thinking i got triggered by helpful minded doc, need to know about therapy?

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Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 4:10 AM (GMT -7)   
Hi,
 
I had a f/o with spinal rehab doctor who did pop and manipulate my neck but that part usually unpinches nerves. Id never had anyone do it until him but it did provide relief w the cortisone injections.
 
However, when i went for f/o this time, this same doc asked me if my other docs had suspected heart (yeah id had front rib/chest pain) and so he traced a nerve along ribs that begins in front of my chest and ends in back area where a woman snaps her bra. So confusing becuz this is the MS hug area as well. But once he showed me how it connected i guess i felt he knew what he was doing...
He turned me over on my tummy and took his elbow and said wow..and began dissolving or melting spasms he saw and pushing them down toward my hips...then he'd say theres another one and continue. Afterward he injected four small places in my bra closure area where there is also a herniation but to my knowledge noones found a lesion on my spine.
 
It did hurt so good and i walked out feeling as if i had a new back. Yes it became sore, but i thought this is part of the normal. In the back of my mind i was thinking well if you could simply rub MS out they would of done this long ago and should he really be doing the intensity that he did. I tried to believe ok itll die down and easter i will go to church in a bra.............
ha
no.....i was in excruciating pain that radiated all through my  body. Its almost like what he did that for the moment made me feel brand new , triggered the rest of the muscles and things in limbs of body to spasm.
My eye became involved and by last night i was breathless for all the pain and cramping from the bowels.
 
I went to bed (remembering his words of you need to retrain these areas in back, and get a massage therapist)....and realizing i was sent to him by my doctors who know i have ms. He knows this as well. I tossed and turned all night with spasms in legs, feet, arms, my back suddenly seemed looser this morning but i have ripples throughout rest of my body. If we could retrain MS of course we would but........im learining that this cost me a trigger of an episode that i am going to hate seeing the residuals of.
 
It feels like the area he injected is loose but with fasicualations and the rest of my body trying to draw up.
I'm catching myself sitting with my weight on balls of  my feet, my heels of ground (for pain or spasticity or both?) and of course thiis isnt the normal way you sit so i have to keep trying to relax and it keeps siezing up ....
Wild cycle thats quite painful.
 
Now i regret him doing this.
 
Can anyone tell me if they do massage therapy and if you do , do they manipulate any part of you or is this a major no no as it seems it has become for me?
 
I feel almost foolish but he knew my case well and as he's relieving your pain in your back (hurt so good) you are most excited and feeling immediate relief and happy for it until the rest of your body tries to recompensate for the new back?
 
I guess i really need to know. With MS do you avoid or do massage therapy? I know alot do physical  therapy but is that  mild and careful therapy and less agressive than what i had done?
 
I really dont know what to think, but after last night in bed .........and even now....i dread the residuals. My neck cant even find where it feels attached to my back. Im constantly shifting and trying to find "what is normal" line up of body?
sheesh!
 
BUT the bonus was it made my bowels spasm all night and produce alot of air and thankfully a bowel movement this morn (had been blocking again).....but i dont think this is the way id choose to have them cooperate lol.
 
OMG>>>>>>>>>>>? was this wrong to do?
 
I welcome your feedback to what youd allow a doctor to do to your spine, while having MS and what youd quite frankly avoid.
 
They also offered to inject the greater nerves in my head to then induce a migraine and quiet them down ugh.....do they think they can inject all my nerves? WIth MS?
 
 
 
THANKS
 
KIERA
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/24/2008 7:38 AM (GMT -7)   

Kiera, I don't know of anyone (but you) who has gotten massage therapy. Was this guy an MD, or a chiropractor? You say he was a "spinal rehabilitation doctor" -- chiropractors often call themselves "doctors" but they don't have any medical degree.  Did he claim to have any experience with people with MS?  Some will say that when in fact all they've had are patients who have MS..not that they really know anything about MS...

You are right -- MS cannot be "massaged away", so I really can't comment on what he did, and whether you'll deal with long-term effects, either good or bad.

