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Nicaribbean
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/28/2008 6:54 AM (GMT -7)   
Hello all,
 
         I saw my doctor and told her about my symptoms from the past 5 years (double vision, partial vision loss, pain when moving eye, toe numbness everyday, nose numbness and tingling, vertigo and fatigue). I asked for an MRI to compare with the one I had 5 years ago. She said that she didn't feel the need to do one because the Neuro wrote in his report that he felt that it was migraine related. Ok, but that was 5 years ago! Don't get me wrong, I would love it to be Migraine instead of MS but I have a gut feeling that it's more than Migraine. She told me that MS usually consist of weakened muscles, almost stroke-like. I am a nurse and I asked her to send me to see the Neuro again and she said she would like to wait and see. She is a good doctor but I don't feel that I'm being taken seriouly. I am not a hypochondriac either! I see the doctor about 1 or 2 times a year, that's it! I just find that Migraine is over utilized. What do you think? Do you think that I should do the wait and see thing? Any comments?
 
                             Sincerely, Nicaribbean confused
Nicaribbean


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/28/2008 7:01 AM (GMT -7)   
You could always go for a second opinion, to a different doctor. Your symptoms aren't real severe sounding...have they changed much over the 5 years? MS generally (but not always) would have worsened over that time.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Nicaribbean
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/28/2008 7:19 AM (GMT -7)   

Hi Uppitycats,

     the partial vision loss lasted no more than a minute (never happened again). The double vision lasted about 3-4 months but hasn't happenned again since. The eye pain happened 2-3 times in 5 years and it lasts 5-7 days. The same toe goes numb everyday and it can stay that way for hours at a time. Sometimes I have shoes on and sometimes I don't. There doesn't seem to be a pattern. The top of my nose tingling and going numb happened once and lasted 5-6 days. I also had some tingling and numbness in my fingers, the same hand every time. I went through a period where my meaty part of my hand (under the tumb) felt as if it was swollen but no swelling apparent and it hurt just to touch it. My vertigo or balance problem has been with me for the past year. The fatigue has been worse for the last couple of years. I wake up feeling very tired, even after sleeping 9 hours per night. People are even commenting on how tired I look. I am just 37 years old, I shouldn't feel this way! I have a cousin that died of a brain tumor at 33 years old. We were born the same year. Anyways, that is my story!

 

                             Sincerely, Nicaribbean

 


Nicaribbean


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 2/28/2008 7:36 AM (GMT -7)   

Hey Nic,

I think a second opinion could be in order as well.  I am not a nurse.  I don't know about migraine as a catch all for things.  I do know ( from my diagnostic experience ) that it seems like we really don't know much.  The human body is amazingly complicated.  I was amazed at how easy it was to misdiagnose me with a "stroke".  I do feel real lucky to have had a quick re-diagnosis though. 

I do agree with Cats.  Your symptoms after five years seem pretty mild.  That is very good news.  It could still be MS or something else but it could just be those awful migraines as well.  I am very high functioning with my MS.  I still work full time.  I have only had this disease for a little over a year and a half but I have loads of residuals.  I have bowel and bladder issues.  I have eye tracking problems.  I have constant (and I mean constant 24/7 never goes away) vertigo. I have near total numbness in my feet that is also a constant.  I have some cognitive impairment with concentration and focus.  I have other patches of numbness that are also constant - my left thumb and a large patch on my torso that stretches from my belly button around to my back.  I have chronic spasticity in my left knee with deep numbness.  I also have mild drop foot in my left foot.  I have loads of things I have to do manage all this.  I take adderall for the concentration stuff.  I have to constantly watch for bladder infections.  I manage the bowel issues with incredible amounts of fiber/water and a really good diet.  I also excercise as much as a can and stretch those muscles.

I don't mean to discount your symptoms but this is what I have accumulated in a year and a half.  Most people I know have it worse than I do.  So wait and watch may not be such bad advice.  Just keep track of your symptoms and if anything else pops up then go right back at your doctor. 

Good luck and keep us posted.

Love and prayers,



Gretchen       co-moderator MS board       diagnosed with MS July 2006

Post Edited (Gretchen1) : 2/28/2008 7:40:57 AM (GMT-7)


Nicaribbean
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/28/2008 7:40 AM (GMT -7)   

 

         Thanks!        Nicaribbean              

       


Nicaribbean


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/28/2008 9:20 AM (GMT -7)   
Hey Nic

Well i have been where u are. I was told at my first visit that it could be (insert laundry list) blah blah blah. Among those things were MS, Migraines and Stroke. My doc pretty immediately discounted stroke...in fact almost as soon as he got the word out as a possibility. He did, however, zero in on ms and migraines. I was finally told i had migraines with 'stroke like' affects. I had no idea that was a possibility! Seems u can have a migraine with no pain...but all those funky symptoms like u and i (and many others here) are experiencing. I guess i'm saying there are just a plethora of migraine types that u could be looking at. I eventually went on to be told i had two seperate types of migraines...basilar and occular...my pain was situated only in my right eye (all my symptoms, coincidentally, were right sided as well). I have/have had all of the symptoms u have listed and many more. Mine come and go, but are mostly gone. I am not dx'd with ms...i DON"T have ms...but still those symptoms are here. I guess whatever it is that's going on with me can leave residual symptoms as well...and maybe that's what's happened in u'r case.

I'm not sure of how used or overused migraines are as a dx, but i really hope they aren't *really* a catch all! Either way, it couldn't hurt to see what the doc may suggest for that and for the treatment of the symptoms, if anything, and see if it helps. It'd be way better to have a prob with migraines than to have ms. If it's not migraines then u've been down that road and proven it's not. As the others have said, u'd be more likely to have shown more progression of some sort over five years than u have, so take comfort in that. Maybe get the second opinion and see what u learn there...but find a way to take inventory and work within the place u are now. Take good care friend and try to relax a bit and just keep on living. Those symptoms may or may not go away...u may need to just live with them. But the up side of that is that this may be the worst it gets!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


mountainboy1984
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/3/2008 4:34 PM (GMT -7)   
Sounds like a second opinion is in order. Your doctor should make you comfortable and if you want a second MRI, you should be entitled to get it! Try scoping out for a second doc who might listen a bit better
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