Well your post prompted me to call my neuro. if nothing else realize you helped me to stop letting them do this to me lol..
i told them of how my neuro told me verbally that he was releasing my neurontin prn and he called me baby aww lol.....and that the clinic had said 3800 mg and he has me on 100 before bedtime (when i picked the med up) i told them , please i try to ride out as much as i can at home but....if he waits 2 days to call me i will end up in your ER this time and we will have to address steroids as i cannot do this on 1 lil neurontin as i sleep and my body is twisting..
She became very serious and siad OK what number can he reach you at? he will call u in the next hour! I thouht yeah to avoid dealing with me inpatient...
Ive avoided inpatient to the point of almost feeling like i need hospice lol...and i simply cant do this. Someone has to take some doctorship accountability and put me in and review whats going on and work out my regimen and quiet this episode or im also scooter bound without being happy for it.....
They can be such a great thing, but im saying id have my head laying on it as my legs and arms twist...
Sometimes it feels they would rather you be so proactive (as they told me last week, Kiera your a good patient) well im not above being human and im at my end on this..i need intervention here.
Sure its easier for them to let me do it myself as i put gel in my dry eyes, and try to untwist myself and remain awake from the narcolepsy only to suffer the pain and go thru another cycle of their appts where they get ins money>
So no, not all of our doctors are super hero's to be sure. Mine just got a friendly wake up call that ill be coming to them quickly through the ER as i cannot stand or Bare this right now.
So your post helped me...and realize that none of us Knew all there was to know. Nor do we tame the MS as we line up our PERFECT doctors (there is no such world)
Every day brings us closer to what we reach for .........in all things.