I've been dealing with the symptoms for about
10 yrs like I mentioned but for me it started with one single numb spot over my right knee, then numbness in my feet, pins and needles in feet and hands off and on, never bad enough to be debilitating just annoying, extreme stiffness after a movie, legs not working after sitting for any time, imbalance, staggering (but everyone thought I was just "hurrying" too much or must have an inner ear infection though no other symptoms), heavy fatigue, creepy crawlies up my legs, eye tics and chronic massive horrible headaches that I was living on advil with... the crowning moment though that made my (third also) GP send me to the Neurologist, was total loss of fine motor control of my right hand after spray painting some furniture one morning. I just happen to have an appt with her that afternoon and the tremor and out of control was still happening as I was trying to make a prescript
ion note for my thyroid... then she started asking questions like are you up to pee more at night? Are you stiffer than usual? Are you having balance issues? etc... and she sent me. All the symptoms in themselves could be written off as "getting old" and often were... or thyroid or any other number of issues (IBS, ear infection, stress, caregiver to my dying mom etc... )
First visit, he ran me thru his whole exam and dx'd MS. But the MRI's said no lesions. The Pituitary said inconclusive on a possible tumor and he put on Topamax & Maxalt for the mirgraines (blessed relief). 6months later: more numb spots, sharp pains in the neck and behind the right eye periodically, legs still not working very well and of course more fatigue.. so he ordered the Nerve Conduction Test. Results: nerves are smaller than should be for my age and size. He associate thought I was diabetic, I'm not. Recheck in 3 months. Vision issues: blurriness, color diminished and depth perception loss in right eye... Optic Neuritis. He dx'd MS again. We redid the MRI's completely. Right now I'm hearing nothing abnormal. I'm guessing no lesions.
We have just begun. I see him May 23 and will see where he wants to go from here... don't know what he'll do now. So that's my story but new symptoms to add recently for him will be: shortness of breath issues like I can't get a deep breath, more new numb spots (there are many now thru my feet, legs hands, upper right quad of my face)... I just keep a list now. It's hard to know anymore what is or isn't important or matters or doesn't. I used to just poo-poo all the other stuff off and now accumulated they all matter! Go figure.
Personally, I just want to manage it. I've got a sis with Hep C from a bad blood transfusion in '86 when she had her daughter and she originally thought it was a death sentence but we researched managing it with diet and 15 yrs later her numbers astound her doctors! I want to be able to make MS just another part of my life not my destroyer, so I'm reading and listening to everyone here and taking it all in so I can partner up with it and manage it for a long and fruitful life. That's my hope.
Fear knocked ~ Faith Answered ~ No one was there! :)
~ Ephesians 6:13 ~ * ~ Psalm 27:1 ~