mitoxantrone (novantrone)

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Regular Member

Date Joined Jan 2006
Total Posts : 34
   Posted 1/16/2008 8:44 AM (GMT -6)   
confused  hello all havent been on in a while seen neuro yesterday currently on rebif he wants to change my treatment to mitoxantrone  it is done by iv along with steroids he feels my ms is progressing quickly since my last relapse in june 07 and another in oct 07 has anyone had experience with this type of treatment im very scared as it does also have alot of side effects from heart failure to low white cell count and low platelet to hair loss he adv this treatment would be very benificial for me they will monitor my blood and heart regularly i would have this treatment every month  for three mos and then every 3 mos any input would be great .he wants me to start asap . thanks

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 1/16/2008 2:00 PM (GMT -6)   

Hey Lubylu

I'm sorry to hear u'r having continued problems with flares. Novantrone has been used by other members here, but i can't recall the specifics of their experiences. I'm sure they'll be along soon to give u some info. I've included a link to an article here on HealingWell that may be helpful to u. I do wonder why u'r doc is persuing new meds so soon tho. It seems u've been on betaseron for less than a year?? It is not uncommon at all to see flares inside a year of beginning meds, but most docs want to see u stick it out that first year to let the meds begin to get things under control. This new med would bring it's risks and i'd hate to see u take on those risks without first being totally certain that the betaseron isn't working. Maybe just something to consider? Take care friend and let us know how u are and what decision u make.

Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

Motown John
Regular Member

Date Joined Jun 2005
Total Posts : 475
   Posted 1/17/2008 8:52 AM (GMT -6)   
Thursday a.m.
Good morning
I finished 3 years of Novatrone treatments @ 4 years ago.
The Novatrone treatments for us MSer's is NOT full blown cancer chemo. 
(My adorable, cute wife was HOPING my hair would fall out...sorry sweetie)
Honestly, for me, it did not stop the progression of my MS.
But I so completely and fully trust my neuro, if he told me to have a sex change operation to help my condition, I'd kinda think about it....
I don't think my Robin would be on board with that one...
After treatments, justa little more fatigue for a day.
But heck, were used to that!!!  Gteat Luck.  John
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