Ok, i think most of us know about the spasticity issues id been having. That eopide has ended or slowed. Nevertheless, residual nighttime spasticity remains and some day time fatigue. For example i slept form 9 am (this is after becoming fully awake) until 3 that afternoon. Wow provigil surely didnt help that time.
Anyway the more questionable thing is, when im having these spastic attacks i cant walk. Sometimes its the turning of the ankle, the feet being dead asleep or the legs refusing to work. Now, im not saying that normal function doesnt come back, only that im finding there are times when its just not safe. Such as when its time to get my little son off to school and my legs aren't cooperating. Or getting my husband up for work.
I know i dont need a wheelchair, but when would a person know it would be a good time to get a small walker with seat attatched? A cane doesnt seem it would be worth it as its always in both legs at same time.
I cant believe how little movement i had during this past attack, but dont wish to rely on anything too soon.
Ive read that a primary goal is to PREVENT FALLS, ,if thats true, should i mention this to my neuro. I def. wouldnt need it 24.7 but during spastic attacks and for residual (mainly mornings).
You should indeed tell your doctor. And describe it to him just as you have here. Mobility AIDS are just that -- AIDS. There is no "rule" that, once you start using a cane, or walker, or even wheelchair, for that matter, that you have to ALWAYS use it..just when your situation warrants it.
How do you know? You tell your doctor, and then get referred to a physical (or sometimes occupational) therapist, who will evaluate your walking, and advise you (and your doctor) about what AIDS might be best for you.
People think, for example, "a cane is a cane is a cane. I'll just go to Walgreens and buy one of those off the shelf." NOT a good idea. Seeing a physical therapist can accomplish a lot: you'd know what is going on with your walking, which AID or TOOL would be most beneficial, you would be properly fitted for that AID (height, weight, strength of arms measured to decide which kind of cane or crutches or walker would be best). You'd learn how to navigate stairs, open doors (with a cane or crutches in hand), maneuver ramps, all that.
I went for a long time with what I called my "mobility closet". In there were canes (a couple of different kinds), forearm crutches, a walker, and a wheelchair. When I got up in the morning I'd do an "inventory": What was I going to do today, how was I feeling, how did I feel just getting across the bedroom and into the bathroom (weak legged, stiff, unsteady, whatever), and then I'd pull out of the closet what I thought I might need.
Some days it was nothing. Other days it was just a cane. Sometimes it was one forearm crutch, sometimes both. Sometimes it would be the cane, and the forearm crutches (which provide greater stability) would be tossed in the trunk "just in case". Sometimes it was crutches and the wheelchair would hit the trunk. And so on.
A general rule of thumb: If you start thinking that "maybe I need some assistance with my mobility"..you're probably LONG past due for a physical therapy appointment, and indeed GETTING that assistance. So call your doctor, talk with him, and see what might work best for you. (Insurance generally by the way will pay for these things, at least in part, if they are prescribed by your doctor, and not just "bought off the shelf".)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....