All this will...in time...become routine. Part of your "new normal". You'll pay attention to your innards and know that folks should urinate about once every 3-4 hours, and if you haven't, you need to. And defecate at least once every 2-3 days, and if you haven't, you need to. Eventually you'll get to a urologist who will help you work out a bowel and bladder program so that you get that in to your routine and it won't become a major focus of your life. You'll wake up in the morning and take whatever meds you're supposed to take in the morning (like, I get out of bed, pee, and take my oxybutanin). You'll get ready for bed at night and before you brush your teeth (also a chore you learned to do early on, and probably don't think about anymore, either), you'll take your meds. And so on.
Babies learn to be potty trained...it's a matter of relearning that skill, using different methods. Urologists are helpful with teaching those.
oh and i totally agree that my "normal" will now include bowels and its always inncluded bladder, but right now the attack issnt over..so....its not all said n done yet..
Post Edited (Kiera) : 3/25/2008 6:44:38 PM (GMT-6)
You seem "scattered" to me. It's hard to know, of course, without actually being around you...but you have kids and a husband and a new dog...and you're not focusing on YOUR health issues.
Yes, a urologist is the one who can deal with bladder AND bowel issues. But you have to FOCUS, and be able to tell him simply and straightforwardly what your issues are. You CAN"T skip 2-3-4 days without urinating, or having a bowel movement, and expect to NOT have problems. As I said, YOU have to keep track of when you urinate..and if you don't do it every 2-3 hours, then you need to FORCE yourself to do that -- lean forward on the toilet, press hard, press against your "private parts" until the urine is released. I even "punch" myself to counteract the bladder spasms, so the urine is released.
You need to have a bowel movement every couple of days. If it doesn't happen "naturally" -- then you need to MAKE it happen. Glycerin suppositories (the enemeez I suggested) are good. Ingesting fiber MAY help..but may not. Again -- a urologist can help.
But it sounds to me like you run off to doctors sort of "helter skelter", mixed in with emergency room visits. You need to be sitting down with ONE doctor, go through ALL your symptoms, in a controlled and organized way: "This happens now, then this happens; I'm experiencing this pain, this spasm.." etc.
But YOU have to be in control. If you're not urinating, you need to see a doctor..not wait for your neighbor or husband to notice. If you're not defecating, YOU need to notice that, and take control. Yes, you SHOULD go back to a urologist and talk about the bladder and BOWEL problems you're having, rather than guess that "my kidneys are failing and I need a kidney transplant", or "the pain in my side is liver failure", or whatever.
If in fact you ARE in an exacerbation, your neuro needs to hear about it. But you need to see ONE doctor..one neuro, or one family physician, and NOT run from doctor to doctor with each "attack". ONE doctor to see you OVER TIME, to NOTE all the different things that are occuring, and begin to treat them consistantly. If you keep skipping from doctor to doctor to emergency room to doctor to doctor, your health care will be inconsistent and not really get at what is problemmatic.
I'm sorry to be so blunt. But you NEED to stop running around and get to ONE doctor, sit DOWN with him...take your husband with you to help you keep on track...and LIST all your symptoms, in a coherent and systematic manner, and ask for advice and treatment for each of them.
i can understand all you say and i will punch,..its not being able to walk to get there ok?..............only here tonight can i walk through the house. (i do know its hard becuz he cant see me)
p.s. i havent been to an er in over a year, but i did realize how bad this attack was from all of the slams on body....
so i dont think im realying it to you well enough, the doctors have me coming whether i feel liek keeping apppointments or not andddddddd they all think and Say im a great patient.
Sorry i stopped reading when it didnt seem supportive but i do know yoru sayng this for my good.
i never ran off assuming kindy failure they told me i was headed there as far as the decrease in function i relayed to you so i did believe "them".
ive never thought of my liver but ok. If youve never had someting i dont think its inhuman to understand a person does not know until theyve first felt it. Youve been thru all of this and i can learn from you but pls undeerstand that i hadnt had this before!
oops i asked hubby er was 2yrs ago for 1 kidney infection with projectile vomiting and 1 was administered steroids by doctors decision for way less things than now.
i did mention ER yesterday but only becuz of how bad this is for possible admission. I may vent feelings here adn with cognition or spelling probs that sound scattered but thats part of this as well.
Post Edited (Kiera) : 3/25/2008 7:25:49 PM (GMT-6)
gp referred me to kidney doctor as i had only asked for 24hr urine so i coould ensure kidneys were ok to take med to help stop smoking when she got Way serioous and said we HAVE to get you to kidney doc and they r the ones who want a pelvic that they wont be getting as it wasnt from the dnc.
Post Edited (Kiera) : 3/25/2008 7:34:30 PM (GMT-6)
I also think it was pretty mature of me not to take offence and even agree to punch my stomach.
I thank you Gretchen that you care, but it wasnt just a bowel movement it was indeed a total blockage that thank God didnt end up with a bag on me due to my not recognizing it for what it were. Even the neph was and is worried enough to of sent pelvic referral for fear something was way wrong. I dont think it was merely a crap i took nor do my doctors.
Im not offended but i have to say go over my responses last night to others and it was and always is total support to them.
Post Edited (Kiera) : 3/26/2008 2:26:05 PM (GMT-6)