Physical therapy generally works on things like "range of motion" exercises, and can be helpful with walking problems. Occupational therapy helps you learn how to do things better and more efficiently in your daily life, when you aren't able to do them "normally" -- like, I saw an occupational therapist to learn how to prepare food and cook from a wheelchair..

You do need to get that bowel and bladder thing under control, though.  I use a product called enemeez -- you can find it on the internet. There are two varieties -- I use the "plain glycerine suppository" type.  If you're not having a bowel movement every 2-3 days, you need to use something to make it happen.  But first you need to talk with a urologist to find out exactly what is going on, and get their recommendation.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 8:36 AM (GMT -7)   
Thanks so much for addressing this.

My gp sent me to him for pain management. He is in a spinal rehab building and when i first saw him it is true that i had no ability to turn my head to the right. He did adjust it then and it hurt and scared me But it after 3yrs i was able to move my head to the right. Guess thats' how they bring you in..........

Then it really is standard with encroached foramen to inject cortisone. He did this well. However when i went for next followup there was a woman and she didnt even ask, just grabbed me and began popping. So when i went the other day..i asked....do you all remember i have a problem in neck AND i have MS? They answer yes but tried to offer me a hint that they TOO had a sleep clinic...I think you get the drift...as it moved along they tried to do more and more.

I did ask him the first visit what he was. When he took my neck and gave me back full rotation, he joked and said "youll think im a chiro"...i asked what ARE YOU? He responded that he was not a chiro (beginning to believe diff) and that he had schooling in spinal reahab, some neuro courses, some orthapedic..a little of it all.

I do think if i ONLY had an enchroament he might of been dead on with the injections and ONe ADJUSTMENT to allow rotation. I think it should of STOPPED right there though.

He should of respected the fact that i brought him papers from cleveland clinic with the MS paperwork and not just kept hinting that he could help more and more.

I have never been to a Chiro so no he doesnt have a chiro sign, but i think its misleading...as they wanted to inject my greater and lower nerves? I called my gp today and my neuro and told them what happened becuz my GP knowing i had MS sent me to him. I havent been offered OT or Physical therapy and so i didnt know what the course of action was.

Now i sit here after having been manipulated and snapped , popped, injected, massaged and im like WAIT......you cant just Rub out MS dang it???? and Why? isnt my NEURO THE ONE addressing the spasticity so YES MS UPPITY I GOT TAKEN IN LOL.........gawd..and i hurt for it and i KNOW NOW that ive allowed someone to hurt me by trying to be compliant.
He did take advantage of this on me.

In all ive been through i can say that he should of been the one who wrote the medicine. Even injected my neck up to 2 times per year but hopefully not that often..but thats ALL>>>>>>>>>>>!!!!!!!!!!!!!!!!!!!!

So , yes i am calling neuro, ive called them 3 times and told them i desperately need the nurse or the neuro to call me, and they always call back but sometimes 3 days later, so i told them, this time IF you wait ill end up in the ER.....being admitted. When they do call back i intend to explain to him and ask about OT, Physcial Therapy and Why someone else is Cracking a bad spine?????

My family doc is also getting a call becuz she sent me there. Shes very nice and knows all i suffer but i think she thought he would just manage the pain (like i also thought).

I do believe what he did will leave some permanent probs, i can say that already. Its like he addressed it from a point of view as if i were a person without a disease that he was merely helping get spasms out of.
I told my hubby last night that if MS could be massaged away , then everyone would be doing it and that i NEEDEd to get online to ask you guys as i dont have anyone else to tell me.

---It also came to me after i suffered excruciating pain yesterday that why isnt the neuro addressing my spasticity?
What about botox? And arent we supposed to be careful and things done more gentle, like water therapy?
---I felt foolish for being so compliant that i feel i was misused and now im damaged.
---I even told them i had narcolepsy, but after he rubbed the spasms out? he then said you need a chiro<<<<he told on himself, and a massage therapist. So now i KNOW he has no real clue of MS.

