Thank you. While it was more vague to me...or rather when the doctor asked me if it were spasticity it made me feel odd to answer that for him. As i have found that some doctors dont listen to you, some will take your word for what you name something and i dont want to mislead and heap on myself my own dx's lol.
I agree at this points its more clear. As dystonia is more of the finger spreads and toes (which can be spasticity too) but when in digits and joints only its not as clear. When the shortening happens it does become more clear. Such as when i put one legs under me on a great day but then have to use my own arms to straighen that leg, its been shortened so to speak and is painful and resists stretching out straight.
The last bout with it, i felt some muscles bruised (told this too i think?) and looked but no bruise. Last night i was aching in upper arm, no visable but between shoulder and elbow. Happened to reach up and rub and found a sqaure-ish type of hardness. So alot ive realized is under the skin well hidden. Thats why alot of the aching ive not known in the past was muscles. i felt my other arm and it wasnt there. It did resolve itself.
I agree about
the PRN but at this point its really trying to see if this is going to be ongoing. Or if this will stay away once resolved from episode for awhile. I dont like the adverse potential side effects of stopping once resolved.
I do see the neuro today and will discuss with him how it feels and ask him what he thinks this is ( i think we know but i want him to tell me his opinion) so he will note what he feels on my chart.
I appreciate ms. uppity that you shared all you (not all but a large part) went through. I'm sure it was very scary at the time. For us its scary to think it is in our future but the inspiration part is that your still here! And on less meds than most of us! That gives us hope you know?
Sweety- thank you very much. I'm sorry youve dealt with this so often. I really didnt know when i had used to explain to my doctors my feet hurt that it was muscles. Theyd then send me to rheumys' thinking RA but it was always neg. As of yesterday it made it very plain that it was muscles in bottom of foot or on sides. It kept drawing my arches. So alot of what i was vague upon in beginning at least is making sense now.
I appreciate both of you sending links. I believe i will ask my neuro his advice about
PT and massage. I'm not certain about
the massage because of the many places in my spine that have problems. But , i will at least ask.
Does anyone know if he as a neuro would have the forms for the cooling vest? The msaa does and i had one to be signed by physician but seem to have misplaced it.
Thank you both immensely!
Every day brings us closer to what we reach for .........in all things.