Well I guess if someone is going to have a reaction to a drug, it will be me
This morning, when I was about
1/2 way through my infusion, I felt my face getting hot. I just thought I was having a hot flash
ten minutes later I experienced shortness of breath, tightness in chest, and pain in my upper back. I still did not mention anything to the nurse -- hoping it would just pass. Dumb!!!
She then came in when I was done with the infusion and noticed my breathing and asked if I was ok. When I told her was was going on she immediately got my neuro who listened to my heart (was ok), had them take vitals for the 5th time (they take them every 15 minutes during the infusion), and ordered bendadryl. My chest was also flushed by this point. Luckily I still had my iv line in. about 10 minutes later, I began to feel ok.
They then made me lay down for an hour and my neuro came in again before they would release me. He did not feel it was too severe of a reaction (and it was not compared to IPIR's from copaxone) and said I would now have to premedicate with benadryl prior to each infusion.
Hopefully, this "stuff" is working!
Diagnosed April 2007