new lesions,whats next??

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New Member

Date Joined Apr 2008
Total Posts : 3
   Posted 4/2/2008 3:33 PM (GMT -7)   
hi    i have had ms for 6yrs   having attacks 2 a year. took avonex  but still had relapses. started rebif.  slowed down relapses(one a year) just got mris  and i have new lesions in my neck(spine)  whats next for treatments? i see my neuro in a few weeks. would like to do some research before i go.  i am scared for whats next    thanks holly sad

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 4/2/2008 4:40 PM (GMT -7)   
Hey Holli!

Welcome to the board! Im not sure what u'r asking? Are u considering changing meds? Maybe give it more time. If they've gone from 2 a year o 1 a year then u'r seeing progress, but remember, these meds don't promise to stop flares or progression. They only offer to TRY to slow things down and to TRY to make the flares less frequent and less severe. With what u've told us here, it does seem like the Rebif is doing it's job, but if u feel it's not, or u'd just like to try other meds, then i'd certainly ask u'r doc about it. Several here are on Copaxone and seem to be doing quite well. None of the meds are going to prevent lesions or progression, but i'd honestly say that if u'r seeing a lessening of flares then u'r getting some help from the meds. Take care and again, Welcome!!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
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Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 4/2/2008 6:10 PM (GMT -7)   

Hi Holligras,


Just wanted to say “welcome.” As Rhonda pointed out, these meds are used to try and slow down disease progression and the frequency of flares. Therefore, your rebif may very well be “working” even with the presence of these new lesions. Your neuro will recommend staying on the rebif or changing meds based on your particular situation. I’m happy to try and help you with your research in the meantime though…just let me know what you are looking for and I’ll try and find you some info.  



Post Edited (Sunnycitrus) : 4/2/2008 7:18:17 PM (GMT-6)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3547
   Posted 4/2/2008 6:54 PM (GMT -7)   

Hey Holly,

Welcome to the board. I am sorry that you feel you are progressing and that your meds are not working.  That is a miserable feeling for sure.  What does your neurologist have to say about this?  Is he/she unhappy with your progression and med therapy?  I know that when I took my last MRI to my neurologist and I had a new lesion, she was still thrilled with my over-all condition and felt that the copaxone I take was doing what it was meant to do - slow this down. 

Welcome again and I am glad you posted.

Love and prayers,

Gretchen       co-moderator MS board       diagnosed with MS July 2006

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