OMG Where do I start.. At the beginning I guess..
On June 3rd 2008, I was wisked away in a ambulance. I was recieving steroids for a flare, and was having severe difficulty breathing. I don't remember must of what im going to tell you, actually i dont remmber any of it. I was admitted to the hospital, and while i was in there i had to be intubated and flown by helicopter to a better hospital.
I was in the ICU for 7 days, 5 of them on a ventilator. Was very scary waking up there when the last thing you remmber is being at your house. It was concluded that I am in fact allergic to steroids.
OMG So now if I flare I must just go through the dang thing. I got out of the hospital weeks latter in a wheel chair and use of a walker. Between June 3rd and today I have had 5 Flares.
OMG I have had to use a seat in the shower and alter the house a bit. I will say today I am walking unassited except for a cane every now and again. I have now been put on Betaseron. I was allergic to Copaxone, my liver started failing on the rebif... now I am waiting to see what this beta will do to me.
I would have gotten on sooner to let you all know but I have had a life altering experience. I am no longer working.... And my docters have made me apply for disability... just went and saw there psych docter and now I wait. I really do miss talking with all of you. I know you all have questions now after reading this.
I am on Betaseron, Lyrica, Baclofen, Vicoprofen, Advil,
Hope to talk with u all soon
Life Can Be A Challenge....
Expect The Un-expected....
Live Everyday As If It Were Your Last.