Hi 1mom and thanks!!,
Hmm.. where do I start? My history isn't very long, I was diagnosed just under 2 years at age 30 with multiple symptoms and lesions on my brain and spinal cord. MS runs in my family.
I was on Betaseron for about a year and a half, during which time I still had relapses about every 3-4 months. Maybe they were less severe than they would have been? Each relapse has left me with residual symptoms. My relapses usually start with a burning skin feeling, followed by numbness and severe fatigue, then loss of coordination or some weakness follows. I have been fortunate in that I have not had a major relapse, just lots of them.
I felt way better after coming off of Betaseron, and now even better on Tysabri so far (fingers crossed). I'm hearing now that not everyone is actually feeling better on it, but I don't think that means it's not working well, as it's main job is prevention just like all the other MS drugs.
Hope that helps, if you have anymore questions pls ask, and I wish the best to your son with his MRI results.
Diagnosed with MS April 2006
Started Tysabri Nov. 2007