--But i also feel like my Gp unintentionally sent me to someone who took advantage of this and i feel my good intentioned Neuro needs to have a GAME PLAN...but he never speaks about one? Just loves the fact that im proatice and tells me to stay on the copaxone>....
I may have to make the drive to go back to the clinic instead of remaining here where they arent staying on top of it but allowing me to float through whomever.

This forum was the first place i saw people say OT and Physical Therapy. So im not doing this anymore. IF i do have to see that Doctor (or so called) for the medicine , i WILL tell him no cracking me AT ALL,,,, NO MASSAGE and NO INJECTING nerves other than dealing with the 3 series injections for neck.

My fear here is my gp told me that she doesnt write pain meds but she truly knew i needed them so she'd get me to him and she wrote my meds to "bridge" me til i got to him. Thats the sad part. Is he suddenly not going to want me as a patient if i dont let him HANDLE me? I know that many will say get a new pain management doc. There are like hardly none around here becuz of the misuse of drugs. Other than illegal pop up clinics that i refuse to go to.

So........

I will stay on top of my bowel issue seriously. I was just saying this is all getting a bit too much and he's put me in attack...triggered me ...so to speak. Even maybe damaged ME!

Ive been to all the uroligists and even one who writes for the medical journal. They want me to cath once every 2 hrs. They do not want me on a med that helps as they jotted a note that the med they have for the bladder really isnt as helpful as advertised. So basically all the uro's viewpoint is to get the bowels proactive.

When i was with a uro constantly they had me on bactrim and my gp grew the bacteria from the infection and called here one day and told me that bactrim woulda never killed it. So she did with macrobid. Ive got to say that from the neph's point of view my previous problem did resolve. I will have to continue to watch for infections as all ms patients, but basically its more about staying on top of the bowels. Ive had 5 colonoscopies and it all comes back as IBS and when i saw the neuro he just said you will have to be very proactive with fiber to avoid problems and surgery.

I have nothing to help me as far as at home. No equipment..nothing for helping me walk when spastic. No hints other than what you all have told me.

So i really think i need to get my Gps attention and my Neuros and let them know i NEED some assistance and i need my neuro to not just chart my progression over the phone, nor have me come in just to chat..but to try to come up with a gameplan for these probs.
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 3/24/2008 9:15 AM (GMT -7)   

I have a large lesion(very obvious on an MRI)on my spine and I was told by my neuro who I love and trust completely that I should avoid any kind of pressure on that part of my back.  She showed me exactly where that lesion is.  She did not tell me to avoid chiropractors as she understands this is my body.  She did say if you ever get a massage, you might have them avoid pushing or rubbing directly on the spine.  She said the ribs next to the that area is fine as long as I am comfortable.  Pain and numbness during touch is a red flag.  I have never trusted chiropractors as they are not doctors nor do they receive the same training.  I would never let anyone "crack" or "adjust" my back. 

If you were "damaged" by a doctor I would think you would never consider returning to that doctor.  I certainly wouldn't. 

Love and prayers,

 


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 9:20 AM (GMT -7)   
I'm sorry Ms uppity i rambled but im just feeling totally violated here.

Yes he said he knew about MS, ive not seen his degree, he told me he'd been educated in it all...

I can say this much...after he finished with me, its like i told my hubby , alot of what they do is induce some of these probs to have you coming back...crazy!

When he said, you need to get a chiro (after he'd rubbed all the spasms out and was done of course) ...then my heart sank and i KNEW.

His practice is very misleading. I dont even see why theyd be allowed to have a sleep clinic. Yes person with pain might suffer from sleep problems but they are cashing in on it $$$$$$$$$ . When his nurse said they had one , i told her NO WAY, i just had one done and had the results so i didnt need one. (i think had i not said that she would of scheduled me into theirs)...sheesh.

