What is going on??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 2/6/2008 1:14 PM (GMT -7)   
This morning I was walking and it was like walking in a fun house that had "tilted" floors. My knees don't buckle but I slam into walls on my left side.
I have never experienced this before. It freaks me out. It had happened 4 times today.
Someone please respond
I'm on Tysabri and Nov. MRI of Brain came be clear. However i have sensations in my legs which my neuro said that its not completely cleared in my spinal cord.
Balance center is in the brain.

I don't think that it's muscular in anyway

Please respond with your opinions

Dana

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/6/2008 1:57 PM (GMT -7)   
I'm sorry you're having such difficulties. Sounds to me like what happened to me...loss of sense of balance, leaning in to walls or falling against them all the time.  Definitely was an MS thing. I suspect there's a lesion somewhere in your brain, or perhaps even in your spinal chord (they're sometimes there when they're not in your brain) that is causing the problem.  Since it's new to you, you should definitely be calling your doctor.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 2/6/2008 2:00 PM (GMT -7)   
I also should have told you that I'm on Neurontin. It calms down the nerves that mismaps sensation etc. Its an neuro-inhibitor

Do you think that could be the cause?

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/6/2008 2:00 PM (GMT -7)   
Hey Dana

Oddly enuf i've had this too...but thought it was related to my eye pain. It seems to happen when i'm having probs there. I don't really bump into things as much as it seems the floor is too high...like when u'r wearing a new prescription of glasses or even the wrong glasses. I don't have ms, so i can't say what it is. I was recently dx'd with ON, so maybe somethng related to that. Have u ever had any eye probs...esp related to u'r ms?? At the least i'd write it down to ask about at u'r next appt; at the most...and prob what i'd do!...i'd go ahead and call the neuro to see if they want to go ahead and see u. Best wishes friend. Take good care and get this seen to soon.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 2/6/2008 2:03 PM (GMT -7)   
Oddly enough my initial dx was ON and i was (last night and right now experiencing weird eye stuff. like they aren't tracking right.
my poor husband is worried and scared
i try to reasure him but when he sees me like this....kind of hard too.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/6/2008 2:14 PM (GMT -7)   
Hey Dana

I know it's hard on u'r husband...try not to fret too much over him tho. Explain to him what's going on...in factual and clear terms as u understand and not to sound alarming....and then u have to take care of u. Get that doc on the phone and see what they want to do. This may be related to u'r ON and u may need some medication for it. Take good care friend!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 2/6/2008 3:47 PM (GMT -7)   

Hi Dana,

 

It really does sound like you need to notify your doc about what’s going on, if for no other reason than to have this noted in your records. Since you’ve also started having vision probs again and Rhonda relates this to her ON, maybe the two are connected for you as well.

 

When I first got sick, along with my vertigo I had many episodes of really dramatic downward tilting and tipping to the left, as well as probs with figuring out where the left side of my head was (banged the phone into my face trying to answer it, etc). I also ran into walls on that side. I don’t have an MS dx, but these symptoms have been attributed to a lesion in my cerebellum (part of the brain that deals with balance, among other things). I haven’t a clue if this is similar to what you are dealing with, but thought I’d share it just in case.

 

Hang in there…if what you are experiencing is anything like what happened to me, I know it is quite an unsettling sensation. Please do call your doc, and let us know how you make out.

 

Sunny


GretHerb
New Member


Date Joined Jan 2008
Total Posts : 7
   Posted 2/6/2008 4:10 PM (GMT -7)   

Dana, Herb just experienced something similar. One morning, he woke up, and his left leg felt like a dead weight and he couldn't balance. Did your legs feel weird at all? We bought him this really kickin' cane, though, so at least he's very stylish when and if this occurs again.

After about a week and a half, his left leg started getting stronger again. Shortly thereafter, he started IV fusions of steroids and now he is back to normal. His MRI did show a bit of new activity, and he was just given the green light for Tysabri today!

This is his first relapse in about 5-6 years.


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 2/11/2008 9:01 PM (GMT -7)   
GretHerb- great new about the Tysabri OK.
its so nice to not have to think about injections on a daily basis. I was relapsed for 2 yrs and finally they put me on tysabri if i didn't they said within a year i would be wheelchair bound.. my MRI was christmas tree like all white lights and glimmery LOL. It takes a while for it to work but within 3 months i got a neg. brain scan. They think its still active in my spinal cord...but hey i'll take it. I've been on it for 6 treatments so it's not been that long.
I am very exited for you and your Herb.

my balance improved and since i'm like my Dad i didn't call in but i will be sure that i tell him in two week when i see him.

I'm fairly certain that it was Neurontin's fault.
it was so weird.
like a fun house vortex thing...

THanks for your support!!!!!!
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, November 23, 2017 12:07 AM (GMT -7)
There are a total of 2,897,057 posts in 317,963 threads.
View Active Threads


Who's Online
This forum has 157544 registered members. Please welcome our newest member, nancydaviko.
267 Guest(s), 2 Registered Member(s) are currently online.  Details
Dahlias, JoshDun


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.