... I went to a neuro who thought that with some other symptoms it was possible MS, I had a brain, cervical, thoraci and lumbar MRI, before going to him for the report I found he was charging my insurance company for things that were not done so i picked up my records and got a new DR
....the nect doctor (a DO) did labwork and said I had hypothyroid and a few bulging discs/arthritis/degeneration of the spine (per MRI report from a radiologist that he sent the MRi's out to be read by) he refused to allow me to use Armour instead of synthroid so I switched DRs again.
...I love my current Dr. She is great, she did more labwork and said I have Hashimoto's thyroiditis, also non diabetic hypoglycemia and anemia. At the same time I have rashes that came up when i got pregnanct with my 3rd child 2.5 years ago and have never gone away. My current doc sent me to a dermatologist to get biopsies...they came back as Guttate Psoriasis. He asked for the mri's as well, and said he believes it is psoriatic arthritis in the spine. he wants me to take enbrel injections twice weekly
....my doc referred me to a new neurologist who i saw in january, after a thorough exam and bloodwork to test for lymes, b-12 levels, ANA, sed rate, etc, he said he believed I had fibromyalgia and complicated migraines that were causing the left side weakness and other symptoms. He prescribed lyrica to try for a month. it did nothing for me.
...2 weeks ago i developed problems in speech and stuttering, slurring, reading things 4-5 times but still not getting it,etc. I scored a C in an exam in college when I had previously made all A's. I also thought i got a bladder infection around the same time because I kept feeling the need to go but was also having a little incontinence problems as well I have chronic constipation. I went back to the neuro Wednesday and explained this all to him. He said this would indicate a separate episode and ordered another BRAIN ONLY Mri , I am going on monday AM. He also wants to do a spinal tap. He said it is indicative of possible/probable MS but we must go through the process of elimination.
... Well the first night in the hot tub I had a reaction and the next morning I felt much worse rather than better. The second night i had the same reaction the day after. This is very depressing and discouraging after the money we spent and the hope I put into that hot tub.
Please i am looking for advice, has anyone had to go through a "possible/probable diagnosis" before, and also I was not told that my first MRI showed any lesions so I am confused as to why a second is needed only 6 months later and how it can be considered possible/probable ms if there were no lesions?
Thank you for reading my long story and for any advice/input.
I broke up your post a bit, deleting sections that I don't have any good opinion about, leaving others that either I wanted to comment on, or ask questions:
First though, you said "I just want to know what I have so I can get rid of it." I hope you do understand that if you do have fibro...or MS...or diabetes..or a host of other disorders, you may well have a disease or disorder that you can't "get rid of", and instead need to learn to treat for the rest of your life? Not all diseases are curable; most neurological diseases fall into that category.
Now on to your comments: How did you find out that the doctor was charging the insurance company for "things that were not done"? Many times one test can give results for a variety of things. Did you ask another doctor, or do you have medical background sufficient to figure this out?
Why did you insist on the Armour, instead of synthroid? Is one a "brand" and the other "generic"? Do you understand that generics are required, by FDA rules, to be *the same* (as far as their active ingredient(s) are concerned) as a brand, but quite a bit cheaper? That's probably why he prescribed it. And some insurance companies won't pay for "brands" if generics are available.
The neuro who suggested fibro -- and prescribed Lyrica -- did the right thing. When it "didn't work", he's pursing other possibilities. Lyrica of course won't "work" to treat MS. So he's following up with another MRI and a spinal tap. Why? Because MRI's can change over time...even over weeks, not to mention months or years. And a spinal tap is a good diagnostic tool, to rule in..or rule out..other disease mechanisms that could be affecting you. Chronic infections in the central nervous system will show up through a spinal tap, for example (and could explain that rash problem, too.)
It is possible to have MS without lesions showing up on MRI's, particularly in the early stages. MRI's aren't "definitive". There IS no definitive test for MS..which is why your neuro said he has to eliminate all the other causes. And again..an MRI done 6 months ago may not have shown lesions, where they might appear on a new one. Given the fact that your symptoms seem "all over" your body, and not just in your legs, bowels, bladder -- stuff from the neck down -- it's reasonable that he's getting a new brain MRI first, to see if there are lesions in your brain.
What "reaction" did you have to the hot tub? A typical MS-"reaction" would be extreme weakness in your legs or arms, or an increase in other MS related symptoms, which would decline once your core body temperature cooled off.
Unfortunately it seems common that people with one autoimmune disorder (the Hashimoto's is an autoimmune disorder) can have others. And of course just because someone has MS doesn't make her/him immune to other unrelated problems, including disc problems, or other diseases. It sounds like your PCP is being thorough to figure out anything else that might be going on, and then getting you good specialist referrals.
I hope you get all this sorted out soon. Good luck with the new MRI's. Several folks here have undergone spinal taps; we'd be glad to share our experiences with you, if you want.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....