It just slowly got more obvious..phones ringing...
Wow what a trip....neuro's nurse says they know my neurontin should be upped and they didnt know the guy was going to do this to me. I assure her i wasnt blaming them but either way here i am, spastic with sword type pain going through me, and drawing up of back tendons in legs among a ton of other things...to which she reminds me that neuronitn isnt for the drawing up. So i had to say I KNOW thaT..............buttttt i have to have the neruontin to not be sword like in front of my child, IM merely trying to function here and i think this may have set off an event that may make me not be able to walk very well, and that its a combination therapy that should be done and shouldnt he as a neuro be the one doing it? She said well you had that kidney problem (so i had to go thru that explanation again) and guess what?

If the neph will fax it to them, altho they told me the other day verbally they would release it...then she will write it but that i have to understand this.

I told her i DO understand caution. But i also know that someone suffering due to a fax not being asked for isnt exaclty something that cant be fixed or should be delayed.

so she leaves it on me to call the neph and urge them to fax her and then she will send it.

After we discussed the spine thing. She went both ways..she said well you do have a neck problem, i said yes i do and injections in that is ok, but snapping an ms person isnt. He mighta removed some compensation i had and now im in attack. She said well dont let him treat your neck. I said well what you just said was true. He needs to ONLY inject the cortisone but either way that doesnt answer the neuro end of the deal...

So i asked her what about OT and PT.....she says she will tell the dr and schedule me for it. Is it normal to have to ask for everything from your neuro? Do they not have a clue that there should be any regimen for some of this?
Have any of you experienced this prob?.....i cant get another neuro around here mainly because noone really deals with MS as much in this area. Id have to return to Cleveland and its quite a drive.

He truly does seem to want to help but I do think his mind gets so boggled with patients that he doesnt remember what he says hes going to do.


Does anyone else have neuro's who offered them OT and PT or did you have to be the one who asked for it?


This really upsets me. I told her i wasnt at all blaming him for what happened to me on friday. I obviously got taken advantage of but either way im not coping well and my body is going nuts. She says well ....let me talk to the dr....yadda......grrrrrrrr


Now who was it that said nooone else seems to have a problem with their doctors lol?
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/24/2008 9:31 AM (GMT -7)   
Kiera said...
Thanks so much for addressing this.

1.My gp sent me to him for pain management. He is in a spinal rehab building

Then it really is standard with encroached foramen to inject cortisone. He did this well.
 

2. I did ask him the first visit what he was. When he took my neck and gave me back full rotation, he joked and said "youll think im a chiro"...i asked what ARE YOU? He responded that he was not a chiro (beginning to believe diff) and that he had schooling in spinal reahab, some neuro courses, some orthapedic..a little of it all.

3. He should of respected the fact that i brought him papers from cleveland clinic with the MS paperwork and not just kept hinting that he could help more and more.

4. I have never been to a Chiro so no he doesnt have a chiro sign, but i think its misleading...as they wanted to inject my greater and lower nerves? I called my gp today and my neuro and told them what happened becuz my GP knowing i had MS sent me to him. I havent been offered OT or Physical therapy and so i didnt know what the course of action was.
 
5. and Why? isnt my NEURO THE ONE addressing the spasticity so YES MS UPPITY I GOT TAKEN IN LOL.........gawd..and i hurt for it and i KNOW NOW that ive allowed someone to hurt me by trying to be compliant.

6. In all ive been through i can say that he should of been the one who wrote the medicine. Even injected my neck up to 2 times per year but hopefully not that often..but thats ALL>>>>>>>>>>>!!!!!!!!!!!!!!!!!!!!

7. So , yes i am calling neuro, ive called them 3 times and told them i desperately need the nurse or the neuro to call me, and they always call back but sometimes 3 days later, so i told them, this time IF you wait ill end up in the ER.....being admitted.
 
8. When they do call back i intend to explain to him and ask about OT, Physcial Therapy and Why someone else is Cracking a bad spine?????

