Ok ms. uppity i have you cornered now (kidding), Im still wondering why im on copaxone. When i asked the doctors at the clinic they said we use it all the time! The trouble im having in understanding it is that they also say im r and r ms. Which when i read articles suggest that interfuron's are stronger? For lack of a better word?
I thought and have read that copaxone was for ppms and sec ms?...i didnt know it was for r and r , or are they bluffing me? lol
I guess im feeling bad for mamana and want some of that flu (giddy mood tonight). Seriously though, since my attacks seem to be so frequent should i bother asking my neuro or just keep with the copaxone. Its not broke its just not working? Or at least i cant tell any difference.
I did get the 4" bed topper (memory foam) and will try that out tonight.
Put down that keyboard and step away from the corner!! We Cats get CRANKY when cornered!!! :)
Copaxone is a very good drug, and indeed is used for people labeled relapsing-remitting. And ALSO for people with secondary-progressive (as are some of the interferons..maybe all, but I know that Betaseron is). I didn't know that it was being used for primary-progressive..I don't think any of the interferons are...but I don't know for sure.
Copaxone is the "newest kid on the block" and is different from Avonex, Betaseron and Rebif in that Copaxone is NOT an interferon. The first three seem to differ from each other only in the means of "distribution" in the body...once a week, every other day, or (I think) daily...(I think Rebif is a daily injection, but don't hold me to that.)
My personal opinion --and it's only that, a personal opinion, based on the reading I'm doing -- is that of the interferons, Betaseron is stronger. Maybe that's what you'd heard about Betaseron. But note: of the interferons, not of all the drugs in general.
When Copaxone came along, lots of people switched to it because they didn't want to continue dealing with the side effects. Lots of doctors prescribed it for their newly-diagnosed patients as being "better" because of the fewer side effects. And some doctors believe it is the better option too, in large part because of the side effects.
I think doctors often prescribe any of these drugs not so much because one is "better" than another, but more often because the doctor is "used to" one over the other, and/or has more patients on one than another, so more often prescribes it.
Are you certain that you're "having more attacks"? You do understand that many symptoms don't go away entirely...that some stuff like numbness, tingling, strange sensory stuff, difficulty walking, lots of things...don't "disappear" when the MS goes into remission? That a new "attack" (or exacerbation) is characterized by clearly defined NEW symptoms, or severe increase of "old" symptoms, that lasts from days to weeks? A lot of the residual stuff will always be with you, and might seem to flare up from time to time, sometimes during the course of the day..
like my burning and tingling feet seem more "pronounced" at the end of the day, and I'm much less able to transfer (my legs are significantly weaker) at night...but that doesn't "count" as an attack.
If indeed you ARE experiencing more attacks, you really do want to talk with your doctor. Not all the drugs work the same for everyone, and you might do better on one of the interferons.
But first you might want to get through the sleep study and see what comes of that, before adding on or switching meds.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....