Welcome tgr4lfe

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Date Joined Jan 2007
Total Posts : 3571
   Posted 4/10/2008 8:37 PM (GMT -6)   
tgr4lfe said...
Hello everyone, I am new on here as well, but already feel encouraged. I am in the "limbo" stage and have been since 2003. I have suffered chronic headaches which started the ball rolling. after 3 MRIs 2 lumbar puncutres and 3 Neuros they still aren't sure. I go for and OCT exam next week and an EPT exam the week after. The only definitve answer is that there are over 40 liasions. I have started seeing light flares after the shower and having trouble thinking, concentrating, and articulating my words. I have suffered some temporary blindness in my right eye lasting for 8 hours. But still nothing definitive on a diagnosis. I feel completely frustrated! I just want to know "yes" or "no" so that I can confornt it and move forward. Thanks for the encouraging words and the openess of eveyone sharing your stories it gives me hope that eventually they will decide.
I started a new thread for you so you would be seen by everyone.  Welcome to the board.  40 lesions is impressive!!!  I hope you get some answers soon.  How are your 3 neuros explaining all of this??  I am glad you found us.  You will find everyone here to be very supportive.  Please feel free to post and ask questions.
Love and prayers,
Gretchen       co-moderator MS board       diagnosed with MS July 2006

Regular Member

Date Joined Feb 2008
Total Posts : 36
   Posted 4/10/2008 10:26 PM (GMT -6)   
confused  welcome tgr4lfe
     Wow 40 lesions, thats quite a number. I thought i was rocking the house with 8 lol. All joking aside, I am sorry you are still waiting for an answer to all of the questions that must be plaging your mind...I hope you get some answers soon. I am glad you found this board. It is a super place for support and questions..and a great place to talk to folks that have some sense of what your going threw. I hope you get some peace soon
diagnosed 12-1-07
avonex weekly
propranolol 40 mg daily for headache control

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 4/10/2008 11:28 PM (GMT -6)   
Hey tgr4lfe!!

Welcome to the board! I'm with the others...wow 40 lesions!!! All i can say is WOW...u'r not dx'd yet?? Have u'r docs suggested any other possibilities?? Take really good care of u'rself and please do ask any questions u may have. We're so glad u'r here and hope to get to know u soon!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*

Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 4/11/2008 7:11 AM (GMT -6)   
Welcome Tgr4lfe! With that many neuros and 40 lesions in that many MRI's I think I'd be finding one MS specialist somewhere... my neuro would be thrilled to find ONE lesion that he can finally pinpoint all the MS symptoms I've got on... I still have to go thru LP yet... but wow, that much evidence and no dx? Is there an insurance issue? Seems crazy to me. Hope they get it figured out for you soon! Great to have you here, there's a wealth of experience around, enjoy!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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