9. My family doc is also getting a call becuz she sent me there. Shes very nice and knows all i suffer but i think she thought he would just manage the pain (like i also thought).

10. I do believe what he did will leave some permanent probs,

11. ---It also came to me after i suffered excruciating pain yesterday that why isnt the neuro addressing my spasticity?
What about botox? And arent we supposed to be careful and things done more gentle, like water therapy?

12. --But i also feel like my Gp unintentionally sent me to someone who took advantage of this and i feel my good intentioned Neuro needs to have a GAME PLAN...but he never speaks about one?  Just loves the fact that im proatice and tells me to stay on the copaxone>....
I may have to make the drive to go back to the clinic instead of remaining here where they arent staying on top of it but allowing me to float through whomever. 

13. There are like hardly none around here becuz of the misuse of drugs. Other than illegal pop up clinics that i refuse to go to.

So........

I will stay on top of my bowel issue seriously. I was just saying this is all getting a bit too much and he's put me in attack...triggered me ...so to speak. Even maybe damaged ME!

14. Ive been to all the uroligists and even one who writes for the medical journal. They want me to cath once every 2 hrs. They do not want me on a med that helps as they jotted a note that the med they have for the bladder really isnt as helpful as advertised. So basically all the uro's viewpoint is to get the bowels proactive.

15. When i was with a uro constantly they had me on bactrim and my gp grew the bacteria from the infection and called here one day and told me that bactrim woulda never killed it. So she did with macrobid. Ive got to say that from the neph's point of view my previous problem did resolve. I will have to continue to watch for infections as all ms patients, but basically its more about staying on top of the bowels. Ive had 5 colonoscopies and it all comes back as IBS and when i saw the neuro he just said you will have to be very proactive with fiber to avoid problems and surgery.
OK, I went through your post, deleted some stuff which I can't comment on, and numbered the stuff I do have an opinion about:
 
1. If it was your gp who sent you to him, then you need to talk to your gp about what he did, and what his credentials are.  He may well be a "real" doctor (with an MD, not a chiropractic diploma).  Your gp might better be able to explain what he did and whether it was appropriate or not.  I do know that injections of cortisone can help with pain. But I also know that manipulation of the neck is particularly dangerous no matter whether you have MS or not...and ought not be done.  But again..I'm not a doctor.
 
2. Check with your GP about the "manipulators" credentials.  "A little of this, a little of that" isn't very reassuring to me.
 
3. Yes, he should have noted your paperwork from Cleveland clinic.  Are you sure he didn't?  Knowing just what kind of "doctor" he is would be helpful. If he IS a genuine MD, maybe he does know about MS, knows what else might be going on with you, and be able to coordinate treatment.
 
4. Not every doctor treating patients with MS will refer the patient to OT or PT. You may well not need either, right now.  It's often prescribed when you need help with learning how to walk with a cane, for example. Or like me, after a major exacerbation, I needed to learn how to use a wheelchair.  But if you don't need either, you won't be referred to either! In the meantime, you might want to check to see if your insurance will pay for it, anyway!
 
5. No, you didn't get "taken in". You just need to be sure that you're getting treatment from a real doctor who knows and understands MS..not someone who "claims" to know. It's good you told your neuro and gp about the treatments you received, and now you  need to ask if they were appropriate.  As for the neuro treating your spasticity -- he won't be "manipulating" you..but could prescribe some medication for spasticity. Your GP can do that, too.
 
6. Nor would the neuro necessarily inject your neck, unless he thought it was appropriate. If you've been seeing him for years and he hasn't done that, you need to talk with him about why not. If it isn't appropriate (not all neuros think that medication will do much for it!), then either you need to accept his advice or find a different neuro.
 
7.  It's good that you called your neuro. I hope he (or a nurse) calls you back. But going off to the ER isn't a good option, either.
 
8.  Again, "cracking a bad spine" is a bad idea, in my non-medical opinion.  Indeed more harm than good can come from that.
 
