Vertigo was my first symptom as well. I have CIS (one “ms attack”). I woke up dizzy one morning. Over the following weeks it went through different stages. In addition to constant dizziness, I went through intense spinning, and then the world began tipping down to the left. The left side of my face and my left arm became involved in numerous daily attacks of uncontrolled movement, which coincided with intense dizzy head rush sensations (neuros called it ataxia).
Like Gretchen, I have a lesion on my cerebellum that nueros say is the cause of all of this. I have residual issues with balance, dizziness, and also the left side of my face and my left arm. When I get fatigued, my eyes often still feel like they briefly “jerk,” the world spins a bit, my left arm and the side of my face go “weird,” and then I will have a period of heightened vertigo.
I find moving increases my vertigo. When I had intense spins I didn’t know where I was in space, and at one point felt like I literally couldn’t move. The only time I’ve ever had moving help like you describe, was after a plan ride. I felt like the floor was moving, and walking along with it made it less noticeable. Is this what you are feeling? I hope you find some answers and relief soon! Vertigo is certainly a big drag.