I am only on my 2nd Tysabri infusion, but so far so good! I was also taking Betaseron before I started, and I must say just stopping that made me feel WAY better! It was very draining to me. I wish your husband great success with Tysabri, I've heard nothing but good things from the nurses and other patients I've met at the clinic.
If you have any questions I'll do my best to answer...
Hey guys, thank you for responding. So far, we've not been given any protocol info. about pre-treating with benadryl and Tylenol, though I have read on the board how you guys have done that to eliminate or reduce side-effects. But, we are in the "pre-certification" stage with the insurance company and all that good stuff. I'm sure more information will come to us as we get closer to the infusion time.
My husband is thrilled to hear that, just laying off the Betaseron makes you feel way better!!!! He's hoping that "cloudy haze" will go away (and the ordeal of trying to find a spot on his body that hasn't toughened up from all the shots!).
Right now his biggest concern is scheduling the infusions so that they interfere as little with his job duties, which I think won't be a problem. I'm going to call today and find out how late they do the IVs.
Oh, and, on average, how long would you say the side-effects last? I imagine it varies from person to person, but that would be good to know an approximate average.
Thank you for the well wishes...best of luck to all the other Tysabri folks and we'll keep you posted on the progress here in the extremely wintery Midwest!
I am so glad that Herb's leg is better. That is wonderful. Tell him good luck with the Tysabri and that we are all pulling for him. I like what I hear about tysabri. I am on copaxone and so far it is working for me. I am going to stick with it. If for some reason the copaxone stopped working for me, I would definitely consider Tysabri.
I am glad to hear from you and very glad that Herb is better.
Love and prayers,