9. Your family doctor does sound nice..but needs to take more control over your situation. She/he can prescribe pain medication, spasticity meds, bladder meds...if appropriate.
 
10. I hope he didn't leave "permanent problems"! I hope you're just feeling sore from the procedure, like having a sore muscle the next day after strenuous work, and it'll fade away in time!
 
11. Botox can help..sometimes.  But it needs to be repeated regularly, every 2-3 months.  You need to ask about it, and see if y our insurance will cover it. Not all insurance plans will.
 
12. If the neuro thinks you're getting PRIMARY care from the PRIMARY care physician -- your family doctor -- he likely also assumes that the PRIMARY care physician is the one who develops the "game plan".  The neuro diagnoses and refers..the family physician coordinates and plans, usually.
 
13.  What are "pop up" clinics? If you mean "urgent care" clinics, they are by NO means "illegal", and indeed are what you should be using instead of the emergency room, when you are ill and not able to get in to your regular doctor.
 
14.  Bactrim (or other antibiotics) won't help a neurogenic bladder.  If that is what you have, indeed self-catheterization might be what you  have to do. Not all the meds DO work well, for some people. Sometimes a period of self-catheterization is necessary to get the bladder working properly again, so that certainly is something to consider.
 
15. Your neuro is right -- other than staying on top of your bowel problem -- making sure you defecate at least once every 2-3 days, taking fiber, drinking lots of fluids, using suppositories as necessary -- there really isn't much else that CAN be done.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 9:33 AM (GMT -7)   
Gretchen,

It's not like i want to go back to him. I need the encroachment addressed and thus far he was the only one who did the injections.

Maybe my gp will KNow of someone else? Either way they are being informed that i will NOT allow him to pop/crach whatever.

And btw, the first visit he asked me to pull my hair up and i did so thinking he was going to check my neck. He cracked me without permission and i screamed. Until i realized my neck could turn to the right again.

So like you , id of never let someone POP me if he'd of asked. I had no clue he was going to do it!

Once it gave me back rotation i think thats where things got wierd. They began just grabbing ahold of me and id tense up against it , but then id think if i dont limber up , im sure to be damaged.

So yes hes doing chriro things but then he recommends i go to see a chiro? If you can realize that this in itself is misleading. Why would i need one if he's cracking me? LOL....................gawd.

I wont let anyone do that again. Although the neuro's nurse did try to defend him and say well you did have a neck prob. I agree but like i stated above the first rotation should of been the ONLY one.


You learn as you go and as you know better...you do better...

I do not know what Gp will do about this. I do know if i go back to him he wont be "laying hands on me"

thanks


kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 3/24/2008 9:44 AM (GMT -7)   

I drive almost two hours to see my blessed and beloved neurologist.  I meant to only use her as a second opinion.  After I met with her I decided to keep her!! She works at the MS clinic at UCLA and she only sees MS patients.  I talked to her about the distance and she was very willing to work with me by phone and email.  She is amazing.  She gets right back to me by email when I have a question or concern.  I just love her!!!  I see her twice a year and she spends about 45 minutes at each exam.  I have never asked for PT or OT.  She got me into PT after that last flare where I needed some balance training and strength and stretching stuff. 

I have not needed OT so she has not offered it.  She has been real good about working with my GP who is very local.  The two of them work very well together.  They share in my treatment and all info on this treatment is faxed to the other. 

Good luck! Love and prayers,

 


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 9:59 AM (GMT -7)   
Thanks Ms uppity.

Your right on all you said and it's pretty much how i feel about it

---oh i tried to believe it was soreness..i really did. He even said that on Easter sunday id be able to wear a bra, well thats a joke, i could barely sit in a pew without my head bobbling and my shoulders trying to find relief. Shoulder pain is now there that wasnt.

---I will ask my Gp of his credential's and i do agree that she could take a little more control over this and write whats needed.


