 years ago at the age of 27. He has R and R MS. He is on Betaseron. I would have to say he is doing very well. Additionally, his symptoms are similar to many I find on here. Besides the fatigue and sensitivity to heat, he has leg cramping in the evening, once he gets comfortable in bed. And, after he falls asleep, his leg twitches. Of course, it doesn't bother him, but it does disturb my sleep sometimes
This morning, he woke up to his left leg feeling markedly weak, so now we're monitoring that. For his legs, he is taking tinzanadine (sp?) and let me tell you, it ain't workin'. It was nice to read about the baclofen, and he's going to mention that to his neuro. at his next appt.
I recently read there *may* be a link between MS and mononucleosis. Interestingly enough, Herb had mono when he was a teenager. So, we're curious...did anyone else on the board have mono as a kid/young adult?
Anyway, nice to find this board and look forward to sharing information!
Gretchen and Herb
Diagnosed in 2002
Betaseron (every other day, subq)
Remeron and Effexor (to conteract the depressive effects of Betaseron)
Tinzanadine (hoping to switch to something more effective)
Uroxatrol (bladder issues)