Figured an update was in order. The MRI I had on Monday was clear, no ON, no changes. Yeah!!!!! Still don't know why I have had the pain behind my eye, and this weekend playing UNO with ltlbrat I was confused about the blue and green colored cards unless I had both side by side. Whatever. Don't get me wrong, I am glad its not ON, but it's one of those I know I have pain, and without "proof" I don't know if I am believed.
Another strange thing happening this week -- I am getting back the hives, swelling, joint pain, low grade fever that I started my journey with in 1988. I was put through the gambet(sp) of tests from blood, allergy, skin and anything else they could think of. Once everything was ruled out they said seronegative lupus(not in the blood), a doctor in 1991 changed it to fibro, and from my MRI's, changed to MS in 2006 and my current neuro feels it may have been MS all along. Noone change explain the hives, I just get scripts for two antihistamines and tagament. UGGGGGGGGH
Anybody else out there ever have chronic hives, they actually go to huge welts and my skin goes from pink to purple? Any thoughts.
Thanks for letting me get that out.
I don't think any of those things -- hives, swelling, joint pain, low grade fever have anything to do with MS! Presumably you told your doctor about undergoing all those tests in 1988, and they've been repeated since then? I don't want to get into a controversy here with another forum, but do you know if you were tested for Lyme disease? It wasn't all that common..or at least not commonly known about..in 1988..and untreated long-term Lyme disease could explain your symptoms now.
You say your current neuro feels it may have been MS all along. Does she still say that, given your recent "clear" MRI? And you might have been following the discussion here about migraines (Rhonda has them)...the pain behind your eye and distorted color vision could be a migraine (but that wouldn't explain your other symptoms..)
Have you had a spinal tap? Your symptoms suggest there might be an infection hanging around somewhere inside..and a spinal tap might demonstrate that.
I hope y ou get some answers soon.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....