After id made my last post yesterday.
My gp called back and said she'd see me to talk all of this over today (dont think i can cuz snow and i do NOT wish to tell her just how bad it is in front of my little boy), not to mention the roads and already possible danger of driving.
Neuro would like to discuss it monday. Hopefully i can get one of them to adjust their date to Fri , when hubby is off work.
Anyway my pain got up to about
a 9, i mean i just balled (sort of) in a reclciner and held on...naseau, that ON in the left eye.....intense spinal type pain, skin burning to where i couldnt distinguish temp in house and they said it was cold...i had to go outside for a second...came back in and just thought i cant hold on...and then.........relief.....like a slow lift up of symtpoms. I cant say what even lifted first...but i have seen other times like that where it will peak really hard or first half of day will be tons better than latter half or vice versa as in last night.
Oh....before the relief i did take the oxy. (the instant relief for breakthrough) which is lower dose. I really wanted to go without it but i felt desperate and couldnt keeep the way i was (was thinking ambulance, as i hate to drain hubby)..and then the relief came. But sometimes it does seem to lessen or swing in degree of pain that only it commands....some mornings feeling like the day will have alot of symptoms but yanno you can function..then it whams you.
I read all the posts to my hubby (ive never done that)..it was like he had a new look to his face . I think i am very hesitant on pain meds because he also will refer to the fact that he wont take a drug and is not trusting a doctor and how he will just manage his. For a long time.......he'd complain with almost anything i had and it got where id be so worried he had this too, only to glance at him hopping outside and all over the yard (with no stress or pain no his face when i wasnt looking) that i finally asked. Are you really having "this" much pain or? He finally said, No kiera im not.
I never said i was (um), and so forth. I guess i felt if he could put up with his aches and moans, he has no dx that i should be able to my own. Also hearing him preach about
Id like to thank all here to who helped me. I did find my pain lowered to a 2 yesterday with neurontin but ended up all stressful when hubby came in and appt were trying to be made that i ended up just vomitting.......and then the bad hit.
Then when i could tolerate it i took the med for pain..well a very small percentage of it.
My little boy is intelligent. I try never to say other than what he will obviously see for himself. Such as if he see's my thumb buckle ill say isnt that odd how my thumb gives out...and ill see him playing with his lol. He sees the tears though, part of them are for him , he just doesnt know that. The other night hubby was asked by him to make an ice cream float and i was not feeling cognitively hooked to trust myself with the blades of the procesessor he uses but would have for sons sake. I told my son, honey mommy would make it for you. You can always ask me. He leaned over and whispered "mommy, i know daddy's back hurts and all, but he doesnt have a disease like you do ok?" <<like he was cluing me in lol. So precious....so i really do not want his little shoulders to carry too much and to be frank about
the pain with doctor today i know would put a huge amount of worry on him.
Dysesthia was kind of all over, like i put earlier to the point that i couldnt tell the temp of the room anymore, with On, nasuea , vomitting, aching sides and oops had a bladder infection also. Luckily i had some antibiotics and began those.
If Dysesthia as far as burning is the only symptom then i dont feel a need to medicate no matter how hot or burned i feel, but its when all the different symptoms gather themsleves at once that can take your breath. At that time in space you cannot seem to find relief. I'd put it on a painscale of about
9 with childbirth being the highest ive felt.
Keep in mind that spinal changes do suggest i have severe root nerve problems so my spine is a mess anyway so alot of pain im sure comes from all day of compensation and thats why it can peak so heavily at prime times even when i havent overdone it. With the bladder infection as a side note it can make things a bit swimmy for sure.
This morning i feel the burning in hands with numbness in left fingers and ache in right foot/ with burning also but....all over so far so good..this is how yesterday began. The numbness in fingers staying...not changing with movement and im typing with it so it left me that present i suppose. Alot of shoulder area pain and this is good!!! in comparison, very very good.
I hope all can be honest about
what they feel. I hesitated. After i did
open up and Ms. uppity shared and as she pointed out she doesn't dwell on those things nor speak of them if not needed, sometimes i think we do have to ask.
This is a support board also not complaner's site, but i found out by being honest with all here that i wasn't judged and wasn't minimized at all, and truly Ms .Uppity i know youve had your share. Your first attacks alone describe only a portion of my first esepade and some of my worst times. Yet i didnt get left the amount of disability when it was through.
Everyone experiences so many things that in my own opinion (this is important that you see its merely an opinion) that the neuralgia ive had in my face..felt mild . Oh i mean it hurt when it lightening bolted me ok? I dont mean to say it did not. But the brevity of it is the redeeming thing that helped.
Just your toes ms. uppity ...a constant feelng of them being drawn (dont remember your word) without visually seeing it would bother alot of people alot more than it does you)---you have ajusted well. Youve seen such times that the enternig into the side effects of interfurons was ok compared to what you had felt. Anything to ease it up. I am thankful it did happen in your lifetime! and mine!
I rambling here and trying to say two major things
1. please feel free to be honest about
what your going through as you can better be supported if we really know. I tried to hide too much and it was truthfully too much. I have changed my thinking on the basis of Needed Pain Medicine and it is Obvious.
2. I have alot of severe spinal things that some of you may or may not have. When my body is injected with cortsoids, the 3rd shot being the charm and some of that beng laid to the side, then the other symptoms were manageable and even though not pretty, i could find my place and space and what to do with each. I do think its time for injections as my spine says so. You may not experience the pain i have , as your root nerve may never be like mine ( i say this to encourage others that just because im chronic/severe pain) does not say that you will be. As far as the spine goes, it varies as is determined by a host of things.
thanks to all of you and Sweet, i hope your neuro does look at the hives. Even though I agree with Ms. Uppity that I do not think that is of the MS world. Ms people most certainly can have more than 1 thing going on!
You obviously do have a second issue and i hope and pray that you find relief from this very very soon. I cant imagine having them for as long as you've endured them. The neuro can at least help you to undertand what might be your best approach or know of someone they think is a good allergist for this.
Every day brings us closer to what we reach for .........in all things.