---When i say pop up clinics. No not urgent outreaches! Where i live there is so much abuse that these illegal doctors pop up that take cash only and will not deal with insurance. I know some people who go to them, and its been all over the news..they operate for a few months then shut down and jet out of here, OR they get busted and shut down. So its very difficult in this area to have your pain addressed at all. I'm blessed to have a GP that knows how much i do hurt.

--thats why i fear there may be noone else and ill have to tell him NO NO NO , and i do not know since he's geting ins.$$ if it will offend him or what will happen. Like you said , maybe he is an MD, but either way i need to self protect my spine and let him know my feelings. The first pop was done without my knowing it was coming!

--I do have a neurogenic bladder that now seems to go in sync with my episodes. I can urinate some on my own when im having residuals , but when flare happens, it deadens again. The med they were referring to was one that helps frequency or something...and ty for the link about those suppositories.

--I dont need Ot yet but pt is definitely something that would be a much better/safer/and helpful thing considering its harder to walk every day. Twists and broken feelings and pulls on back tendon are causing alot of shoulder bumping into walls and many other things. ( ty for your explanation of OT, i wouldnt need that until major exac like you said that changed how i move right now).

---I do think some assistance with walking is needed. Not always, but alot more lately. Its harder and harder to walk and have balance, or have my legs not be jelly/heavy/or pulling with tendon.

---I personally can in hindsight say , if i had it to do over (maybe this will help someone else avoid what i went through), id of gotten the 3 injections they DO help, then id of asked for water therapy and maybe some help with the feet/ankles.

--You learn as you go. I do understand that they cant "fix" me in the ER, but i also understand the dull ache behind my eyeballs and what im sitting here feeling and experiencing and i do believe im flared and need steroid this time more so than others.....due to what he did or not.

---im online mainly becuz i cannot walk around and im trying to sit here and read others probs and respond to their things to "hold on" until something lets up or eases....

---Bactrim was given due to reoccurrent utis'. one ran for 1 yr until gp found the type of bacteria and used a different antibiotic. Sort of like what deb is going through right now.

---I guess im trying to figure out who's the Leader here lol. Your post helped me to clarify who does what and I will call the neph to urge the fax so neurontin can be released. I will also ask Gp to help with this situation and to explain to me his credentials and how i go about NOT letting him "go to far".

I wouldn't recommend this to anyone. Felt great the first day but boy does it bring up new thing's you've never had before.

I had never even seen a chrio in person before, and perhaps he is legit. I'll surely be finding out , and perhaps my gp can call him with a reminder of ONLY cortisone.


thanks

kiera

Oh one thing i forgot was the paperwork they give you about his practice explains that he treats MS patients. So it all was going good. He has alot of patients who dont have it, i even asked my hubby if maybe he forgets that im not just the neck prob? (altho i keep reminding him lol)..im going to try to find that paperwork and see if it says what he is..


Every day brings us closer to what we reach for .........in all things.
 
Kiera

Post Edited (Kiera) : 3/24/2008 11:06:57 AM (GMT-6)


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 10:19 AM (GMT -7)   
Gretchen ,

Your blessed to have a team that works so well.

I do think mine wants to but its kind of the gp thinking the neuro's doing it and vice versa...

The clevleand clinic also offered to email with my neuro about me and he was very happy about that, since then ive heard nothing , i think he's very swamped and hasn't been in touch with them other than 1 time that he told me about.

Glad that you have that team! Many, depending on location, doctor availability and other reason's dont have it so well when trying to get all of this , but then again you've been in this longer and ive just began to try to set up a team of healthcare doctor's locally.

It might be a time thing. This exac im in though scares me as its doing things to my feet that makes me feel it may leave a little more disability than i feel they believe right now.....

steroids can only lighten it and doesnt change disease progression but sometimes can shorten the attach (so to me, to shorten to to stop some disability sometimes)..not always!
Ive always tried to refrain from their use but I really cant seem to even leave this computer , im locked up and spastic.....

So glad that your doc's are helping you , and that book you mentioned, ill have to find that again as id love to try and read that and do the journal

God bless

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera

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